• Facebook
  • Twitter
x

RealTime Images

  • Portfolio
  • About
  • Contact
  • Video
  • Blog
  • Archive
Show Navigation
Cart Lightbox Client Area

Search Results

Refine Search
Match all words
Match any word
Prints
Personal Use
Royalty-Free
Rights-Managed
(leave unchecked to
search all images)
{ 20 images found }
twitterlinkedinfacebook

Loading ()...

  • EXCLUSIVE: A 10-year-old girl suffering from a rare skin disorder is gradually turning into a stone. Scutes shaped as barks -- caused due to mutation of genes -- have spread all over her body. Rajeshwari, hailing from a tribal area in Dantewada district of north Indian state of Chhattisgarh suffers from a case of ichthyosis that causes reddening, scaling and severe blistering of the skin. The incurable disease affects the process of skin regeneration in the human body, making it hard and flaky. Visuals show a heart-wrenching sight of Rajeshwari sitting under a thatched hut with blisters almost covering her whole body. Though the disease doesn't pose any risk to her life, it has made a life 'a living hell'. The disease hinders her daily life, making even simple activities such as walking and sitting very painful. According to reports, the rare genetic condition affects very few people and till now only two dozen cases have been reported in the world. The rarity of the case makes research difficult and the medicine to control the incurable disease has severe side effects. For people residing in the Naxal infested area, availing simple health care is already a mean feat and Rajeshwari's condition requires her to travel to a big city which is difficult for the time being. when doctors were shown the patient's case file, few of them came forward to express their opinions and diagnosis. Speaking about her condition, Dr.Satyaki Ganguly, Associate Professor at All India Institute of Medical Sciences(AIIMS), Raipur, said “ The medical term for this genetic disorder is Ichthyosis Psoriasis and due to very few cases in India, there has not been any major breakthrough in terms of research. Currently, science has no cure for this ailment.” Another dermatologist has another take on Rajeshwari’s case, Dr.Yash Upender from Dantewada Hospital believes that the girl suffers from Epidermolytic Ichthyosis which is not a life threatening disease but is still uncurable. Medication
    MEGA586418_006.jpg
  • EXCLUSIVE: A 10-year-old girl suffering from a rare skin disorder is gradually turning into a stone. Scutes shaped as barks -- caused due to mutation of genes -- have spread all over her body. Rajeshwari, hailing from a tribal area in Dantewada district of north Indian state of Chhattisgarh suffers from a case of ichthyosis that causes reddening, scaling and severe blistering of the skin. The incurable disease affects the process of skin regeneration in the human body, making it hard and flaky. Visuals show a heart-wrenching sight of Rajeshwari sitting under a thatched hut with blisters almost covering her whole body. Though the disease doesn't pose any risk to her life, it has made a life 'a living hell'. The disease hinders her daily life, making even simple activities such as walking and sitting very painful. According to reports, the rare genetic condition affects very few people and till now only two dozen cases have been reported in the world. The rarity of the case makes research difficult and the medicine to control the incurable disease has severe side effects. For people residing in the Naxal infested area, availing simple health care is already a mean feat and Rajeshwari's condition requires her to travel to a big city which is difficult for the time being. when doctors were shown the patient's case file, few of them came forward to express their opinions and diagnosis. Speaking about her condition, Dr.Satyaki Ganguly, Associate Professor at All India Institute of Medical Sciences(AIIMS), Raipur, said “ The medical term for this genetic disorder is Ichthyosis Psoriasis and due to very few cases in India, there has not been any major breakthrough in terms of research. Currently, science has no cure for this ailment.” Another dermatologist has another take on Rajeshwari’s case, Dr.Yash Upender from Dantewada Hospital believes that the girl suffers from Epidermolytic Ichthyosis which is not a life threatening disease but is still uncurable. Medication
    MEGA586418_007.jpg
  • EXCLUSIVE: A 10-year-old girl suffering from a rare skin disorder is gradually turning into a stone. Scutes shaped as barks -- caused due to mutation of genes -- have spread all over her body. Rajeshwari, hailing from a tribal area in Dantewada district of north Indian state of Chhattisgarh suffers from a case of ichthyosis that causes reddening, scaling and severe blistering of the skin. The incurable disease affects the process of skin regeneration in the human body, making it hard and flaky. Visuals show a heart-wrenching sight of Rajeshwari sitting under a thatched hut with blisters almost covering her whole body. Though the disease doesn't pose any risk to her life, it has made a life 'a living hell'. The disease hinders her daily life, making even simple activities such as walking and sitting very painful. According to reports, the rare genetic condition affects very few people and till now only two dozen cases have been reported in the world. The rarity of the case makes research difficult and the medicine to control the incurable disease has severe side effects. For people residing in the Naxal infested area, availing simple health care is already a mean feat and Rajeshwari's condition requires her to travel to a big city which is difficult for the time being. when doctors were shown the patient's case file, few of them came forward to express their opinions and diagnosis. Speaking about her condition, Dr.Satyaki Ganguly, Associate Professor at All India Institute of Medical Sciences(AIIMS), Raipur, said “ The medical term for this genetic disorder is Ichthyosis Psoriasis and due to very few cases in India, there has not been any major breakthrough in terms of research. Currently, science has no cure for this ailment.” Another dermatologist has another take on Rajeshwari’s case, Dr.Yash Upender from Dantewada Hospital believes that the girl suffers from Epidermolytic Ichthyosis which is not a life threatening disease but is still uncurable. Medication
    MEGA586418_001.jpg
  • EXCLUSIVE: A 10-year-old girl suffering from a rare skin disorder is gradually turning into a stone. Scutes shaped as barks -- caused due to mutation of genes -- have spread all over her body. Rajeshwari, hailing from a tribal area in Dantewada district of north Indian state of Chhattisgarh suffers from a case of ichthyosis that causes reddening, scaling and severe blistering of the skin. The incurable disease affects the process of skin regeneration in the human body, making it hard and flaky. Visuals show a heart-wrenching sight of Rajeshwari sitting under a thatched hut with blisters almost covering her whole body. Though the disease doesn't pose any risk to her life, it has made a life 'a living hell'. The disease hinders her daily life, making even simple activities such as walking and sitting very painful. According to reports, the rare genetic condition affects very few people and till now only two dozen cases have been reported in the world. The rarity of the case makes research difficult and the medicine to control the incurable disease has severe side effects. For people residing in the Naxal infested area, availing simple health care is already a mean feat and Rajeshwari's condition requires her to travel to a big city which is difficult for the time being. when doctors were shown the patient's case file, few of them came forward to express their opinions and diagnosis. Speaking about her condition, Dr.Satyaki Ganguly, Associate Professor at All India Institute of Medical Sciences(AIIMS), Raipur, said “ The medical term for this genetic disorder is Ichthyosis Psoriasis and due to very few cases in India, there has not been any major breakthrough in terms of research. Currently, science has no cure for this ailment.” Another dermatologist has another take on Rajeshwari’s case, Dr.Yash Upender from Dantewada Hospital believes that the girl suffers from Epidermolytic Ichthyosis which is not a life threatening disease but is still uncurable. Medication
    MEGA586418_003.jpg
  • EXCLUSIVE: A 10-year-old girl suffering from a rare skin disorder is gradually turning into a stone. Scutes shaped as barks -- caused due to mutation of genes -- have spread all over her body. Rajeshwari, hailing from a tribal area in Dantewada district of north Indian state of Chhattisgarh suffers from a case of ichthyosis that causes reddening, scaling and severe blistering of the skin. The incurable disease affects the process of skin regeneration in the human body, making it hard and flaky. Visuals show a heart-wrenching sight of Rajeshwari sitting under a thatched hut with blisters almost covering her whole body. Though the disease doesn't pose any risk to her life, it has made a life 'a living hell'. The disease hinders her daily life, making even simple activities such as walking and sitting very painful. According to reports, the rare genetic condition affects very few people and till now only two dozen cases have been reported in the world. The rarity of the case makes research difficult and the medicine to control the incurable disease has severe side effects. For people residing in the Naxal infested area, availing simple health care is already a mean feat and Rajeshwari's condition requires her to travel to a big city which is difficult for the time being. when doctors were shown the patient's case file, few of them came forward to express their opinions and diagnosis. Speaking about her condition, Dr.Satyaki Ganguly, Associate Professor at All India Institute of Medical Sciences(AIIMS), Raipur, said “ The medical term for this genetic disorder is Ichthyosis Psoriasis and due to very few cases in India, there has not been any major breakthrough in terms of research. Currently, science has no cure for this ailment.” Another dermatologist has another take on Rajeshwari’s case, Dr.Yash Upender from Dantewada Hospital believes that the girl suffers from Epidermolytic Ichthyosis which is not a life threatening disease but is still uncurable. Medication
    MEGA586418_002.jpg
  • EXCLUSIVE: A 10-year-old girl suffering from a rare skin disorder is gradually turning into a stone. Scutes shaped as barks -- caused due to mutation of genes -- have spread all over her body. Rajeshwari, hailing from a tribal area in Dantewada district of north Indian state of Chhattisgarh suffers from a case of ichthyosis that causes reddening, scaling and severe blistering of the skin. The incurable disease affects the process of skin regeneration in the human body, making it hard and flaky. Visuals show a heart-wrenching sight of Rajeshwari sitting under a thatched hut with blisters almost covering her whole body. Though the disease doesn't pose any risk to her life, it has made a life 'a living hell'. The disease hinders her daily life, making even simple activities such as walking and sitting very painful. According to reports, the rare genetic condition affects very few people and till now only two dozen cases have been reported in the world. The rarity of the case makes research difficult and the medicine to control the incurable disease has severe side effects. For people residing in the Naxal infested area, availing simple health care is already a mean feat and Rajeshwari's condition requires her to travel to a big city which is difficult for the time being. when doctors were shown the patient's case file, few of them came forward to express their opinions and diagnosis. Speaking about her condition, Dr.Satyaki Ganguly, Associate Professor at All India Institute of Medical Sciences(AIIMS), Raipur, said “ The medical term for this genetic disorder is Ichthyosis Psoriasis and due to very few cases in India, there has not been any major breakthrough in terms of research. Currently, science has no cure for this ailment.” Another dermatologist has another take on Rajeshwari’s case, Dr.Yash Upender from Dantewada Hospital believes that the girl suffers from Epidermolytic Ichthyosis which is not a life threatening disease but is still uncurable. Medication
    MEGA586418_004.jpg
  • EXCLUSIVE: A 10-year-old girl suffering from a rare skin disorder is gradually turning into a stone. Scutes shaped as barks -- caused due to mutation of genes -- have spread all over her body. Rajeshwari, hailing from a tribal area in Dantewada district of north Indian state of Chhattisgarh suffers from a case of ichthyosis that causes reddening, scaling and severe blistering of the skin. The incurable disease affects the process of skin regeneration in the human body, making it hard and flaky. Visuals show a heart-wrenching sight of Rajeshwari sitting under a thatched hut with blisters almost covering her whole body. Though the disease doesn't pose any risk to her life, it has made a life 'a living hell'. The disease hinders her daily life, making even simple activities such as walking and sitting very painful. According to reports, the rare genetic condition affects very few people and till now only two dozen cases have been reported in the world. The rarity of the case makes research difficult and the medicine to control the incurable disease has severe side effects. For people residing in the Naxal infested area, availing simple health care is already a mean feat and Rajeshwari's condition requires her to travel to a big city which is difficult for the time being. when doctors were shown the patient's case file, few of them came forward to express their opinions and diagnosis. Speaking about her condition, Dr.Satyaki Ganguly, Associate Professor at All India Institute of Medical Sciences(AIIMS), Raipur, said “ The medical term for this genetic disorder is Ichthyosis Psoriasis and due to very few cases in India, there has not been any major breakthrough in terms of research. Currently, science has no cure for this ailment.” Another dermatologist has another take on Rajeshwari’s case, Dr.Yash Upender from Dantewada Hospital believes that the girl suffers from Epidermolytic Ichthyosis which is not a life threatening disease but is still uncurable. Medication
    MEGA586418_008.jpg
  • EXCLUSIVE: A 10-year-old girl suffering from a rare skin disorder is gradually turning into a stone. Scutes shaped as barks -- caused due to mutation of genes -- have spread all over her body. Rajeshwari, hailing from a tribal area in Dantewada district of north Indian state of Chhattisgarh suffers from a case of ichthyosis that causes reddening, scaling and severe blistering of the skin. The incurable disease affects the process of skin regeneration in the human body, making it hard and flaky. Visuals show a heart-wrenching sight of Rajeshwari sitting under a thatched hut with blisters almost covering her whole body. Though the disease doesn't pose any risk to her life, it has made a life 'a living hell'. The disease hinders her daily life, making even simple activities such as walking and sitting very painful. According to reports, the rare genetic condition affects very few people and till now only two dozen cases have been reported in the world. The rarity of the case makes research difficult and the medicine to control the incurable disease has severe side effects. For people residing in the Naxal infested area, availing simple health care is already a mean feat and Rajeshwari's condition requires her to travel to a big city which is difficult for the time being. when doctors were shown the patient's case file, few of them came forward to express their opinions and diagnosis. Speaking about her condition, Dr.Satyaki Ganguly, Associate Professor at All India Institute of Medical Sciences(AIIMS), Raipur, said “ The medical term for this genetic disorder is Ichthyosis Psoriasis and due to very few cases in India, there has not been any major breakthrough in terms of research. Currently, science has no cure for this ailment.” Another dermatologist has another take on Rajeshwari’s case, Dr.Yash Upender from Dantewada Hospital believes that the girl suffers from Epidermolytic Ichthyosis which is not a life threatening disease but is still uncurable. Medication
    MEGA586418_005.jpg
  • EXCLUSIVE: By Sanjay Pandey and Supito Maity in Sao Paulo A 28-year-old Brazilian woman crippled by sheer weight and disproportionate size of tumours in her lower limbs is pleading for help from the netizens. Karina Rodini, who was fired from her job and is forced stay unmarried due to her medical condition, says the disease took a heavy toll on her personal and professional life. Karina has spent most of her adult life hiding it in public. But after last year’s botched up surgery in a state-run hospital, her ‘legs have become double the size and no clothes fit her’, making her a pariah in the locality. Karina suffers from type one neurofibromatosis, a genetic condition marked by changes in skin colour and the growth of non-cancerous cysts in different parts. The disease affects one in 4000 people globally. According to the US National Library of Medicine, patient with type one neufibromatosis are born with one mutated copy of the NF1 gene in each cell. It said, "In about half of cases, the altered gene is inherited from an affected parent. The remaining cases result from new mutations in the NF1 gene and occur in people with no history of the disorder in their family." Karina, from Sao Paulo, was just two when ‘coffee milk’ patches started to appear on her skin. She said due to the lack of formation of lumps, the doctors could barely make out what ailed her. “I was diagnosed with neurofibromatosis when I was only two years old, at first it was only ‘coffee milk’ patches so the doctor couldn’t do anything because there were no lumps or tumours,” she said. The cysts started to show up almost nine years later. One year later, when she was 12, Karina underwent a surgical procedure to remove a cyst, weighing around nine kilograms, from her uterus. According to her, the cavity gave her a semblance of a pregnant woman. Being the oldest child among three, Karina has always received love from her mother, Fatima M. Abou Ali, 58, a single woman, who raised
    MEGA348608_005.jpg
  • EXCLUSIVE: By Sanjay Pandey and Supito Maity in Sao Paulo A 28-year-old Brazilian woman crippled by sheer weight and disproportionate size of tumours in her lower limbs is pleading for help from the netizens. Karina Rodini, who was fired from her job and is forced stay unmarried due to her medical condition, says the disease took a heavy toll on her personal and professional life. Karina has spent most of her adult life hiding it in public. But after last year’s botched up surgery in a state-run hospital, her ‘legs have become double the size and no clothes fit her’, making her a pariah in the locality. Karina suffers from type one neurofibromatosis, a genetic condition marked by changes in skin colour and the growth of non-cancerous cysts in different parts. The disease affects one in 4000 people globally. According to the US National Library of Medicine, patient with type one neufibromatosis are born with one mutated copy of the NF1 gene in each cell. It said, "In about half of cases, the altered gene is inherited from an affected parent. The remaining cases result from new mutations in the NF1 gene and occur in people with no history of the disorder in their family." Karina, from Sao Paulo, was just two when ‘coffee milk’ patches started to appear on her skin. She said due to the lack of formation of lumps, the doctors could barely make out what ailed her. “I was diagnosed with neurofibromatosis when I was only two years old, at first it was only ‘coffee milk’ patches so the doctor couldn’t do anything because there were no lumps or tumours,” she said. The cysts started to show up almost nine years later. One year later, when she was 12, Karina underwent a surgical procedure to remove a cyst, weighing around nine kilograms, from her uterus. According to her, the cavity gave her a semblance of a pregnant woman. Being the oldest child among three, Karina has always received love from her mother, Fatima M. Abou Ali, 58, a single woman, who raised
    MEGA348608_006.jpg
  • EXCLUSIVE: By Sanjay Pandey and Supito Maity in Sao Paulo A 28-year-old Brazilian woman crippled by sheer weight and disproportionate size of tumours in her lower limbs is pleading for help from the netizens. Karina Rodini, who was fired from her job and is forced stay unmarried due to her medical condition, says the disease took a heavy toll on her personal and professional life. Karina has spent most of her adult life hiding it in public. But after last year’s botched up surgery in a state-run hospital, her ‘legs have become double the size and no clothes fit her’, making her a pariah in the locality. Karina suffers from type one neurofibromatosis, a genetic condition marked by changes in skin colour and the growth of non-cancerous cysts in different parts. The disease affects one in 4000 people globally. According to the US National Library of Medicine, patient with type one neufibromatosis are born with one mutated copy of the NF1 gene in each cell. It said, "In about half of cases, the altered gene is inherited from an affected parent. The remaining cases result from new mutations in the NF1 gene and occur in people with no history of the disorder in their family." Karina, from Sao Paulo, was just two when ‘coffee milk’ patches started to appear on her skin. She said due to the lack of formation of lumps, the doctors could barely make out what ailed her. “I was diagnosed with neurofibromatosis when I was only two years old, at first it was only ‘coffee milk’ patches so the doctor couldn’t do anything because there were no lumps or tumours,” she said. The cysts started to show up almost nine years later. One year later, when she was 12, Karina underwent a surgical procedure to remove a cyst, weighing around nine kilograms, from her uterus. According to her, the cavity gave her a semblance of a pregnant woman. Being the oldest child among three, Karina has always received love from her mother, Fatima M. Abou Ali, 58, a single woman, who raised
    MEGA348608_008.jpg
  • EXCLUSIVE: By Sanjay Pandey and Supito Maity in Sao Paulo A 28-year-old Brazilian woman crippled by sheer weight and disproportionate size of tumours in her lower limbs is pleading for help from the netizens. Karina Rodini, who was fired from her job and is forced stay unmarried due to her medical condition, says the disease took a heavy toll on her personal and professional life. Karina has spent most of her adult life hiding it in public. But after last year’s botched up surgery in a state-run hospital, her ‘legs have become double the size and no clothes fit her’, making her a pariah in the locality. Karina suffers from type one neurofibromatosis, a genetic condition marked by changes in skin colour and the growth of non-cancerous cysts in different parts. The disease affects one in 4000 people globally. According to the US National Library of Medicine, patient with type one neufibromatosis are born with one mutated copy of the NF1 gene in each cell. It said, "In about half of cases, the altered gene is inherited from an affected parent. The remaining cases result from new mutations in the NF1 gene and occur in people with no history of the disorder in their family." Karina, from Sao Paulo, was just two when ‘coffee milk’ patches started to appear on her skin. She said due to the lack of formation of lumps, the doctors could barely make out what ailed her. “I was diagnosed with neurofibromatosis when I was only two years old, at first it was only ‘coffee milk’ patches so the doctor couldn’t do anything because there were no lumps or tumours,” she said. The cysts started to show up almost nine years later. One year later, when she was 12, Karina underwent a surgical procedure to remove a cyst, weighing around nine kilograms, from her uterus. According to her, the cavity gave her a semblance of a pregnant woman. Being the oldest child among three, Karina has always received love from her mother, Fatima M. Abou Ali, 58, a single woman, who raised
    MEGA348608_009.jpg
  • EXCLUSIVE: By Sanjay Pandey and Supito Maity in Sao Paulo A 28-year-old Brazilian woman crippled by sheer weight and disproportionate size of tumours in her lower limbs is pleading for help from the netizens. Karina Rodini, who was fired from her job and is forced stay unmarried due to her medical condition, says the disease took a heavy toll on her personal and professional life. Karina has spent most of her adult life hiding it in public. But after last year’s botched up surgery in a state-run hospital, her ‘legs have become double the size and no clothes fit her’, making her a pariah in the locality. Karina suffers from type one neurofibromatosis, a genetic condition marked by changes in skin colour and the growth of non-cancerous cysts in different parts. The disease affects one in 4000 people globally. According to the US National Library of Medicine, patient with type one neufibromatosis are born with one mutated copy of the NF1 gene in each cell. It said, "In about half of cases, the altered gene is inherited from an affected parent. The remaining cases result from new mutations in the NF1 gene and occur in people with no history of the disorder in their family." Karina, from Sao Paulo, was just two when ‘coffee milk’ patches started to appear on her skin. She said due to the lack of formation of lumps, the doctors could barely make out what ailed her. “I was diagnosed with neurofibromatosis when I was only two years old, at first it was only ‘coffee milk’ patches so the doctor couldn’t do anything because there were no lumps or tumours,” she said. The cysts started to show up almost nine years later. One year later, when she was 12, Karina underwent a surgical procedure to remove a cyst, weighing around nine kilograms, from her uterus. According to her, the cavity gave her a semblance of a pregnant woman. Being the oldest child among three, Karina has always received love from her mother, Fatima M. Abou Ali, 58, a single woman, who raised
    MEGA348608_010.jpg
  • EXCLUSIVE: By Sanjay Pandey and Supito Maity in Sao Paulo A 28-year-old Brazilian woman crippled by sheer weight and disproportionate size of tumours in her lower limbs is pleading for help from the netizens. Karina Rodini, who was fired from her job and is forced stay unmarried due to her medical condition, says the disease took a heavy toll on her personal and professional life. Karina has spent most of her adult life hiding it in public. But after last year’s botched up surgery in a state-run hospital, her ‘legs have become double the size and no clothes fit her’, making her a pariah in the locality. Karina suffers from type one neurofibromatosis, a genetic condition marked by changes in skin colour and the growth of non-cancerous cysts in different parts. The disease affects one in 4000 people globally. According to the US National Library of Medicine, patient with type one neufibromatosis are born with one mutated copy of the NF1 gene in each cell. It said, "In about half of cases, the altered gene is inherited from an affected parent. The remaining cases result from new mutations in the NF1 gene and occur in people with no history of the disorder in their family." Karina, from Sao Paulo, was just two when ‘coffee milk’ patches started to appear on her skin. She said due to the lack of formation of lumps, the doctors could barely make out what ailed her. “I was diagnosed with neurofibromatosis when I was only two years old, at first it was only ‘coffee milk’ patches so the doctor couldn’t do anything because there were no lumps or tumours,” she said. The cysts started to show up almost nine years later. One year later, when she was 12, Karina underwent a surgical procedure to remove a cyst, weighing around nine kilograms, from her uterus. According to her, the cavity gave her a semblance of a pregnant woman. Being the oldest child among three, Karina has always received love from her mother, Fatima M. Abou Ali, 58, a single woman, who raised
    MEGA348608_011.jpg
  • EXCLUSIVE: By Sanjay Pandey and Supito Maity in Sao Paulo A 28-year-old Brazilian woman crippled by sheer weight and disproportionate size of tumours in her lower limbs is pleading for help from the netizens. Karina Rodini, who was fired from her job and is forced stay unmarried due to her medical condition, says the disease took a heavy toll on her personal and professional life. Karina has spent most of her adult life hiding it in public. But after last year’s botched up surgery in a state-run hospital, her ‘legs have become double the size and no clothes fit her’, making her a pariah in the locality. Karina suffers from type one neurofibromatosis, a genetic condition marked by changes in skin colour and the growth of non-cancerous cysts in different parts. The disease affects one in 4000 people globally. According to the US National Library of Medicine, patient with type one neufibromatosis are born with one mutated copy of the NF1 gene in each cell. It said, "In about half of cases, the altered gene is inherited from an affected parent. The remaining cases result from new mutations in the NF1 gene and occur in people with no history of the disorder in their family." Karina, from Sao Paulo, was just two when ‘coffee milk’ patches started to appear on her skin. She said due to the lack of formation of lumps, the doctors could barely make out what ailed her. “I was diagnosed with neurofibromatosis when I was only two years old, at first it was only ‘coffee milk’ patches so the doctor couldn’t do anything because there were no lumps or tumours,” she said. The cysts started to show up almost nine years later. One year later, when she was 12, Karina underwent a surgical procedure to remove a cyst, weighing around nine kilograms, from her uterus. According to her, the cavity gave her a semblance of a pregnant woman. Being the oldest child among three, Karina has always received love from her mother, Fatima M. Abou Ali, 58, a single woman, who raised
    MEGA348608_002.jpg
  • EXCLUSIVE: By Sanjay Pandey and Supito Maity in Sao Paulo A 28-year-old Brazilian woman crippled by sheer weight and disproportionate size of tumours in her lower limbs is pleading for help from the netizens. Karina Rodini, who was fired from her job and is forced stay unmarried due to her medical condition, says the disease took a heavy toll on her personal and professional life. Karina has spent most of her adult life hiding it in public. But after last year’s botched up surgery in a state-run hospital, her ‘legs have become double the size and no clothes fit her’, making her a pariah in the locality. Karina suffers from type one neurofibromatosis, a genetic condition marked by changes in skin colour and the growth of non-cancerous cysts in different parts. The disease affects one in 4000 people globally. According to the US National Library of Medicine, patient with type one neufibromatosis are born with one mutated copy of the NF1 gene in each cell. It said, "In about half of cases, the altered gene is inherited from an affected parent. The remaining cases result from new mutations in the NF1 gene and occur in people with no history of the disorder in their family." Karina, from Sao Paulo, was just two when ‘coffee milk’ patches started to appear on her skin. She said due to the lack of formation of lumps, the doctors could barely make out what ailed her. “I was diagnosed with neurofibromatosis when I was only two years old, at first it was only ‘coffee milk’ patches so the doctor couldn’t do anything because there were no lumps or tumours,” she said. The cysts started to show up almost nine years later. One year later, when she was 12, Karina underwent a surgical procedure to remove a cyst, weighing around nine kilograms, from her uterus. According to her, the cavity gave her a semblance of a pregnant woman. Being the oldest child among three, Karina has always received love from her mother, Fatima M. Abou Ali, 58, a single woman, who raised
    MEGA348608_003.jpg
  • EXCLUSIVE: By Sanjay Pandey and Supito Maity in Sao Paulo A 28-year-old Brazilian woman crippled by sheer weight and disproportionate size of tumours in her lower limbs is pleading for help from the netizens. Karina Rodini, who was fired from her job and is forced stay unmarried due to her medical condition, says the disease took a heavy toll on her personal and professional life. Karina has spent most of her adult life hiding it in public. But after last year’s botched up surgery in a state-run hospital, her ‘legs have become double the size and no clothes fit her’, making her a pariah in the locality. Karina suffers from type one neurofibromatosis, a genetic condition marked by changes in skin colour and the growth of non-cancerous cysts in different parts. The disease affects one in 4000 people globally. According to the US National Library of Medicine, patient with type one neufibromatosis are born with one mutated copy of the NF1 gene in each cell. It said, "In about half of cases, the altered gene is inherited from an affected parent. The remaining cases result from new mutations in the NF1 gene and occur in people with no history of the disorder in their family." Karina, from Sao Paulo, was just two when ‘coffee milk’ patches started to appear on her skin. She said due to the lack of formation of lumps, the doctors could barely make out what ailed her. “I was diagnosed with neurofibromatosis when I was only two years old, at first it was only ‘coffee milk’ patches so the doctor couldn’t do anything because there were no lumps or tumours,” she said. The cysts started to show up almost nine years later. One year later, when she was 12, Karina underwent a surgical procedure to remove a cyst, weighing around nine kilograms, from her uterus. According to her, the cavity gave her a semblance of a pregnant woman. Being the oldest child among three, Karina has always received love from her mother, Fatima M. Abou Ali, 58, a single woman, who raised
    MEGA348608_007.jpg
  • EXCLUSIVE: By Sanjay Pandey and Supito Maity in Sao Paulo A 28-year-old Brazilian woman crippled by sheer weight and disproportionate size of tumours in her lower limbs is pleading for help from the netizens. Karina Rodini, who was fired from her job and is forced stay unmarried due to her medical condition, says the disease took a heavy toll on her personal and professional life. Karina has spent most of her adult life hiding it in public. But after last year’s botched up surgery in a state-run hospital, her ‘legs have become double the size and no clothes fit her’, making her a pariah in the locality. Karina suffers from type one neurofibromatosis, a genetic condition marked by changes in skin colour and the growth of non-cancerous cysts in different parts. The disease affects one in 4000 people globally. According to the US National Library of Medicine, patient with type one neufibromatosis are born with one mutated copy of the NF1 gene in each cell. It said, "In about half of cases, the altered gene is inherited from an affected parent. The remaining cases result from new mutations in the NF1 gene and occur in people with no history of the disorder in their family." Karina, from Sao Paulo, was just two when ‘coffee milk’ patches started to appear on her skin. She said due to the lack of formation of lumps, the doctors could barely make out what ailed her. “I was diagnosed with neurofibromatosis when I was only two years old, at first it was only ‘coffee milk’ patches so the doctor couldn’t do anything because there were no lumps or tumours,” she said. The cysts started to show up almost nine years later. One year later, when she was 12, Karina underwent a surgical procedure to remove a cyst, weighing around nine kilograms, from her uterus. According to her, the cavity gave her a semblance of a pregnant woman. Being the oldest child among three, Karina has always received love from her mother, Fatima M. Abou Ali, 58, a single woman, who raised
    MEGA348608_001.jpg
  • EXCLUSIVE: By Sanjay Pandey and Supito Maity in Sao Paulo A 28-year-old Brazilian woman crippled by sheer weight and disproportionate size of tumours in her lower limbs is pleading for help from the netizens. Karina Rodini, who was fired from her job and is forced stay unmarried due to her medical condition, says the disease took a heavy toll on her personal and professional life. Karina has spent most of her adult life hiding it in public. But after last year’s botched up surgery in a state-run hospital, her ‘legs have become double the size and no clothes fit her’, making her a pariah in the locality. Karina suffers from type one neurofibromatosis, a genetic condition marked by changes in skin colour and the growth of non-cancerous cysts in different parts. The disease affects one in 4000 people globally. According to the US National Library of Medicine, patient with type one neufibromatosis are born with one mutated copy of the NF1 gene in each cell. It said, "In about half of cases, the altered gene is inherited from an affected parent. The remaining cases result from new mutations in the NF1 gene and occur in people with no history of the disorder in their family." Karina, from Sao Paulo, was just two when ‘coffee milk’ patches started to appear on her skin. She said due to the lack of formation of lumps, the doctors could barely make out what ailed her. “I was diagnosed with neurofibromatosis when I was only two years old, at first it was only ‘coffee milk’ patches so the doctor couldn’t do anything because there were no lumps or tumours,” she said. The cysts started to show up almost nine years later. One year later, when she was 12, Karina underwent a surgical procedure to remove a cyst, weighing around nine kilograms, from her uterus. According to her, the cavity gave her a semblance of a pregnant woman. Being the oldest child among three, Karina has always received love from her mother, Fatima M. Abou Ali, 58, a single woman, who raised
    MEGA348608_004.jpg
  • RELEASE DATE: January 22, 2010<br />
MOVIE TITLE: Extraordinary Measures<br />
STUDIO: CBS Films<br />
DIRECTOR: Tom Vaughan <br />
PLOT: A drama centered on the efforts of John and Aileen Crowley to find a researcher who might have a cure for their two children's rare genetic disorder<br />
PICTURED: BRENDAN FRASER as John Crowley and HARRISON FORD as Dr. Robert Stonehill <br />
(Credit Image: © CBS Films/Entertainment Pictures/ZUMAPRESS.com)
    20100122_rrb_g90_057rti.jpg