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  • EXCLUSIVE: Battling a rare health condition that has left half of her face disfigured, a 24-year-old Indian woman says she tries to live positively despite jeers by people. Sasikala K, from Chennai, the capital of India’s southern Tamil Nadu state, suffers from plexiform neurofibromatosis, which has taken a toll on her face, affecting the right side. However, she admits her confidence has taken a hit of late. Sasikala, who prefers to live boldly and does not cover her face, likes dressing up and wearing make-up, much like girls her age, though she finds it difficult to execute them owing to her complications. She was only six-months-old when her parents noticed a part of her face swelling. However, they waited for another one and a half years to get medical help. “I have always been very bold, however, with age, the condition progressed and no one has come for help,” she says, adding, “I am slowly losing my confidence.” According to medical experts, her condition affects the face and craniofacial region of the body. It can also affect the neck and other parts of the body, depending upon the host. The family had not considered the deformity to be a big issue until Sasikala turned six and the face started to swell at an unusual rate. Now, almost 18 years later, she finds it difficult to execute daily chores like eating and brushing. The 24-year old is an employee at an embroidery unit run by a trust. Sasikala took it up as a means to support her family after completing her diploma in nursing and unable to land a job in the hospitality sector. Kumar, 54, Sasikala’s father, says his daughter has been under the knife four times, but it has only gotten worse. “She was six when doctors operated upon her for the first time,” Kumar says. “The result was satisfying and she looked normal,” he added. However, the joy was short-lived, as the tumours grew back again. Kumar says upon approaching the doctors again, he was told that it could be controlled but wou
    MEGA506733_005.jpg
  • EXCLUSIVE: An 8-year-old girl has baffled the Indian doctors after she started sweating blood and the connecting fluid started oozing out from her eyes, nose and ears. Chwngsasa Debbarma (8) is a student of third grade at a private school in the state of Tripura in North-East India. The first signs of the mysterious condition showed up in the 1st week of April in 2019 and she was rushed to the local hospital which confused the doctors as this was the rare condition that they had first seen ever. The doctors later suspected the condition to be Hematidrosis but declared it ‘too soon’ to be called that and referred her further to the ILS hospital in Agartala. The doctors performed some initial medical checkup and sent her back home with primary medications but the condition didn’t wear off completely except that it was gone for some days. Although the medications did help for a while, the condition has started yet again and the prescribed medicine has not come much to her rescue. She started bleeding again this time from her nostrils, lips, tongue, forehead, head, temple, hands, legs, eyes, toes, ears and tips of fingers and palm. The bleeding would leave her in a state of uneasiness and chest pain. The condition would recur four to five times in a day and would stay there for almost 10 minutes. The doctors when consulted again were completely taken aback and the girl was further referred to CMC Vellore. The doctors have kept her under observation and the treatment is on which has kept the condition under control for a while but the doctors believe that Chwngsasa has to go further medical examinations to find out the actual condition and the right treatment to be carried out. 30 Oct 2019 Pictured: Blood from eyes. Photo credit: News Fiesta / MEGA TheMegaAgency.com +1 888 505 6342
    MEGA565402_008.jpg
  • EXCLUSIVE: An 8-year-old girl has baffled the Indian doctors after she started sweating blood and the connecting fluid started oozing out from her eyes, nose and ears. Chwngsasa Debbarma (8) is a student of third grade at a private school in the state of Tripura in North-East India. The first signs of the mysterious condition showed up in the 1st week of April in 2019 and she was rushed to the local hospital which confused the doctors as this was the rare condition that they had first seen ever. The doctors later suspected the condition to be Hematidrosis but declared it ‘too soon’ to be called that and referred her further to the ILS hospital in Agartala. The doctors performed some initial medical checkup and sent her back home with primary medications but the condition didn’t wear off completely except that it was gone for some days. Although the medications did help for a while, the condition has started yet again and the prescribed medicine has not come much to her rescue. She started bleeding again this time from her nostrils, lips, tongue, forehead, head, temple, hands, legs, eyes, toes, ears and tips of fingers and palm. The bleeding would leave her in a state of uneasiness and chest pain. The condition would recur four to five times in a day and would stay there for almost 10 minutes. The doctors when consulted again were completely taken aback and the girl was further referred to CMC Vellore. The doctors have kept her under observation and the treatment is on which has kept the condition under control for a while but the doctors believe that Chwngsasa has to go further medical examinations to find out the actual condition and the right treatment to be carried out. 30 Oct 2019 Pictured: zing from Ears. Photo credit: News Fiesta / MEGA TheMegaAgency.com +1 888 505 6342
    MEGA565402_007.jpg
  • EXCLUSIVE: An 8-year-old girl has baffled the Indian doctors after she started sweating blood and the connecting fluid started oozing out from her eyes, nose and ears. Chwngsasa Debbarma (8) is a student of third grade at a private school in the state of Tripura in North-East India. The first signs of the mysterious condition showed up in the 1st week of April in 2019 and she was rushed to the local hospital which confused the doctors as this was the rare condition that they had first seen ever. The doctors later suspected the condition to be Hematidrosis but declared it ‘too soon’ to be called that and referred her further to the ILS hospital in Agartala. The doctors performed some initial medical checkup and sent her back home with primary medications but the condition didn’t wear off completely except that it was gone for some days. Although the medications did help for a while, the condition has started yet again and the prescribed medicine has not come much to her rescue. She started bleeding again this time from her nostrils, lips, tongue, forehead, head, temple, hands, legs, eyes, toes, ears and tips of fingers and palm. The bleeding would leave her in a state of uneasiness and chest pain. The condition would recur four to five times in a day and would stay there for almost 10 minutes. The doctors when consulted again were completely taken aback and the girl was further referred to CMC Vellore. The doctors have kept her under observation and the treatment is on which has kept the condition under control for a while but the doctors believe that Chwngsasa has to go further medical examinations to find out the actual condition and the right treatment to be carried out. 30 Oct 2019 Pictured: Blood from head. Photo credit: News Fiesta / MEGA TheMegaAgency.com +1 888 505 6342
    MEGA565402_010.jpg
  • EXCLUSIVE: An 8-year-old girl has baffled the Indian doctors after she started sweating blood and the connecting fluid started oozing out from her eyes, nose and ears. Chwngsasa Debbarma (8) is a student of third grade at a private school in the state of Tripura in North-East India. The first signs of the mysterious condition showed up in the 1st week of April in 2019 and she was rushed to the local hospital which confused the doctors as this was the rare condition that they had first seen ever. The doctors later suspected the condition to be Hematidrosis but declared it ‘too soon’ to be called that and referred her further to the ILS hospital in Agartala. The doctors performed some initial medical checkup and sent her back home with primary medications but the condition didn’t wear off completely except that it was gone for some days. Although the medications did help for a while, the condition has started yet again and the prescribed medicine has not come much to her rescue. She started bleeding again this time from her nostrils, lips, tongue, forehead, head, temple, hands, legs, eyes, toes, ears and tips of fingers and palm. The bleeding would leave her in a state of uneasiness and chest pain. The condition would recur four to five times in a day and would stay there for almost 10 minutes. The doctors when consulted again were completely taken aback and the girl was further referred to CMC Vellore. The doctors have kept her under observation and the treatment is on which has kept the condition under control for a while but the doctors believe that Chwngsasa has to go further medical examinations to find out the actual condition and the right treatment to be carried out. 30 Oct 2019 Pictured: Blood from head. Photo credit: News Fiesta / MEGA TheMegaAgency.com +1 888 505 6342
    MEGA565402_002.jpg
  • EXCLUSIVE: An 8-year-old girl has baffled the Indian doctors after she started sweating blood and the connecting fluid started oozing out from her eyes, nose and ears. Chwngsasa Debbarma (8) is a student of third grade at a private school in the state of Tripura in North-East India. The first signs of the mysterious condition showed up in the 1st week of April in 2019 and she was rushed to the local hospital which confused the doctors as this was the rare condition that they had first seen ever. The doctors later suspected the condition to be Hematidrosis but declared it ‘too soon’ to be called that and referred her further to the ILS hospital in Agartala. The doctors performed some initial medical checkup and sent her back home with primary medications but the condition didn’t wear off completely except that it was gone for some days. Although the medications did help for a while, the condition has started yet again and the prescribed medicine has not come much to her rescue. She started bleeding again this time from her nostrils, lips, tongue, forehead, head, temple, hands, legs, eyes, toes, ears and tips of fingers and palm. The bleeding would leave her in a state of uneasiness and chest pain. The condition would recur four to five times in a day and would stay there for almost 10 minutes. The doctors when consulted again were completely taken aback and the girl was further referred to CMC Vellore. The doctors have kept her under observation and the treatment is on which has kept the condition under control for a while but the doctors believe that Chwngsasa has to go further medical examinations to find out the actual condition and the right treatment to be carried out. 30 Oct 2019 Pictured: Blood from eyes. Photo credit: News Fiesta / MEGA TheMegaAgency.com +1 888 505 6342
    MEGA565402_004.jpg
  • EXCLUSIVE: An 8-year-old girl has baffled the Indian doctors after she started sweating blood and the connecting fluid started oozing out from her eyes, nose and ears. Chwngsasa Debbarma (8) is a student of third grade at a private school in the state of Tripura in North-East India. The first signs of the mysterious condition showed up in the 1st week of April in 2019 and she was rushed to the local hospital which confused the doctors as this was the rare condition that they had first seen ever. The doctors later suspected the condition to be Hematidrosis but declared it ‘too soon’ to be called that and referred her further to the ILS hospital in Agartala. The doctors performed some initial medical checkup and sent her back home with primary medications but the condition didn’t wear off completely except that it was gone for some days. Although the medications did help for a while, the condition has started yet again and the prescribed medicine has not come much to her rescue. She started bleeding again this time from her nostrils, lips, tongue, forehead, head, temple, hands, legs, eyes, toes, ears and tips of fingers and palm. The bleeding would leave her in a state of uneasiness and chest pain. The condition would recur four to five times in a day and would stay there for almost 10 minutes. The doctors when consulted again were completely taken aback and the girl was further referred to CMC Vellore. The doctors have kept her under observation and the treatment is on which has kept the condition under control for a while but the doctors believe that Chwngsasa has to go further medical examinations to find out the actual condition and the right treatment to be carried out. 30 Oct 2019 Pictured: Blood oozing from Ears. Photo credit: News Fiesta / MEGA TheMegaAgency.com +1 888 505 6342
    MEGA565402_006.jpg
  • EXCLUSIVE: An 8-year-old girl has baffled the Indian doctors after she started sweating blood and the connecting fluid started oozing out from her eyes, nose and ears. Chwngsasa Debbarma (8) is a student of third grade at a private school in the state of Tripura in North-East India. The first signs of the mysterious condition showed up in the 1st week of April in 2019 and she was rushed to the local hospital which confused the doctors as this was the rare condition that they had first seen ever. The doctors later suspected the condition to be Hematidrosis but declared it ‘too soon’ to be called that and referred her further to the ILS hospital in Agartala. The doctors performed some initial medical checkup and sent her back home with primary medications but the condition didn’t wear off completely except that it was gone for some days. Although the medications did help for a while, the condition has started yet again and the prescribed medicine has not come much to her rescue. She started bleeding again this time from her nostrils, lips, tongue, forehead, head, temple, hands, legs, eyes, toes, ears and tips of fingers and palm. The bleeding would leave her in a state of uneasiness and chest pain. The condition would recur four to five times in a day and would stay there for almost 10 minutes. The doctors when consulted again were completely taken aback and the girl was further referred to CMC Vellore. The doctors have kept her under observation and the treatment is on which has kept the condition under control for a while but the doctors believe that Chwngsasa has to go further medical examinations to find out the actual condition and the right treatment to be carried out. 30 Oct 2019 Pictured: Blood from eyes. Photo credit: News Fiesta / MEGA TheMegaAgency.com +1 888 505 6342
    MEGA565402_005.jpg
  • EXCLUSIVE: An 8-year-old girl has baffled the Indian doctors after she started sweating blood and the connecting fluid started oozing out from her eyes, nose and ears. Chwngsasa Debbarma (8) is a student of third grade at a private school in the state of Tripura in North-East India. The first signs of the mysterious condition showed up in the 1st week of April in 2019 and she was rushed to the local hospital which confused the doctors as this was the rare condition that they had first seen ever. The doctors later suspected the condition to be Hematidrosis but declared it ‘too soon’ to be called that and referred her further to the ILS hospital in Agartala. The doctors performed some initial medical checkup and sent her back home with primary medications but the condition didn’t wear off completely except that it was gone for some days. Although the medications did help for a while, the condition has started yet again and the prescribed medicine has not come much to her rescue. She started bleeding again this time from her nostrils, lips, tongue, forehead, head, temple, hands, legs, eyes, toes, ears and tips of fingers and palm. The bleeding would leave her in a state of uneasiness and chest pain. The condition would recur four to five times in a day and would stay there for almost 10 minutes. The doctors when consulted again were completely taken aback and the girl was further referred to CMC Vellore. The doctors have kept her under observation and the treatment is on which has kept the condition under control for a while but the doctors believe that Chwngsasa has to go further medical examinations to find out the actual condition and the right treatment to be carried out. 30 Oct 2019 Pictured: Blood from head. Photo credit: News Fiesta / MEGA TheMegaAgency.com +1 888 505 6342
    MEGA565402_009.jpg
  • EXCLUSIVE: An 8-year-old girl has baffled the Indian doctors after she started sweating blood and the connecting fluid started oozing out from her eyes, nose and ears. Chwngsasa Debbarma (8) is a student of third grade at a private school in the state of Tripura in North-East India. The first signs of the mysterious condition showed up in the 1st week of April in 2019 and she was rushed to the local hospital which confused the doctors as this was the rare condition that they had first seen ever. The doctors later suspected the condition to be Hematidrosis but declared it ‘too soon’ to be called that and referred her further to the ILS hospital in Agartala. The doctors performed some initial medical checkup and sent her back home with primary medications but the condition didn’t wear off completely except that it was gone for some days. Although the medications did help for a while, the condition has started yet again and the prescribed medicine has not come much to her rescue. She started bleeding again this time from her nostrils, lips, tongue, forehead, head, temple, hands, legs, eyes, toes, ears and tips of fingers and palm. The bleeding would leave her in a state of uneasiness and chest pain. The condition would recur four to five times in a day and would stay there for almost 10 minutes. The doctors when consulted again were completely taken aback and the girl was further referred to CMC Vellore. The doctors have kept her under observation and the treatment is on which has kept the condition under control for a while but the doctors believe that Chwngsasa has to go further medical examinations to find out the actual condition and the right treatment to be carried out. 30 Oct 2019 Pictured: Blood from Nose. Photo credit: News Fiesta / MEGA TheMegaAgency.com +1 888 505 6342
    MEGA565402_011.jpg
  • EXCLUSIVE: An 8-year-old girl has baffled the Indian doctors after she started sweating blood and the connecting fluid started oozing out from her eyes, nose and ears. Chwngsasa Debbarma (8) is a student of third grade at a private school in the state of Tripura in North-East India. The first signs of the mysterious condition showed up in the 1st week of April in 2019 and she was rushed to the local hospital which confused the doctors as this was the rare condition that they had first seen ever. The doctors later suspected the condition to be Hematidrosis but declared it ‘too soon’ to be called that and referred her further to the ILS hospital in Agartala. The doctors performed some initial medical checkup and sent her back home with primary medications but the condition didn’t wear off completely except that it was gone for some days. Although the medications did help for a while, the condition has started yet again and the prescribed medicine has not come much to her rescue. She started bleeding again this time from her nostrils, lips, tongue, forehead, head, temple, hands, legs, eyes, toes, ears and tips of fingers and palm. The bleeding would leave her in a state of uneasiness and chest pain. The condition would recur four to five times in a day and would stay there for almost 10 minutes. The doctors when consulted again were completely taken aback and the girl was further referred to CMC Vellore. The doctors have kept her under observation and the treatment is on which has kept the condition under control for a while but the doctors believe that Chwngsasa has to go further medical examinations to find out the actual condition and the right treatment to be carried out. 30 Oct 2019 Pictured: Blood from palm. Photo credit: News Fiesta / MEGA TheMegaAgency.com +1 888 505 6342
    MEGA565402_012.jpg
  • EXCLUSIVE: An 8-year-old girl has baffled the Indian doctors after she started sweating blood and the connecting fluid started oozing out from her eyes, nose and ears. Chwngsasa Debbarma (8) is a student of third grade at a private school in the state of Tripura in North-East India. The first signs of the mysterious condition showed up in the 1st week of April in 2019 and she was rushed to the local hospital which confused the doctors as this was the rare condition that they had first seen ever. The doctors later suspected the condition to be Hematidrosis but declared it ‘too soon’ to be called that and referred her further to the ILS hospital in Agartala. The doctors performed some initial medical checkup and sent her back home with primary medications but the condition didn’t wear off completely except that it was gone for some days. Although the medications did help for a while, the condition has started yet again and the prescribed medicine has not come much to her rescue. She started bleeding again this time from her nostrils, lips, tongue, forehead, head, temple, hands, legs, eyes, toes, ears and tips of fingers and palm. The bleeding would leave her in a state of uneasiness and chest pain. The condition would recur four to five times in a day and would stay there for almost 10 minutes. The doctors when consulted again were completely taken aback and the girl was further referred to CMC Vellore. The doctors have kept her under observation and the treatment is on which has kept the condition under control for a while but the doctors believe that Chwngsasa has to go further medical examinations to find out the actual condition and the right treatment to be carried out. 30 Oct 2019 Pictured: Blood from eyes. Photo credit: News Fiesta / MEGA TheMegaAgency.com +1 888 505 6342
    MEGA565402_013.jpg
  • EXCLUSIVE: An 8-year-old girl has baffled the Indian doctors after she started sweating blood and the connecting fluid started oozing out from her eyes, nose and ears. Chwngsasa Debbarma (8) is a student of third grade at a private school in the state of Tripura in North-East India. The first signs of the mysterious condition showed up in the 1st week of April in 2019 and she was rushed to the local hospital which confused the doctors as this was the rare condition that they had first seen ever. The doctors later suspected the condition to be Hematidrosis but declared it ‘too soon’ to be called that and referred her further to the ILS hospital in Agartala. The doctors performed some initial medical checkup and sent her back home with primary medications but the condition didn’t wear off completely except that it was gone for some days. Although the medications did help for a while, the condition has started yet again and the prescribed medicine has not come much to her rescue. She started bleeding again this time from her nostrils, lips, tongue, forehead, head, temple, hands, legs, eyes, toes, ears and tips of fingers and palm. The bleeding would leave her in a state of uneasiness and chest pain. The condition would recur four to five times in a day and would stay there for almost 10 minutes. The doctors when consulted again were completely taken aback and the girl was further referred to CMC Vellore. The doctors have kept her under observation and the treatment is on which has kept the condition under control for a while but the doctors believe that Chwngsasa has to go further medical examinations to find out the actual condition and the right treatment to be carried out. 30 Oct 2019 Pictured: Blood from Legs. Photo credit: News Fiesta / MEGA TheMegaAgency.com +1 888 505 6342
    MEGA565402_001.jpg
  • EXCLUSIVE: An 8-year-old girl has baffled the Indian doctors after she started sweating blood and the connecting fluid started oozing out from her eyes, nose and ears. Chwngsasa Debbarma (8) is a student of third grade at a private school in the state of Tripura in North-East India. The first signs of the mysterious condition showed up in the 1st week of April in 2019 and she was rushed to the local hospital which confused the doctors as this was the rare condition that they had first seen ever. The doctors later suspected the condition to be Hematidrosis but declared it ‘too soon’ to be called that and referred her further to the ILS hospital in Agartala. The doctors performed some initial medical checkup and sent her back home with primary medications but the condition didn’t wear off completely except that it was gone for some days. Although the medications did help for a while, the condition has started yet again and the prescribed medicine has not come much to her rescue. She started bleeding again this time from her nostrils, lips, tongue, forehead, head, temple, hands, legs, eyes, toes, ears and tips of fingers and palm. The bleeding would leave her in a state of uneasiness and chest pain. The condition would recur four to five times in a day and would stay there for almost 10 minutes. The doctors when consulted again were completely taken aback and the girl was further referred to CMC Vellore. The doctors have kept her under observation and the treatment is on which has kept the condition under control for a while but the doctors believe that Chwngsasa has to go further medical examinations to find out the actual condition and the right treatment to be carried out. 30 Oct 2019 Pictured: Blood from Leg. Photo credit: News Fiesta / MEGA TheMegaAgency.com +1 888 505 6342
    MEGA565402_003.jpg
  • EXCLUSIVE: Battling a rare health condition that has left half of her face disfigured, a 24-year-old Indian woman says she tries to live positively despite jeers by people. Sasikala K, from Chennai, the capital of India’s southern Tamil Nadu state, suffers from plexiform neurofibromatosis, which has taken a toll on her face, affecting the right side. However, she admits her confidence has taken a hit of late. Sasikala, who prefers to live boldly and does not cover her face, likes dressing up and wearing make-up, much like girls her age, though she finds it difficult to execute them owing to her complications. She was only six-months-old when her parents noticed a part of her face swelling. However, they waited for another one and a half years to get medical help. “I have always been very bold, however, with age, the condition progressed and no one has come for help,” she says, adding, “I am slowly losing my confidence.” According to medical experts, her condition affects the face and craniofacial region of the body. It can also affect the neck and other parts of the body, depending upon the host. The family had not considered the deformity to be a big issue until Sasikala turned six and the face started to swell at an unusual rate. Now, almost 18 years later, she finds it difficult to execute daily chores like eating and brushing. The 24-year old is an employee at an embroidery unit run by a trust. Sasikala took it up as a means to support her family after completing her diploma in nursing and unable to land a job in the hospitality sector. Kumar, 54, Sasikala’s father, says his daughter has been under the knife four times, but it has only gotten worse. “She was six when doctors operated upon her for the first time,” Kumar says. “The result was satisfying and she looked normal,” he added. However, the joy was short-lived, as the tumours grew back again. Kumar says upon approaching the doctors again, he was told that it could be controlled but wou
    MEGA506733_010.jpg
  • EXCLUSIVE: Battling a rare health condition that has left half of her face disfigured, a 24-year-old Indian woman says she tries to live positively despite jeers by people. Sasikala K, from Chennai, the capital of India’s southern Tamil Nadu state, suffers from plexiform neurofibromatosis, which has taken a toll on her face, affecting the right side. However, she admits her confidence has taken a hit of late. Sasikala, who prefers to live boldly and does not cover her face, likes dressing up and wearing make-up, much like girls her age, though she finds it difficult to execute them owing to her complications. She was only six-months-old when her parents noticed a part of her face swelling. However, they waited for another one and a half years to get medical help. “I have always been very bold, however, with age, the condition progressed and no one has come for help,” she says, adding, “I am slowly losing my confidence.” According to medical experts, her condition affects the face and craniofacial region of the body. It can also affect the neck and other parts of the body, depending upon the host. The family had not considered the deformity to be a big issue until Sasikala turned six and the face started to swell at an unusual rate. Now, almost 18 years later, she finds it difficult to execute daily chores like eating and brushing. The 24-year old is an employee at an embroidery unit run by a trust. Sasikala took it up as a means to support her family after completing her diploma in nursing and unable to land a job in the hospitality sector. Kumar, 54, Sasikala’s father, says his daughter has been under the knife four times, but it has only gotten worse. “She was six when doctors operated upon her for the first time,” Kumar says. “The result was satisfying and she looked normal,” he added. However, the joy was short-lived, as the tumours grew back again. Kumar says upon approaching the doctors again, he was told that it could be controlled but wou
    MEGA506733_011.jpg
  • EXCLUSIVE: Battling a rare health condition that has left half of her face disfigured, a 24-year-old Indian woman says she tries to live positively despite jeers by people. Sasikala K, from Chennai, the capital of India’s southern Tamil Nadu state, suffers from plexiform neurofibromatosis, which has taken a toll on her face, affecting the right side. However, she admits her confidence has taken a hit of late. Sasikala, who prefers to live boldly and does not cover her face, likes dressing up and wearing make-up, much like girls her age, though she finds it difficult to execute them owing to her complications. She was only six-months-old when her parents noticed a part of her face swelling. However, they waited for another one and a half years to get medical help. “I have always been very bold, however, with age, the condition progressed and no one has come for help,” she says, adding, “I am slowly losing my confidence.” According to medical experts, her condition affects the face and craniofacial region of the body. It can also affect the neck and other parts of the body, depending upon the host. The family had not considered the deformity to be a big issue until Sasikala turned six and the face started to swell at an unusual rate. Now, almost 18 years later, she finds it difficult to execute daily chores like eating and brushing. The 24-year old is an employee at an embroidery unit run by a trust. Sasikala took it up as a means to support her family after completing her diploma in nursing and unable to land a job in the hospitality sector. Kumar, 54, Sasikala’s father, says his daughter has been under the knife four times, but it has only gotten worse. “She was six when doctors operated upon her for the first time,” Kumar says. “The result was satisfying and she looked normal,” he added. However, the joy was short-lived, as the tumours grew back again. Kumar says upon approaching the doctors again, he was told that it could be controlled but wou
    MEGA506733_013.jpg
  • EXCLUSIVE: Battling a rare health condition that has left half of her face disfigured, a 24-year-old Indian woman says she tries to live positively despite jeers by people. Sasikala K, from Chennai, the capital of India’s southern Tamil Nadu state, suffers from plexiform neurofibromatosis, which has taken a toll on her face, affecting the right side. However, she admits her confidence has taken a hit of late. Sasikala, who prefers to live boldly and does not cover her face, likes dressing up and wearing make-up, much like girls her age, though she finds it difficult to execute them owing to her complications. She was only six-months-old when her parents noticed a part of her face swelling. However, they waited for another one and a half years to get medical help. “I have always been very bold, however, with age, the condition progressed and no one has come for help,” she says, adding, “I am slowly losing my confidence.” According to medical experts, her condition affects the face and craniofacial region of the body. It can also affect the neck and other parts of the body, depending upon the host. The family had not considered the deformity to be a big issue until Sasikala turned six and the face started to swell at an unusual rate. Now, almost 18 years later, she finds it difficult to execute daily chores like eating and brushing. The 24-year old is an employee at an embroidery unit run by a trust. Sasikala took it up as a means to support her family after completing her diploma in nursing and unable to land a job in the hospitality sector. Kumar, 54, Sasikala’s father, says his daughter has been under the knife four times, but it has only gotten worse. “She was six when doctors operated upon her for the first time,” Kumar says. “The result was satisfying and she looked normal,” he added. However, the joy was short-lived, as the tumours grew back again. Kumar says upon approaching the doctors again, he was told that it could be controlled but wou
    MEGA506733_035.jpg
  • EXCLUSIVE: Battling a rare health condition that has left half of her face disfigured, a 24-year-old Indian woman says she tries to live positively despite jeers by people. Sasikala K, from Chennai, the capital of India’s southern Tamil Nadu state, suffers from plexiform neurofibromatosis, which has taken a toll on her face, affecting the right side. However, she admits her confidence has taken a hit of late. Sasikala, who prefers to live boldly and does not cover her face, likes dressing up and wearing make-up, much like girls her age, though she finds it difficult to execute them owing to her complications. She was only six-months-old when her parents noticed a part of her face swelling. However, they waited for another one and a half years to get medical help. “I have always been very bold, however, with age, the condition progressed and no one has come for help,” she says, adding, “I am slowly losing my confidence.” According to medical experts, her condition affects the face and craniofacial region of the body. It can also affect the neck and other parts of the body, depending upon the host. The family had not considered the deformity to be a big issue until Sasikala turned six and the face started to swell at an unusual rate. Now, almost 18 years later, she finds it difficult to execute daily chores like eating and brushing. The 24-year old is an employee at an embroidery unit run by a trust. Sasikala took it up as a means to support her family after completing her diploma in nursing and unable to land a job in the hospitality sector. Kumar, 54, Sasikala’s father, says his daughter has been under the knife four times, but it has only gotten worse. “She was six when doctors operated upon her for the first time,” Kumar says. “The result was satisfying and she looked normal,” he added. However, the joy was short-lived, as the tumours grew back again. Kumar says upon approaching the doctors again, he was told that it could be controlled but wou
    MEGA506733_001.jpg
  • EXCLUSIVE: By Sanjay Pandey and Supito Maity in Sao Paulo A 28-year-old Brazilian woman crippled by sheer weight and disproportionate size of tumours in her lower limbs is pleading for help from the netizens. Karina Rodini, who was fired from her job and is forced stay unmarried due to her medical condition, says the disease took a heavy toll on her personal and professional life. Karina has spent most of her adult life hiding it in public. But after last year’s botched up surgery in a state-run hospital, her ‘legs have become double the size and no clothes fit her’, making her a pariah in the locality. Karina suffers from type one neurofibromatosis, a genetic condition marked by changes in skin colour and the growth of non-cancerous cysts in different parts. The disease affects one in 4000 people globally. According to the US National Library of Medicine, patient with type one neufibromatosis are born with one mutated copy of the NF1 gene in each cell. It said, "In about half of cases, the altered gene is inherited from an affected parent. The remaining cases result from new mutations in the NF1 gene and occur in people with no history of the disorder in their family." Karina, from Sao Paulo, was just two when ‘coffee milk’ patches started to appear on her skin. She said due to the lack of formation of lumps, the doctors could barely make out what ailed her. “I was diagnosed with neurofibromatosis when I was only two years old, at first it was only ‘coffee milk’ patches so the doctor couldn’t do anything because there were no lumps or tumours,” she said. The cysts started to show up almost nine years later. One year later, when she was 12, Karina underwent a surgical procedure to remove a cyst, weighing around nine kilograms, from her uterus. According to her, the cavity gave her a semblance of a pregnant woman. Being the oldest child among three, Karina has always received love from her mother, Fatima M. Abou Ali, 58, a single woman, who raised
    MEGA348608_004.jpg
  • EXCLUSIVE: Battling a rare health condition that has left half of her face disfigured, a 24-year-old Indian woman says she tries to live positively despite jeers by people. Sasikala K, from Chennai, the capital of India’s southern Tamil Nadu state, suffers from plexiform neurofibromatosis, which has taken a toll on her face, affecting the right side. However, she admits her confidence has taken a hit of late. Sasikala, who prefers to live boldly and does not cover her face, likes dressing up and wearing make-up, much like girls her age, though she finds it difficult to execute them owing to her complications. She was only six-months-old when her parents noticed a part of her face swelling. However, they waited for another one and a half years to get medical help. “I have always been very bold, however, with age, the condition progressed and no one has come for help,” she says, adding, “I am slowly losing my confidence.” According to medical experts, her condition affects the face and craniofacial region of the body. It can also affect the neck and other parts of the body, depending upon the host. The family had not considered the deformity to be a big issue until Sasikala turned six and the face started to swell at an unusual rate. Now, almost 18 years later, she finds it difficult to execute daily chores like eating and brushing. The 24-year old is an employee at an embroidery unit run by a trust. Sasikala took it up as a means to support her family after completing her diploma in nursing and unable to land a job in the hospitality sector. Kumar, 54, Sasikala’s father, says his daughter has been under the knife four times, but it has only gotten worse. “She was six when doctors operated upon her for the first time,” Kumar says. “The result was satisfying and she looked normal,” he added. However, the joy was short-lived, as the tumours grew back again. Kumar says upon approaching the doctors again, he was told that it could be controlled but wou
    MEGA506733_009.jpg
  • EXCLUSIVE: Battling a rare health condition that has left half of her face disfigured, a 24-year-old Indian woman says she tries to live positively despite jeers by people. Sasikala K, from Chennai, the capital of India’s southern Tamil Nadu state, suffers from plexiform neurofibromatosis, which has taken a toll on her face, affecting the right side. However, she admits her confidence has taken a hit of late. Sasikala, who prefers to live boldly and does not cover her face, likes dressing up and wearing make-up, much like girls her age, though she finds it difficult to execute them owing to her complications. She was only six-months-old when her parents noticed a part of her face swelling. However, they waited for another one and a half years to get medical help. “I have always been very bold, however, with age, the condition progressed and no one has come for help,” she says, adding, “I am slowly losing my confidence.” According to medical experts, her condition affects the face and craniofacial region of the body. It can also affect the neck and other parts of the body, depending upon the host. The family had not considered the deformity to be a big issue until Sasikala turned six and the face started to swell at an unusual rate. Now, almost 18 years later, she finds it difficult to execute daily chores like eating and brushing. The 24-year old is an employee at an embroidery unit run by a trust. Sasikala took it up as a means to support her family after completing her diploma in nursing and unable to land a job in the hospitality sector. Kumar, 54, Sasikala’s father, says his daughter has been under the knife four times, but it has only gotten worse. “She was six when doctors operated upon her for the first time,” Kumar says. “The result was satisfying and she looked normal,” he added. However, the joy was short-lived, as the tumours grew back again. Kumar says upon approaching the doctors again, he was told that it could be controlled but wou
    MEGA506733_014.jpg
  • EXCLUSIVE: Battling a rare health condition that has left half of her face disfigured, a 24-year-old Indian woman says she tries to live positively despite jeers by people. Sasikala K, from Chennai, the capital of India’s southern Tamil Nadu state, suffers from plexiform neurofibromatosis, which has taken a toll on her face, affecting the right side. However, she admits her confidence has taken a hit of late. Sasikala, who prefers to live boldly and does not cover her face, likes dressing up and wearing make-up, much like girls her age, though she finds it difficult to execute them owing to her complications. She was only six-months-old when her parents noticed a part of her face swelling. However, they waited for another one and a half years to get medical help. “I have always been very bold, however, with age, the condition progressed and no one has come for help,” she says, adding, “I am slowly losing my confidence.” According to medical experts, her condition affects the face and craniofacial region of the body. It can also affect the neck and other parts of the body, depending upon the host. The family had not considered the deformity to be a big issue until Sasikala turned six and the face started to swell at an unusual rate. Now, almost 18 years later, she finds it difficult to execute daily chores like eating and brushing. The 24-year old is an employee at an embroidery unit run by a trust. Sasikala took it up as a means to support her family after completing her diploma in nursing and unable to land a job in the hospitality sector. Kumar, 54, Sasikala’s father, says his daughter has been under the knife four times, but it has only gotten worse. “She was six when doctors operated upon her for the first time,” Kumar says. “The result was satisfying and she looked normal,” he added. However, the joy was short-lived, as the tumours grew back again. Kumar says upon approaching the doctors again, he was told that it could be controlled but wou
    MEGA506733_015.jpg
  • EXCLUSIVE: Battling a rare health condition that has left half of her face disfigured, a 24-year-old Indian woman says she tries to live positively despite jeers by people. Sasikala K, from Chennai, the capital of India’s southern Tamil Nadu state, suffers from plexiform neurofibromatosis, which has taken a toll on her face, affecting the right side. However, she admits her confidence has taken a hit of late. Sasikala, who prefers to live boldly and does not cover her face, likes dressing up and wearing make-up, much like girls her age, though she finds it difficult to execute them owing to her complications. She was only six-months-old when her parents noticed a part of her face swelling. However, they waited for another one and a half years to get medical help. “I have always been very bold, however, with age, the condition progressed and no one has come for help,” she says, adding, “I am slowly losing my confidence.” According to medical experts, her condition affects the face and craniofacial region of the body. It can also affect the neck and other parts of the body, depending upon the host. The family had not considered the deformity to be a big issue until Sasikala turned six and the face started to swell at an unusual rate. Now, almost 18 years later, she finds it difficult to execute daily chores like eating and brushing. The 24-year old is an employee at an embroidery unit run by a trust. Sasikala took it up as a means to support her family after completing her diploma in nursing and unable to land a job in the hospitality sector. Kumar, 54, Sasikala’s father, says his daughter has been under the knife four times, but it has only gotten worse. “She was six when doctors operated upon her for the first time,” Kumar says. “The result was satisfying and she looked normal,” he added. However, the joy was short-lived, as the tumours grew back again. Kumar says upon approaching the doctors again, he was told that it could be controlled but wou
    MEGA506733_016.jpg
  • EXCLUSIVE: Battling a rare health condition that has left half of her face disfigured, a 24-year-old Indian woman says she tries to live positively despite jeers by people. Sasikala K, from Chennai, the capital of India’s southern Tamil Nadu state, suffers from plexiform neurofibromatosis, which has taken a toll on her face, affecting the right side. However, she admits her confidence has taken a hit of late. Sasikala, who prefers to live boldly and does not cover her face, likes dressing up and wearing make-up, much like girls her age, though she finds it difficult to execute them owing to her complications. She was only six-months-old when her parents noticed a part of her face swelling. However, they waited for another one and a half years to get medical help. “I have always been very bold, however, with age, the condition progressed and no one has come for help,” she says, adding, “I am slowly losing my confidence.” According to medical experts, her condition affects the face and craniofacial region of the body. It can also affect the neck and other parts of the body, depending upon the host. The family had not considered the deformity to be a big issue until Sasikala turned six and the face started to swell at an unusual rate. Now, almost 18 years later, she finds it difficult to execute daily chores like eating and brushing. The 24-year old is an employee at an embroidery unit run by a trust. Sasikala took it up as a means to support her family after completing her diploma in nursing and unable to land a job in the hospitality sector. Kumar, 54, Sasikala’s father, says his daughter has been under the knife four times, but it has only gotten worse. “She was six when doctors operated upon her for the first time,” Kumar says. “The result was satisfying and she looked normal,” he added. However, the joy was short-lived, as the tumours grew back again. Kumar says upon approaching the doctors again, he was told that it could be controlled but wou
    MEGA506733_019.jpg
  • EXCLUSIVE: Battling a rare health condition that has left half of her face disfigured, a 24-year-old Indian woman says she tries to live positively despite jeers by people. Sasikala K, from Chennai, the capital of India’s southern Tamil Nadu state, suffers from plexiform neurofibromatosis, which has taken a toll on her face, affecting the right side. However, she admits her confidence has taken a hit of late. Sasikala, who prefers to live boldly and does not cover her face, likes dressing up and wearing make-up, much like girls her age, though she finds it difficult to execute them owing to her complications. She was only six-months-old when her parents noticed a part of her face swelling. However, they waited for another one and a half years to get medical help. “I have always been very bold, however, with age, the condition progressed and no one has come for help,” she says, adding, “I am slowly losing my confidence.” According to medical experts, her condition affects the face and craniofacial region of the body. It can also affect the neck and other parts of the body, depending upon the host. The family had not considered the deformity to be a big issue until Sasikala turned six and the face started to swell at an unusual rate. Now, almost 18 years later, she finds it difficult to execute daily chores like eating and brushing. The 24-year old is an employee at an embroidery unit run by a trust. Sasikala took it up as a means to support her family after completing her diploma in nursing and unable to land a job in the hospitality sector. Kumar, 54, Sasikala’s father, says his daughter has been under the knife four times, but it has only gotten worse. “She was six when doctors operated upon her for the first time,” Kumar says. “The result was satisfying and she looked normal,” he added. However, the joy was short-lived, as the tumours grew back again. Kumar says upon approaching the doctors again, he was told that it could be controlled but wou
    MEGA506733_026.jpg
  • EXCLUSIVE: Battling a rare health condition that has left half of her face disfigured, a 24-year-old Indian woman says she tries to live positively despite jeers by people. Sasikala K, from Chennai, the capital of India’s southern Tamil Nadu state, suffers from plexiform neurofibromatosis, which has taken a toll on her face, affecting the right side. However, she admits her confidence has taken a hit of late. Sasikala, who prefers to live boldly and does not cover her face, likes dressing up and wearing make-up, much like girls her age, though she finds it difficult to execute them owing to her complications. She was only six-months-old when her parents noticed a part of her face swelling. However, they waited for another one and a half years to get medical help. “I have always been very bold, however, with age, the condition progressed and no one has come for help,” she says, adding, “I am slowly losing my confidence.” According to medical experts, her condition affects the face and craniofacial region of the body. It can also affect the neck and other parts of the body, depending upon the host. The family had not considered the deformity to be a big issue until Sasikala turned six and the face started to swell at an unusual rate. Now, almost 18 years later, she finds it difficult to execute daily chores like eating and brushing. The 24-year old is an employee at an embroidery unit run by a trust. Sasikala took it up as a means to support her family after completing her diploma in nursing and unable to land a job in the hospitality sector. Kumar, 54, Sasikala’s father, says his daughter has been under the knife four times, but it has only gotten worse. “She was six when doctors operated upon her for the first time,” Kumar says. “The result was satisfying and she looked normal,” he added. However, the joy was short-lived, as the tumours grew back again. Kumar says upon approaching the doctors again, he was told that it could be controlled but wou
    MEGA506733_025.jpg
  • EXCLUSIVE: Battling a rare health condition that has left half of her face disfigured, a 24-year-old Indian woman says she tries to live positively despite jeers by people. Sasikala K, from Chennai, the capital of India’s southern Tamil Nadu state, suffers from plexiform neurofibromatosis, which has taken a toll on her face, affecting the right side. However, she admits her confidence has taken a hit of late. Sasikala, who prefers to live boldly and does not cover her face, likes dressing up and wearing make-up, much like girls her age, though she finds it difficult to execute them owing to her complications. She was only six-months-old when her parents noticed a part of her face swelling. However, they waited for another one and a half years to get medical help. “I have always been very bold, however, with age, the condition progressed and no one has come for help,” she says, adding, “I am slowly losing my confidence.” According to medical experts, her condition affects the face and craniofacial region of the body. It can also affect the neck and other parts of the body, depending upon the host. The family had not considered the deformity to be a big issue until Sasikala turned six and the face started to swell at an unusual rate. Now, almost 18 years later, she finds it difficult to execute daily chores like eating and brushing. The 24-year old is an employee at an embroidery unit run by a trust. Sasikala took it up as a means to support her family after completing her diploma in nursing and unable to land a job in the hospitality sector. Kumar, 54, Sasikala’s father, says his daughter has been under the knife four times, but it has only gotten worse. “She was six when doctors operated upon her for the first time,” Kumar says. “The result was satisfying and she looked normal,” he added. However, the joy was short-lived, as the tumours grew back again. Kumar says upon approaching the doctors again, he was told that it could be controlled but wou
    MEGA506733_027.jpg
  • EXCLUSIVE: Battling a rare health condition that has left half of her face disfigured, a 24-year-old Indian woman says she tries to live positively despite jeers by people. Sasikala K, from Chennai, the capital of India’s southern Tamil Nadu state, suffers from plexiform neurofibromatosis, which has taken a toll on her face, affecting the right side. However, she admits her confidence has taken a hit of late. Sasikala, who prefers to live boldly and does not cover her face, likes dressing up and wearing make-up, much like girls her age, though she finds it difficult to execute them owing to her complications. She was only six-months-old when her parents noticed a part of her face swelling. However, they waited for another one and a half years to get medical help. “I have always been very bold, however, with age, the condition progressed and no one has come for help,” she says, adding, “I am slowly losing my confidence.” According to medical experts, her condition affects the face and craniofacial region of the body. It can also affect the neck and other parts of the body, depending upon the host. The family had not considered the deformity to be a big issue until Sasikala turned six and the face started to swell at an unusual rate. Now, almost 18 years later, she finds it difficult to execute daily chores like eating and brushing. The 24-year old is an employee at an embroidery unit run by a trust. Sasikala took it up as a means to support her family after completing her diploma in nursing and unable to land a job in the hospitality sector. Kumar, 54, Sasikala’s father, says his daughter has been under the knife four times, but it has only gotten worse. “She was six when doctors operated upon her for the first time,” Kumar says. “The result was satisfying and she looked normal,” he added. However, the joy was short-lived, as the tumours grew back again. Kumar says upon approaching the doctors again, he was told that it could be controlled but wou
    MEGA506733_030.jpg
  • EXCLUSIVE: Battling a rare health condition that has left half of her face disfigured, a 24-year-old Indian woman says she tries to live positively despite jeers by people. Sasikala K, from Chennai, the capital of India’s southern Tamil Nadu state, suffers from plexiform neurofibromatosis, which has taken a toll on her face, affecting the right side. However, she admits her confidence has taken a hit of late. Sasikala, who prefers to live boldly and does not cover her face, likes dressing up and wearing make-up, much like girls her age, though she finds it difficult to execute them owing to her complications. She was only six-months-old when her parents noticed a part of her face swelling. However, they waited for another one and a half years to get medical help. “I have always been very bold, however, with age, the condition progressed and no one has come for help,” she says, adding, “I am slowly losing my confidence.” According to medical experts, her condition affects the face and craniofacial region of the body. It can also affect the neck and other parts of the body, depending upon the host. The family had not considered the deformity to be a big issue until Sasikala turned six and the face started to swell at an unusual rate. Now, almost 18 years later, she finds it difficult to execute daily chores like eating and brushing. The 24-year old is an employee at an embroidery unit run by a trust. Sasikala took it up as a means to support her family after completing her diploma in nursing and unable to land a job in the hospitality sector. Kumar, 54, Sasikala’s father, says his daughter has been under the knife four times, but it has only gotten worse. “She was six when doctors operated upon her for the first time,” Kumar says. “The result was satisfying and she looked normal,” he added. However, the joy was short-lived, as the tumours grew back again. Kumar says upon approaching the doctors again, he was told that it could be controlled but wou
    MEGA506733_029.jpg
  • EXCLUSIVE: Battling a rare health condition that has left half of her face disfigured, a 24-year-old Indian woman says she tries to live positively despite jeers by people. Sasikala K, from Chennai, the capital of India’s southern Tamil Nadu state, suffers from plexiform neurofibromatosis, which has taken a toll on her face, affecting the right side. However, she admits her confidence has taken a hit of late. Sasikala, who prefers to live boldly and does not cover her face, likes dressing up and wearing make-up, much like girls her age, though she finds it difficult to execute them owing to her complications. She was only six-months-old when her parents noticed a part of her face swelling. However, they waited for another one and a half years to get medical help. “I have always been very bold, however, with age, the condition progressed and no one has come for help,” she says, adding, “I am slowly losing my confidence.” According to medical experts, her condition affects the face and craniofacial region of the body. It can also affect the neck and other parts of the body, depending upon the host. The family had not considered the deformity to be a big issue until Sasikala turned six and the face started to swell at an unusual rate. Now, almost 18 years later, she finds it difficult to execute daily chores like eating and brushing. The 24-year old is an employee at an embroidery unit run by a trust. Sasikala took it up as a means to support her family after completing her diploma in nursing and unable to land a job in the hospitality sector. Kumar, 54, Sasikala’s father, says his daughter has been under the knife four times, but it has only gotten worse. “She was six when doctors operated upon her for the first time,” Kumar says. “The result was satisfying and she looked normal,” he added. However, the joy was short-lived, as the tumours grew back again. Kumar says upon approaching the doctors again, he was told that it could be controlled but wou
    MEGA506733_032.jpg
  • EXCLUSIVE: Battling a rare health condition that has left half of her face disfigured, a 24-year-old Indian woman says she tries to live positively despite jeers by people. Sasikala K, from Chennai, the capital of India’s southern Tamil Nadu state, suffers from plexiform neurofibromatosis, which has taken a toll on her face, affecting the right side. However, she admits her confidence has taken a hit of late. Sasikala, who prefers to live boldly and does not cover her face, likes dressing up and wearing make-up, much like girls her age, though she finds it difficult to execute them owing to her complications. She was only six-months-old when her parents noticed a part of her face swelling. However, they waited for another one and a half years to get medical help. “I have always been very bold, however, with age, the condition progressed and no one has come for help,” she says, adding, “I am slowly losing my confidence.” According to medical experts, her condition affects the face and craniofacial region of the body. It can also affect the neck and other parts of the body, depending upon the host. The family had not considered the deformity to be a big issue until Sasikala turned six and the face started to swell at an unusual rate. Now, almost 18 years later, she finds it difficult to execute daily chores like eating and brushing. The 24-year old is an employee at an embroidery unit run by a trust. Sasikala took it up as a means to support her family after completing her diploma in nursing and unable to land a job in the hospitality sector. Kumar, 54, Sasikala’s father, says his daughter has been under the knife four times, but it has only gotten worse. “She was six when doctors operated upon her for the first time,” Kumar says. “The result was satisfying and she looked normal,” he added. However, the joy was short-lived, as the tumours grew back again. Kumar says upon approaching the doctors again, he was told that it could be controlled but wou
    MEGA506733_041.jpg
  • EXCLUSIVE: By Sanjay Pandey and Supito Maity in Sao Paulo A 28-year-old Brazilian woman crippled by sheer weight and disproportionate size of tumours in her lower limbs is pleading for help from the netizens. Karina Rodini, who was fired from her job and is forced stay unmarried due to her medical condition, says the disease took a heavy toll on her personal and professional life. Karina has spent most of her adult life hiding it in public. But after last year’s botched up surgery in a state-run hospital, her ‘legs have become double the size and no clothes fit her’, making her a pariah in the locality. Karina suffers from type one neurofibromatosis, a genetic condition marked by changes in skin colour and the growth of non-cancerous cysts in different parts. The disease affects one in 4000 people globally. According to the US National Library of Medicine, patient with type one neufibromatosis are born with one mutated copy of the NF1 gene in each cell. It said, "In about half of cases, the altered gene is inherited from an affected parent. The remaining cases result from new mutations in the NF1 gene and occur in people with no history of the disorder in their family." Karina, from Sao Paulo, was just two when ‘coffee milk’ patches started to appear on her skin. She said due to the lack of formation of lumps, the doctors could barely make out what ailed her. “I was diagnosed with neurofibromatosis when I was only two years old, at first it was only ‘coffee milk’ patches so the doctor couldn’t do anything because there were no lumps or tumours,” she said. The cysts started to show up almost nine years later. One year later, when she was 12, Karina underwent a surgical procedure to remove a cyst, weighing around nine kilograms, from her uterus. According to her, the cavity gave her a semblance of a pregnant woman. Being the oldest child among three, Karina has always received love from her mother, Fatima M. Abou Ali, 58, a single woman, who raised
    MEGA348608_008.jpg
  • EXCLUSIVE: By Sanjay Pandey and Supito Maity in Sao Paulo A 28-year-old Brazilian woman crippled by sheer weight and disproportionate size of tumours in her lower limbs is pleading for help from the netizens. Karina Rodini, who was fired from her job and is forced stay unmarried due to her medical condition, says the disease took a heavy toll on her personal and professional life. Karina has spent most of her adult life hiding it in public. But after last year’s botched up surgery in a state-run hospital, her ‘legs have become double the size and no clothes fit her’, making her a pariah in the locality. Karina suffers from type one neurofibromatosis, a genetic condition marked by changes in skin colour and the growth of non-cancerous cysts in different parts. The disease affects one in 4000 people globally. According to the US National Library of Medicine, patient with type one neufibromatosis are born with one mutated copy of the NF1 gene in each cell. It said, "In about half of cases, the altered gene is inherited from an affected parent. The remaining cases result from new mutations in the NF1 gene and occur in people with no history of the disorder in their family." Karina, from Sao Paulo, was just two when ‘coffee milk’ patches started to appear on her skin. She said due to the lack of formation of lumps, the doctors could barely make out what ailed her. “I was diagnosed with neurofibromatosis when I was only two years old, at first it was only ‘coffee milk’ patches so the doctor couldn’t do anything because there were no lumps or tumours,” she said. The cysts started to show up almost nine years later. One year later, when she was 12, Karina underwent a surgical procedure to remove a cyst, weighing around nine kilograms, from her uterus. According to her, the cavity gave her a semblance of a pregnant woman. Being the oldest child among three, Karina has always received love from her mother, Fatima M. Abou Ali, 58, a single woman, who raised
    MEGA348608_009.jpg
  • EXCLUSIVE: By Sanjay Pandey and Supito Maity in Sao Paulo A 28-year-old Brazilian woman crippled by sheer weight and disproportionate size of tumours in her lower limbs is pleading for help from the netizens. Karina Rodini, who was fired from her job and is forced stay unmarried due to her medical condition, says the disease took a heavy toll on her personal and professional life. Karina has spent most of her adult life hiding it in public. But after last year’s botched up surgery in a state-run hospital, her ‘legs have become double the size and no clothes fit her’, making her a pariah in the locality. Karina suffers from type one neurofibromatosis, a genetic condition marked by changes in skin colour and the growth of non-cancerous cysts in different parts. The disease affects one in 4000 people globally. According to the US National Library of Medicine, patient with type one neufibromatosis are born with one mutated copy of the NF1 gene in each cell. It said, "In about half of cases, the altered gene is inherited from an affected parent. The remaining cases result from new mutations in the NF1 gene and occur in people with no history of the disorder in their family." Karina, from Sao Paulo, was just two when ‘coffee milk’ patches started to appear on her skin. She said due to the lack of formation of lumps, the doctors could barely make out what ailed her. “I was diagnosed with neurofibromatosis when I was only two years old, at first it was only ‘coffee milk’ patches so the doctor couldn’t do anything because there were no lumps or tumours,” she said. The cysts started to show up almost nine years later. One year later, when she was 12, Karina underwent a surgical procedure to remove a cyst, weighing around nine kilograms, from her uterus. According to her, the cavity gave her a semblance of a pregnant woman. Being the oldest child among three, Karina has always received love from her mother, Fatima M. Abou Ali, 58, a single woman, who raised
    MEGA348608_010.jpg
  • EXCLUSIVE: By Sanjay Pandey and Supito Maity in Sao Paulo A 28-year-old Brazilian woman crippled by sheer weight and disproportionate size of tumours in her lower limbs is pleading for help from the netizens. Karina Rodini, who was fired from her job and is forced stay unmarried due to her medical condition, says the disease took a heavy toll on her personal and professional life. Karina has spent most of her adult life hiding it in public. But after last year’s botched up surgery in a state-run hospital, her ‘legs have become double the size and no clothes fit her’, making her a pariah in the locality. Karina suffers from type one neurofibromatosis, a genetic condition marked by changes in skin colour and the growth of non-cancerous cysts in different parts. The disease affects one in 4000 people globally. According to the US National Library of Medicine, patient with type one neufibromatosis are born with one mutated copy of the NF1 gene in each cell. It said, "In about half of cases, the altered gene is inherited from an affected parent. The remaining cases result from new mutations in the NF1 gene and occur in people with no history of the disorder in their family." Karina, from Sao Paulo, was just two when ‘coffee milk’ patches started to appear on her skin. She said due to the lack of formation of lumps, the doctors could barely make out what ailed her. “I was diagnosed with neurofibromatosis when I was only two years old, at first it was only ‘coffee milk’ patches so the doctor couldn’t do anything because there were no lumps or tumours,” she said. The cysts started to show up almost nine years later. One year later, when she was 12, Karina underwent a surgical procedure to remove a cyst, weighing around nine kilograms, from her uterus. According to her, the cavity gave her a semblance of a pregnant woman. Being the oldest child among three, Karina has always received love from her mother, Fatima M. Abou Ali, 58, a single woman, who raised
    MEGA348608_005.jpg
  • EXCLUSIVE: Battling a rare health condition that has left half of her face disfigured, a 24-year-old Indian woman says she tries to live positively despite jeers by people. Sasikala K, from Chennai, the capital of India’s southern Tamil Nadu state, suffers from plexiform neurofibromatosis, which has taken a toll on her face, affecting the right side. However, she admits her confidence has taken a hit of late. Sasikala, who prefers to live boldly and does not cover her face, likes dressing up and wearing make-up, much like girls her age, though she finds it difficult to execute them owing to her complications. She was only six-months-old when her parents noticed a part of her face swelling. However, they waited for another one and a half years to get medical help. “I have always been very bold, however, with age, the condition progressed and no one has come for help,” she says, adding, “I am slowly losing my confidence.” According to medical experts, her condition affects the face and craniofacial region of the body. It can also affect the neck and other parts of the body, depending upon the host. The family had not considered the deformity to be a big issue until Sasikala turned six and the face started to swell at an unusual rate. Now, almost 18 years later, she finds it difficult to execute daily chores like eating and brushing. The 24-year old is an employee at an embroidery unit run by a trust. Sasikala took it up as a means to support her family after completing her diploma in nursing and unable to land a job in the hospitality sector. Kumar, 54, Sasikala’s father, says his daughter has been under the knife four times, but it has only gotten worse. “She was six when doctors operated upon her for the first time,” Kumar says. “The result was satisfying and she looked normal,” he added. However, the joy was short-lived, as the tumours grew back again. Kumar says upon approaching the doctors again, he was told that it could be controlled but wou
    MEGA506733_002.jpg
  • EXCLUSIVE: Battling a rare health condition that has left half of her face disfigured, a 24-year-old Indian woman says she tries to live positively despite jeers by people. Sasikala K, from Chennai, the capital of India’s southern Tamil Nadu state, suffers from plexiform neurofibromatosis, which has taken a toll on her face, affecting the right side. However, she admits her confidence has taken a hit of late. Sasikala, who prefers to live boldly and does not cover her face, likes dressing up and wearing make-up, much like girls her age, though she finds it difficult to execute them owing to her complications. She was only six-months-old when her parents noticed a part of her face swelling. However, they waited for another one and a half years to get medical help. “I have always been very bold, however, with age, the condition progressed and no one has come for help,” she says, adding, “I am slowly losing my confidence.” According to medical experts, her condition affects the face and craniofacial region of the body. It can also affect the neck and other parts of the body, depending upon the host. The family had not considered the deformity to be a big issue until Sasikala turned six and the face started to swell at an unusual rate. Now, almost 18 years later, she finds it difficult to execute daily chores like eating and brushing. The 24-year old is an employee at an embroidery unit run by a trust. Sasikala took it up as a means to support her family after completing her diploma in nursing and unable to land a job in the hospitality sector. Kumar, 54, Sasikala’s father, says his daughter has been under the knife four times, but it has only gotten worse. “She was six when doctors operated upon her for the first time,” Kumar says. “The result was satisfying and she looked normal,” he added. However, the joy was short-lived, as the tumours grew back again. Kumar says upon approaching the doctors again, he was told that it could be controlled but wou
    MEGA506733_004.jpg
  • EXCLUSIVE: Battling a rare health condition that has left half of her face disfigured, a 24-year-old Indian woman says she tries to live positively despite jeers by people. Sasikala K, from Chennai, the capital of India’s southern Tamil Nadu state, suffers from plexiform neurofibromatosis, which has taken a toll on her face, affecting the right side. However, she admits her confidence has taken a hit of late. Sasikala, who prefers to live boldly and does not cover her face, likes dressing up and wearing make-up, much like girls her age, though she finds it difficult to execute them owing to her complications. She was only six-months-old when her parents noticed a part of her face swelling. However, they waited for another one and a half years to get medical help. “I have always been very bold, however, with age, the condition progressed and no one has come for help,” she says, adding, “I am slowly losing my confidence.” According to medical experts, her condition affects the face and craniofacial region of the body. It can also affect the neck and other parts of the body, depending upon the host. The family had not considered the deformity to be a big issue until Sasikala turned six and the face started to swell at an unusual rate. Now, almost 18 years later, she finds it difficult to execute daily chores like eating and brushing. The 24-year old is an employee at an embroidery unit run by a trust. Sasikala took it up as a means to support her family after completing her diploma in nursing and unable to land a job in the hospitality sector. Kumar, 54, Sasikala’s father, says his daughter has been under the knife four times, but it has only gotten worse. “She was six when doctors operated upon her for the first time,” Kumar says. “The result was satisfying and she looked normal,” he added. However, the joy was short-lived, as the tumours grew back again. Kumar says upon approaching the doctors again, he was told that it could be controlled but wou
    MEGA506733_003.jpg
  • EXCLUSIVE: Battling a rare health condition that has left half of her face disfigured, a 24-year-old Indian woman says she tries to live positively despite jeers by people. Sasikala K, from Chennai, the capital of India’s southern Tamil Nadu state, suffers from plexiform neurofibromatosis, which has taken a toll on her face, affecting the right side. However, she admits her confidence has taken a hit of late. Sasikala, who prefers to live boldly and does not cover her face, likes dressing up and wearing make-up, much like girls her age, though she finds it difficult to execute them owing to her complications. She was only six-months-old when her parents noticed a part of her face swelling. However, they waited for another one and a half years to get medical help. “I have always been very bold, however, with age, the condition progressed and no one has come for help,” she says, adding, “I am slowly losing my confidence.” According to medical experts, her condition affects the face and craniofacial region of the body. It can also affect the neck and other parts of the body, depending upon the host. The family had not considered the deformity to be a big issue until Sasikala turned six and the face started to swell at an unusual rate. Now, almost 18 years later, she finds it difficult to execute daily chores like eating and brushing. The 24-year old is an employee at an embroidery unit run by a trust. Sasikala took it up as a means to support her family after completing her diploma in nursing and unable to land a job in the hospitality sector. Kumar, 54, Sasikala’s father, says his daughter has been under the knife four times, but it has only gotten worse. “She was six when doctors operated upon her for the first time,” Kumar says. “The result was satisfying and she looked normal,” he added. However, the joy was short-lived, as the tumours grew back again. Kumar says upon approaching the doctors again, he was told that it could be controlled but wou
    MEGA506733_006.jpg
  • EXCLUSIVE: Battling a rare health condition that has left half of her face disfigured, a 24-year-old Indian woman says she tries to live positively despite jeers by people. Sasikala K, from Chennai, the capital of India’s southern Tamil Nadu state, suffers from plexiform neurofibromatosis, which has taken a toll on her face, affecting the right side. However, she admits her confidence has taken a hit of late. Sasikala, who prefers to live boldly and does not cover her face, likes dressing up and wearing make-up, much like girls her age, though she finds it difficult to execute them owing to her complications. She was only six-months-old when her parents noticed a part of her face swelling. However, they waited for another one and a half years to get medical help. “I have always been very bold, however, with age, the condition progressed and no one has come for help,” she says, adding, “I am slowly losing my confidence.” According to medical experts, her condition affects the face and craniofacial region of the body. It can also affect the neck and other parts of the body, depending upon the host. The family had not considered the deformity to be a big issue until Sasikala turned six and the face started to swell at an unusual rate. Now, almost 18 years later, she finds it difficult to execute daily chores like eating and brushing. The 24-year old is an employee at an embroidery unit run by a trust. Sasikala took it up as a means to support her family after completing her diploma in nursing and unable to land a job in the hospitality sector. Kumar, 54, Sasikala’s father, says his daughter has been under the knife four times, but it has only gotten worse. “She was six when doctors operated upon her for the first time,” Kumar says. “The result was satisfying and she looked normal,” he added. However, the joy was short-lived, as the tumours grew back again. Kumar says upon approaching the doctors again, he was told that it could be controlled but wou
    MEGA506733_007.jpg
  • EXCLUSIVE: Battling a rare health condition that has left half of her face disfigured, a 24-year-old Indian woman says she tries to live positively despite jeers by people. Sasikala K, from Chennai, the capital of India’s southern Tamil Nadu state, suffers from plexiform neurofibromatosis, which has taken a toll on her face, affecting the right side. However, she admits her confidence has taken a hit of late. Sasikala, who prefers to live boldly and does not cover her face, likes dressing up and wearing make-up, much like girls her age, though she finds it difficult to execute them owing to her complications. She was only six-months-old when her parents noticed a part of her face swelling. However, they waited for another one and a half years to get medical help. “I have always been very bold, however, with age, the condition progressed and no one has come for help,” she says, adding, “I am slowly losing my confidence.” According to medical experts, her condition affects the face and craniofacial region of the body. It can also affect the neck and other parts of the body, depending upon the host. The family had not considered the deformity to be a big issue until Sasikala turned six and the face started to swell at an unusual rate. Now, almost 18 years later, she finds it difficult to execute daily chores like eating and brushing. The 24-year old is an employee at an embroidery unit run by a trust. Sasikala took it up as a means to support her family after completing her diploma in nursing and unable to land a job in the hospitality sector. Kumar, 54, Sasikala’s father, says his daughter has been under the knife four times, but it has only gotten worse. “She was six when doctors operated upon her for the first time,” Kumar says. “The result was satisfying and she looked normal,” he added. However, the joy was short-lived, as the tumours grew back again. Kumar says upon approaching the doctors again, he was told that it could be controlled but wou
    MEGA506733_008.jpg
  • EXCLUSIVE: Battling a rare health condition that has left half of her face disfigured, a 24-year-old Indian woman says she tries to live positively despite jeers by people. Sasikala K, from Chennai, the capital of India’s southern Tamil Nadu state, suffers from plexiform neurofibromatosis, which has taken a toll on her face, affecting the right side. However, she admits her confidence has taken a hit of late. Sasikala, who prefers to live boldly and does not cover her face, likes dressing up and wearing make-up, much like girls her age, though she finds it difficult to execute them owing to her complications. She was only six-months-old when her parents noticed a part of her face swelling. However, they waited for another one and a half years to get medical help. “I have always been very bold, however, with age, the condition progressed and no one has come for help,” she says, adding, “I am slowly losing my confidence.” According to medical experts, her condition affects the face and craniofacial region of the body. It can also affect the neck and other parts of the body, depending upon the host. The family had not considered the deformity to be a big issue until Sasikala turned six and the face started to swell at an unusual rate. Now, almost 18 years later, she finds it difficult to execute daily chores like eating and brushing. The 24-year old is an employee at an embroidery unit run by a trust. Sasikala took it up as a means to support her family after completing her diploma in nursing and unable to land a job in the hospitality sector. Kumar, 54, Sasikala’s father, says his daughter has been under the knife four times, but it has only gotten worse. “She was six when doctors operated upon her for the first time,” Kumar says. “The result was satisfying and she looked normal,” he added. However, the joy was short-lived, as the tumours grew back again. Kumar says upon approaching the doctors again, he was told that it could be controlled but wou
    MEGA506733_012.jpg
  • EXCLUSIVE: Battling a rare health condition that has left half of her face disfigured, a 24-year-old Indian woman says she tries to live positively despite jeers by people. Sasikala K, from Chennai, the capital of India’s southern Tamil Nadu state, suffers from plexiform neurofibromatosis, which has taken a toll on her face, affecting the right side. However, she admits her confidence has taken a hit of late. Sasikala, who prefers to live boldly and does not cover her face, likes dressing up and wearing make-up, much like girls her age, though she finds it difficult to execute them owing to her complications. She was only six-months-old when her parents noticed a part of her face swelling. However, they waited for another one and a half years to get medical help. “I have always been very bold, however, with age, the condition progressed and no one has come for help,” she says, adding, “I am slowly losing my confidence.” According to medical experts, her condition affects the face and craniofacial region of the body. It can also affect the neck and other parts of the body, depending upon the host. The family had not considered the deformity to be a big issue until Sasikala turned six and the face started to swell at an unusual rate. Now, almost 18 years later, she finds it difficult to execute daily chores like eating and brushing. The 24-year old is an employee at an embroidery unit run by a trust. Sasikala took it up as a means to support her family after completing her diploma in nursing and unable to land a job in the hospitality sector. Kumar, 54, Sasikala’s father, says his daughter has been under the knife four times, but it has only gotten worse. “She was six when doctors operated upon her for the first time,” Kumar says. “The result was satisfying and she looked normal,” he added. However, the joy was short-lived, as the tumours grew back again. Kumar says upon approaching the doctors again, he was told that it could be controlled but wou
    MEGA506733_017.jpg
  • EXCLUSIVE: Battling a rare health condition that has left half of her face disfigured, a 24-year-old Indian woman says she tries to live positively despite jeers by people. Sasikala K, from Chennai, the capital of India’s southern Tamil Nadu state, suffers from plexiform neurofibromatosis, which has taken a toll on her face, affecting the right side. However, she admits her confidence has taken a hit of late. Sasikala, who prefers to live boldly and does not cover her face, likes dressing up and wearing make-up, much like girls her age, though she finds it difficult to execute them owing to her complications. She was only six-months-old when her parents noticed a part of her face swelling. However, they waited for another one and a half years to get medical help. “I have always been very bold, however, with age, the condition progressed and no one has come for help,” she says, adding, “I am slowly losing my confidence.” According to medical experts, her condition affects the face and craniofacial region of the body. It can also affect the neck and other parts of the body, depending upon the host. The family had not considered the deformity to be a big issue until Sasikala turned six and the face started to swell at an unusual rate. Now, almost 18 years later, she finds it difficult to execute daily chores like eating and brushing. The 24-year old is an employee at an embroidery unit run by a trust. Sasikala took it up as a means to support her family after completing her diploma in nursing and unable to land a job in the hospitality sector. Kumar, 54, Sasikala’s father, says his daughter has been under the knife four times, but it has only gotten worse. “She was six when doctors operated upon her for the first time,” Kumar says. “The result was satisfying and she looked normal,” he added. However, the joy was short-lived, as the tumours grew back again. Kumar says upon approaching the doctors again, he was told that it could be controlled but wou
    MEGA506733_018.jpg
  • EXCLUSIVE: Battling a rare health condition that has left half of her face disfigured, a 24-year-old Indian woman says she tries to live positively despite jeers by people. Sasikala K, from Chennai, the capital of India’s southern Tamil Nadu state, suffers from plexiform neurofibromatosis, which has taken a toll on her face, affecting the right side. However, she admits her confidence has taken a hit of late. Sasikala, who prefers to live boldly and does not cover her face, likes dressing up and wearing make-up, much like girls her age, though she finds it difficult to execute them owing to her complications. She was only six-months-old when her parents noticed a part of her face swelling. However, they waited for another one and a half years to get medical help. “I have always been very bold, however, with age, the condition progressed and no one has come for help,” she says, adding, “I am slowly losing my confidence.” According to medical experts, her condition affects the face and craniofacial region of the body. It can also affect the neck and other parts of the body, depending upon the host. The family had not considered the deformity to be a big issue until Sasikala turned six and the face started to swell at an unusual rate. Now, almost 18 years later, she finds it difficult to execute daily chores like eating and brushing. The 24-year old is an employee at an embroidery unit run by a trust. Sasikala took it up as a means to support her family after completing her diploma in nursing and unable to land a job in the hospitality sector. Kumar, 54, Sasikala’s father, says his daughter has been under the knife four times, but it has only gotten worse. “She was six when doctors operated upon her for the first time,” Kumar says. “The result was satisfying and she looked normal,” he added. However, the joy was short-lived, as the tumours grew back again. Kumar says upon approaching the doctors again, he was told that it could be controlled but wou
    MEGA506733_020.jpg
  • EXCLUSIVE: Battling a rare health condition that has left half of her face disfigured, a 24-year-old Indian woman says she tries to live positively despite jeers by people. Sasikala K, from Chennai, the capital of India’s southern Tamil Nadu state, suffers from plexiform neurofibromatosis, which has taken a toll on her face, affecting the right side. However, she admits her confidence has taken a hit of late. Sasikala, who prefers to live boldly and does not cover her face, likes dressing up and wearing make-up, much like girls her age, though she finds it difficult to execute them owing to her complications. She was only six-months-old when her parents noticed a part of her face swelling. However, they waited for another one and a half years to get medical help. “I have always been very bold, however, with age, the condition progressed and no one has come for help,” she says, adding, “I am slowly losing my confidence.” According to medical experts, her condition affects the face and craniofacial region of the body. It can also affect the neck and other parts of the body, depending upon the host. The family had not considered the deformity to be a big issue until Sasikala turned six and the face started to swell at an unusual rate. Now, almost 18 years later, she finds it difficult to execute daily chores like eating and brushing. The 24-year old is an employee at an embroidery unit run by a trust. Sasikala took it up as a means to support her family after completing her diploma in nursing and unable to land a job in the hospitality sector. Kumar, 54, Sasikala’s father, says his daughter has been under the knife four times, but it has only gotten worse. “She was six when doctors operated upon her for the first time,” Kumar says. “The result was satisfying and she looked normal,” he added. However, the joy was short-lived, as the tumours grew back again. Kumar says upon approaching the doctors again, he was told that it could be controlled but wou
    MEGA506733_021.jpg
  • EXCLUSIVE: Battling a rare health condition that has left half of her face disfigured, a 24-year-old Indian woman says she tries to live positively despite jeers by people. Sasikala K, from Chennai, the capital of India’s southern Tamil Nadu state, suffers from plexiform neurofibromatosis, which has taken a toll on her face, affecting the right side. However, she admits her confidence has taken a hit of late. Sasikala, who prefers to live boldly and does not cover her face, likes dressing up and wearing make-up, much like girls her age, though she finds it difficult to execute them owing to her complications. She was only six-months-old when her parents noticed a part of her face swelling. However, they waited for another one and a half years to get medical help. “I have always been very bold, however, with age, the condition progressed and no one has come for help,” she says, adding, “I am slowly losing my confidence.” According to medical experts, her condition affects the face and craniofacial region of the body. It can also affect the neck and other parts of the body, depending upon the host. The family had not considered the deformity to be a big issue until Sasikala turned six and the face started to swell at an unusual rate. Now, almost 18 years later, she finds it difficult to execute daily chores like eating and brushing. The 24-year old is an employee at an embroidery unit run by a trust. Sasikala took it up as a means to support her family after completing her diploma in nursing and unable to land a job in the hospitality sector. Kumar, 54, Sasikala’s father, says his daughter has been under the knife four times, but it has only gotten worse. “She was six when doctors operated upon her for the first time,” Kumar says. “The result was satisfying and she looked normal,” he added. However, the joy was short-lived, as the tumours grew back again. Kumar says upon approaching the doctors again, he was told that it could be controlled but wou
    MEGA506733_022.jpg
  • EXCLUSIVE: Battling a rare health condition that has left half of her face disfigured, a 24-year-old Indian woman says she tries to live positively despite jeers by people. Sasikala K, from Chennai, the capital of India’s southern Tamil Nadu state, suffers from plexiform neurofibromatosis, which has taken a toll on her face, affecting the right side. However, she admits her confidence has taken a hit of late. Sasikala, who prefers to live boldly and does not cover her face, likes dressing up and wearing make-up, much like girls her age, though she finds it difficult to execute them owing to her complications. She was only six-months-old when her parents noticed a part of her face swelling. However, they waited for another one and a half years to get medical help. “I have always been very bold, however, with age, the condition progressed and no one has come for help,” she says, adding, “I am slowly losing my confidence.” According to medical experts, her condition affects the face and craniofacial region of the body. It can also affect the neck and other parts of the body, depending upon the host. The family had not considered the deformity to be a big issue until Sasikala turned six and the face started to swell at an unusual rate. Now, almost 18 years later, she finds it difficult to execute daily chores like eating and brushing. The 24-year old is an employee at an embroidery unit run by a trust. Sasikala took it up as a means to support her family after completing her diploma in nursing and unable to land a job in the hospitality sector. Kumar, 54, Sasikala’s father, says his daughter has been under the knife four times, but it has only gotten worse. “She was six when doctors operated upon her for the first time,” Kumar says. “The result was satisfying and she looked normal,” he added. However, the joy was short-lived, as the tumours grew back again. Kumar says upon approaching the doctors again, he was told that it could be controlled but wou
    MEGA506733_024.jpg
  • EXCLUSIVE: Battling a rare health condition that has left half of her face disfigured, a 24-year-old Indian woman says she tries to live positively despite jeers by people. Sasikala K, from Chennai, the capital of India’s southern Tamil Nadu state, suffers from plexiform neurofibromatosis, which has taken a toll on her face, affecting the right side. However, she admits her confidence has taken a hit of late. Sasikala, who prefers to live boldly and does not cover her face, likes dressing up and wearing make-up, much like girls her age, though she finds it difficult to execute them owing to her complications. She was only six-months-old when her parents noticed a part of her face swelling. However, they waited for another one and a half years to get medical help. “I have always been very bold, however, with age, the condition progressed and no one has come for help,” she says, adding, “I am slowly losing my confidence.” According to medical experts, her condition affects the face and craniofacial region of the body. It can also affect the neck and other parts of the body, depending upon the host. The family had not considered the deformity to be a big issue until Sasikala turned six and the face started to swell at an unusual rate. Now, almost 18 years later, she finds it difficult to execute daily chores like eating and brushing. The 24-year old is an employee at an embroidery unit run by a trust. Sasikala took it up as a means to support her family after completing her diploma in nursing and unable to land a job in the hospitality sector. Kumar, 54, Sasikala’s father, says his daughter has been under the knife four times, but it has only gotten worse. “She was six when doctors operated upon her for the first time,” Kumar says. “The result was satisfying and she looked normal,” he added. However, the joy was short-lived, as the tumours grew back again. Kumar says upon approaching the doctors again, he was told that it could be controlled but wou
    MEGA506733_023.jpg
  • EXCLUSIVE: Battling a rare health condition that has left half of her face disfigured, a 24-year-old Indian woman says she tries to live positively despite jeers by people. Sasikala K, from Chennai, the capital of India’s southern Tamil Nadu state, suffers from plexiform neurofibromatosis, which has taken a toll on her face, affecting the right side. However, she admits her confidence has taken a hit of late. Sasikala, who prefers to live boldly and does not cover her face, likes dressing up and wearing make-up, much like girls her age, though she finds it difficult to execute them owing to her complications. She was only six-months-old when her parents noticed a part of her face swelling. However, they waited for another one and a half years to get medical help. “I have always been very bold, however, with age, the condition progressed and no one has come for help,” she says, adding, “I am slowly losing my confidence.” According to medical experts, her condition affects the face and craniofacial region of the body. It can also affect the neck and other parts of the body, depending upon the host. The family had not considered the deformity to be a big issue until Sasikala turned six and the face started to swell at an unusual rate. Now, almost 18 years later, she finds it difficult to execute daily chores like eating and brushing. The 24-year old is an employee at an embroidery unit run by a trust. Sasikala took it up as a means to support her family after completing her diploma in nursing and unable to land a job in the hospitality sector. Kumar, 54, Sasikala’s father, says his daughter has been under the knife four times, but it has only gotten worse. “She was six when doctors operated upon her for the first time,” Kumar says. “The result was satisfying and she looked normal,” he added. However, the joy was short-lived, as the tumours grew back again. Kumar says upon approaching the doctors again, he was told that it could be controlled but wou
    MEGA506733_028.jpg
  • EXCLUSIVE: Battling a rare health condition that has left half of her face disfigured, a 24-year-old Indian woman says she tries to live positively despite jeers by people. Sasikala K, from Chennai, the capital of India’s southern Tamil Nadu state, suffers from plexiform neurofibromatosis, which has taken a toll on her face, affecting the right side. However, she admits her confidence has taken a hit of late. Sasikala, who prefers to live boldly and does not cover her face, likes dressing up and wearing make-up, much like girls her age, though she finds it difficult to execute them owing to her complications. She was only six-months-old when her parents noticed a part of her face swelling. However, they waited for another one and a half years to get medical help. “I have always been very bold, however, with age, the condition progressed and no one has come for help,” she says, adding, “I am slowly losing my confidence.” According to medical experts, her condition affects the face and craniofacial region of the body. It can also affect the neck and other parts of the body, depending upon the host. The family had not considered the deformity to be a big issue until Sasikala turned six and the face started to swell at an unusual rate. Now, almost 18 years later, she finds it difficult to execute daily chores like eating and brushing. The 24-year old is an employee at an embroidery unit run by a trust. Sasikala took it up as a means to support her family after completing her diploma in nursing and unable to land a job in the hospitality sector. Kumar, 54, Sasikala’s father, says his daughter has been under the knife four times, but it has only gotten worse. “She was six when doctors operated upon her for the first time,” Kumar says. “The result was satisfying and she looked normal,” he added. However, the joy was short-lived, as the tumours grew back again. Kumar says upon approaching the doctors again, he was told that it could be controlled but wou
    MEGA506733_033.jpg
  • EXCLUSIVE: Battling a rare health condition that has left half of her face disfigured, a 24-year-old Indian woman says she tries to live positively despite jeers by people. Sasikala K, from Chennai, the capital of India’s southern Tamil Nadu state, suffers from plexiform neurofibromatosis, which has taken a toll on her face, affecting the right side. However, she admits her confidence has taken a hit of late. Sasikala, who prefers to live boldly and does not cover her face, likes dressing up and wearing make-up, much like girls her age, though she finds it difficult to execute them owing to her complications. She was only six-months-old when her parents noticed a part of her face swelling. However, they waited for another one and a half years to get medical help. “I have always been very bold, however, with age, the condition progressed and no one has come for help,” she says, adding, “I am slowly losing my confidence.” According to medical experts, her condition affects the face and craniofacial region of the body. It can also affect the neck and other parts of the body, depending upon the host. The family had not considered the deformity to be a big issue until Sasikala turned six and the face started to swell at an unusual rate. Now, almost 18 years later, she finds it difficult to execute daily chores like eating and brushing. The 24-year old is an employee at an embroidery unit run by a trust. Sasikala took it up as a means to support her family after completing her diploma in nursing and unable to land a job in the hospitality sector. Kumar, 54, Sasikala’s father, says his daughter has been under the knife four times, but it has only gotten worse. “She was six when doctors operated upon her for the first time,” Kumar says. “The result was satisfying and she looked normal,” he added. However, the joy was short-lived, as the tumours grew back again. Kumar says upon approaching the doctors again, he was told that it could be controlled but wou
    MEGA506733_031.jpg
  • EXCLUSIVE: Battling a rare health condition that has left half of her face disfigured, a 24-year-old Indian woman says she tries to live positively despite jeers by people. Sasikala K, from Chennai, the capital of India’s southern Tamil Nadu state, suffers from plexiform neurofibromatosis, which has taken a toll on her face, affecting the right side. However, she admits her confidence has taken a hit of late. Sasikala, who prefers to live boldly and does not cover her face, likes dressing up and wearing make-up, much like girls her age, though she finds it difficult to execute them owing to her complications. She was only six-months-old when her parents noticed a part of her face swelling. However, they waited for another one and a half years to get medical help. “I have always been very bold, however, with age, the condition progressed and no one has come for help,” she says, adding, “I am slowly losing my confidence.” According to medical experts, her condition affects the face and craniofacial region of the body. It can also affect the neck and other parts of the body, depending upon the host. The family had not considered the deformity to be a big issue until Sasikala turned six and the face started to swell at an unusual rate. Now, almost 18 years later, she finds it difficult to execute daily chores like eating and brushing. The 24-year old is an employee at an embroidery unit run by a trust. Sasikala took it up as a means to support her family after completing her diploma in nursing and unable to land a job in the hospitality sector. Kumar, 54, Sasikala’s father, says his daughter has been under the knife four times, but it has only gotten worse. “She was six when doctors operated upon her for the first time,” Kumar says. “The result was satisfying and she looked normal,” he added. However, the joy was short-lived, as the tumours grew back again. Kumar says upon approaching the doctors again, he was told that it could be controlled but wou
    MEGA506733_034.jpg
  • EXCLUSIVE: Battling a rare health condition that has left half of her face disfigured, a 24-year-old Indian woman says she tries to live positively despite jeers by people. Sasikala K, from Chennai, the capital of India’s southern Tamil Nadu state, suffers from plexiform neurofibromatosis, which has taken a toll on her face, affecting the right side. However, she admits her confidence has taken a hit of late. Sasikala, who prefers to live boldly and does not cover her face, likes dressing up and wearing make-up, much like girls her age, though she finds it difficult to execute them owing to her complications. She was only six-months-old when her parents noticed a part of her face swelling. However, they waited for another one and a half years to get medical help. “I have always been very bold, however, with age, the condition progressed and no one has come for help,” she says, adding, “I am slowly losing my confidence.” According to medical experts, her condition affects the face and craniofacial region of the body. It can also affect the neck and other parts of the body, depending upon the host. The family had not considered the deformity to be a big issue until Sasikala turned six and the face started to swell at an unusual rate. Now, almost 18 years later, she finds it difficult to execute daily chores like eating and brushing. The 24-year old is an employee at an embroidery unit run by a trust. Sasikala took it up as a means to support her family after completing her diploma in nursing and unable to land a job in the hospitality sector. Kumar, 54, Sasikala’s father, says his daughter has been under the knife four times, but it has only gotten worse. “She was six when doctors operated upon her for the first time,” Kumar says. “The result was satisfying and she looked normal,” he added. However, the joy was short-lived, as the tumours grew back again. Kumar says upon approaching the doctors again, he was told that it could be controlled but wou
    MEGA506733_036.jpg
  • EXCLUSIVE: Battling a rare health condition that has left half of her face disfigured, a 24-year-old Indian woman says she tries to live positively despite jeers by people. Sasikala K, from Chennai, the capital of India’s southern Tamil Nadu state, suffers from plexiform neurofibromatosis, which has taken a toll on her face, affecting the right side. However, she admits her confidence has taken a hit of late. Sasikala, who prefers to live boldly and does not cover her face, likes dressing up and wearing make-up, much like girls her age, though she finds it difficult to execute them owing to her complications. She was only six-months-old when her parents noticed a part of her face swelling. However, they waited for another one and a half years to get medical help. “I have always been very bold, however, with age, the condition progressed and no one has come for help,” she says, adding, “I am slowly losing my confidence.” According to medical experts, her condition affects the face and craniofacial region of the body. It can also affect the neck and other parts of the body, depending upon the host. The family had not considered the deformity to be a big issue until Sasikala turned six and the face started to swell at an unusual rate. Now, almost 18 years later, she finds it difficult to execute daily chores like eating and brushing. The 24-year old is an employee at an embroidery unit run by a trust. Sasikala took it up as a means to support her family after completing her diploma in nursing and unable to land a job in the hospitality sector. Kumar, 54, Sasikala’s father, says his daughter has been under the knife four times, but it has only gotten worse. “She was six when doctors operated upon her for the first time,” Kumar says. “The result was satisfying and she looked normal,” he added. However, the joy was short-lived, as the tumours grew back again. Kumar says upon approaching the doctors again, he was told that it could be controlled but wou
    MEGA506733_037.jpg
  • EXCLUSIVE: Battling a rare health condition that has left half of her face disfigured, a 24-year-old Indian woman says she tries to live positively despite jeers by people. Sasikala K, from Chennai, the capital of India’s southern Tamil Nadu state, suffers from plexiform neurofibromatosis, which has taken a toll on her face, affecting the right side. However, she admits her confidence has taken a hit of late. Sasikala, who prefers to live boldly and does not cover her face, likes dressing up and wearing make-up, much like girls her age, though she finds it difficult to execute them owing to her complications. She was only six-months-old when her parents noticed a part of her face swelling. However, they waited for another one and a half years to get medical help. “I have always been very bold, however, with age, the condition progressed and no one has come for help,” she says, adding, “I am slowly losing my confidence.” According to medical experts, her condition affects the face and craniofacial region of the body. It can also affect the neck and other parts of the body, depending upon the host. The family had not considered the deformity to be a big issue until Sasikala turned six and the face started to swell at an unusual rate. Now, almost 18 years later, she finds it difficult to execute daily chores like eating and brushing. The 24-year old is an employee at an embroidery unit run by a trust. Sasikala took it up as a means to support her family after completing her diploma in nursing and unable to land a job in the hospitality sector. Kumar, 54, Sasikala’s father, says his daughter has been under the knife four times, but it has only gotten worse. “She was six when doctors operated upon her for the first time,” Kumar says. “The result was satisfying and she looked normal,” he added. However, the joy was short-lived, as the tumours grew back again. Kumar says upon approaching the doctors again, he was told that it could be controlled but wou
    MEGA506733_038.jpg
  • EXCLUSIVE: Battling a rare health condition that has left half of her face disfigured, a 24-year-old Indian woman says she tries to live positively despite jeers by people. Sasikala K, from Chennai, the capital of India’s southern Tamil Nadu state, suffers from plexiform neurofibromatosis, which has taken a toll on her face, affecting the right side. However, she admits her confidence has taken a hit of late. Sasikala, who prefers to live boldly and does not cover her face, likes dressing up and wearing make-up, much like girls her age, though she finds it difficult to execute them owing to her complications. She was only six-months-old when her parents noticed a part of her face swelling. However, they waited for another one and a half years to get medical help. “I have always been very bold, however, with age, the condition progressed and no one has come for help,” she says, adding, “I am slowly losing my confidence.” According to medical experts, her condition affects the face and craniofacial region of the body. It can also affect the neck and other parts of the body, depending upon the host. The family had not considered the deformity to be a big issue until Sasikala turned six and the face started to swell at an unusual rate. Now, almost 18 years later, she finds it difficult to execute daily chores like eating and brushing. The 24-year old is an employee at an embroidery unit run by a trust. Sasikala took it up as a means to support her family after completing her diploma in nursing and unable to land a job in the hospitality sector. Kumar, 54, Sasikala’s father, says his daughter has been under the knife four times, but it has only gotten worse. “She was six when doctors operated upon her for the first time,” Kumar says. “The result was satisfying and she looked normal,” he added. However, the joy was short-lived, as the tumours grew back again. Kumar says upon approaching the doctors again, he was told that it could be controlled but wou
    MEGA506733_039.jpg
  • EXCLUSIVE: Battling a rare health condition that has left half of her face disfigured, a 24-year-old Indian woman says she tries to live positively despite jeers by people. Sasikala K, from Chennai, the capital of India’s southern Tamil Nadu state, suffers from plexiform neurofibromatosis, which has taken a toll on her face, affecting the right side. However, she admits her confidence has taken a hit of late. Sasikala, who prefers to live boldly and does not cover her face, likes dressing up and wearing make-up, much like girls her age, though she finds it difficult to execute them owing to her complications. She was only six-months-old when her parents noticed a part of her face swelling. However, they waited for another one and a half years to get medical help. “I have always been very bold, however, with age, the condition progressed and no one has come for help,” she says, adding, “I am slowly losing my confidence.” According to medical experts, her condition affects the face and craniofacial region of the body. It can also affect the neck and other parts of the body, depending upon the host. The family had not considered the deformity to be a big issue until Sasikala turned six and the face started to swell at an unusual rate. Now, almost 18 years later, she finds it difficult to execute daily chores like eating and brushing. The 24-year old is an employee at an embroidery unit run by a trust. Sasikala took it up as a means to support her family after completing her diploma in nursing and unable to land a job in the hospitality sector. Kumar, 54, Sasikala’s father, says his daughter has been under the knife four times, but it has only gotten worse. “She was six when doctors operated upon her for the first time,” Kumar says. “The result was satisfying and she looked normal,” he added. However, the joy was short-lived, as the tumours grew back again. Kumar says upon approaching the doctors again, he was told that it could be controlled but wou
    MEGA506733_040.jpg
  • EXCLUSIVE: By Sanjay Pandey and Supito Maity in Sao Paulo A 28-year-old Brazilian woman crippled by sheer weight and disproportionate size of tumours in her lower limbs is pleading for help from the netizens. Karina Rodini, who was fired from her job and is forced stay unmarried due to her medical condition, says the disease took a heavy toll on her personal and professional life. Karina has spent most of her adult life hiding it in public. But after last year’s botched up surgery in a state-run hospital, her ‘legs have become double the size and no clothes fit her’, making her a pariah in the locality. Karina suffers from type one neurofibromatosis, a genetic condition marked by changes in skin colour and the growth of non-cancerous cysts in different parts. The disease affects one in 4000 people globally. According to the US National Library of Medicine, patient with type one neufibromatosis are born with one mutated copy of the NF1 gene in each cell. It said, "In about half of cases, the altered gene is inherited from an affected parent. The remaining cases result from new mutations in the NF1 gene and occur in people with no history of the disorder in their family." Karina, from Sao Paulo, was just two when ‘coffee milk’ patches started to appear on her skin. She said due to the lack of formation of lumps, the doctors could barely make out what ailed her. “I was diagnosed with neurofibromatosis when I was only two years old, at first it was only ‘coffee milk’ patches so the doctor couldn’t do anything because there were no lumps or tumours,” she said. The cysts started to show up almost nine years later. One year later, when she was 12, Karina underwent a surgical procedure to remove a cyst, weighing around nine kilograms, from her uterus. According to her, the cavity gave her a semblance of a pregnant woman. Being the oldest child among three, Karina has always received love from her mother, Fatima M. Abou Ali, 58, a single woman, who raised
    MEGA348608_011.jpg
  • EXCLUSIVE: By Sanjay Pandey and Supito Maity in Sao Paulo A 28-year-old Brazilian woman crippled by sheer weight and disproportionate size of tumours in her lower limbs is pleading for help from the netizens. Karina Rodini, who was fired from her job and is forced stay unmarried due to her medical condition, says the disease took a heavy toll on her personal and professional life. Karina has spent most of her adult life hiding it in public. But after last year’s botched up surgery in a state-run hospital, her ‘legs have become double the size and no clothes fit her’, making her a pariah in the locality. Karina suffers from type one neurofibromatosis, a genetic condition marked by changes in skin colour and the growth of non-cancerous cysts in different parts. The disease affects one in 4000 people globally. According to the US National Library of Medicine, patient with type one neufibromatosis are born with one mutated copy of the NF1 gene in each cell. It said, "In about half of cases, the altered gene is inherited from an affected parent. The remaining cases result from new mutations in the NF1 gene and occur in people with no history of the disorder in their family." Karina, from Sao Paulo, was just two when ‘coffee milk’ patches started to appear on her skin. She said due to the lack of formation of lumps, the doctors could barely make out what ailed her. “I was diagnosed with neurofibromatosis when I was only two years old, at first it was only ‘coffee milk’ patches so the doctor couldn’t do anything because there were no lumps or tumours,” she said. The cysts started to show up almost nine years later. One year later, when she was 12, Karina underwent a surgical procedure to remove a cyst, weighing around nine kilograms, from her uterus. According to her, the cavity gave her a semblance of a pregnant woman. Being the oldest child among three, Karina has always received love from her mother, Fatima M. Abou Ali, 58, a single woman, who raised
    MEGA348608_006.jpg
  • EXCLUSIVE: By Sanjay Pandey and Supito Maity in Sao Paulo A 28-year-old Brazilian woman crippled by sheer weight and disproportionate size of tumours in her lower limbs is pleading for help from the netizens. Karina Rodini, who was fired from her job and is forced stay unmarried due to her medical condition, says the disease took a heavy toll on her personal and professional life. Karina has spent most of her adult life hiding it in public. But after last year’s botched up surgery in a state-run hospital, her ‘legs have become double the size and no clothes fit her’, making her a pariah in the locality. Karina suffers from type one neurofibromatosis, a genetic condition marked by changes in skin colour and the growth of non-cancerous cysts in different parts. The disease affects one in 4000 people globally. According to the US National Library of Medicine, patient with type one neufibromatosis are born with one mutated copy of the NF1 gene in each cell. It said, "In about half of cases, the altered gene is inherited from an affected parent. The remaining cases result from new mutations in the NF1 gene and occur in people with no history of the disorder in their family." Karina, from Sao Paulo, was just two when ‘coffee milk’ patches started to appear on her skin. She said due to the lack of formation of lumps, the doctors could barely make out what ailed her. “I was diagnosed with neurofibromatosis when I was only two years old, at first it was only ‘coffee milk’ patches so the doctor couldn’t do anything because there were no lumps or tumours,” she said. The cysts started to show up almost nine years later. One year later, when she was 12, Karina underwent a surgical procedure to remove a cyst, weighing around nine kilograms, from her uterus. According to her, the cavity gave her a semblance of a pregnant woman. Being the oldest child among three, Karina has always received love from her mother, Fatima M. Abou Ali, 58, a single woman, who raised
    MEGA348608_002.jpg
  • EXCLUSIVE: By Sanjay Pandey and Supito Maity in Sao Paulo A 28-year-old Brazilian woman crippled by sheer weight and disproportionate size of tumours in her lower limbs is pleading for help from the netizens. Karina Rodini, who was fired from her job and is forced stay unmarried due to her medical condition, says the disease took a heavy toll on her personal and professional life. Karina has spent most of her adult life hiding it in public. But after last year’s botched up surgery in a state-run hospital, her ‘legs have become double the size and no clothes fit her’, making her a pariah in the locality. Karina suffers from type one neurofibromatosis, a genetic condition marked by changes in skin colour and the growth of non-cancerous cysts in different parts. The disease affects one in 4000 people globally. According to the US National Library of Medicine, patient with type one neufibromatosis are born with one mutated copy of the NF1 gene in each cell. It said, "In about half of cases, the altered gene is inherited from an affected parent. The remaining cases result from new mutations in the NF1 gene and occur in people with no history of the disorder in their family." Karina, from Sao Paulo, was just two when ‘coffee milk’ patches started to appear on her skin. She said due to the lack of formation of lumps, the doctors could barely make out what ailed her. “I was diagnosed with neurofibromatosis when I was only two years old, at first it was only ‘coffee milk’ patches so the doctor couldn’t do anything because there were no lumps or tumours,” she said. The cysts started to show up almost nine years later. One year later, when she was 12, Karina underwent a surgical procedure to remove a cyst, weighing around nine kilograms, from her uterus. According to her, the cavity gave her a semblance of a pregnant woman. Being the oldest child among three, Karina has always received love from her mother, Fatima M. Abou Ali, 58, a single woman, who raised
    MEGA348608_003.jpg
  • EXCLUSIVE: By Sanjay Pandey and Supito Maity in Sao Paulo A 28-year-old Brazilian woman crippled by sheer weight and disproportionate size of tumours in her lower limbs is pleading for help from the netizens. Karina Rodini, who was fired from her job and is forced stay unmarried due to her medical condition, says the disease took a heavy toll on her personal and professional life. Karina has spent most of her adult life hiding it in public. But after last year’s botched up surgery in a state-run hospital, her ‘legs have become double the size and no clothes fit her’, making her a pariah in the locality. Karina suffers from type one neurofibromatosis, a genetic condition marked by changes in skin colour and the growth of non-cancerous cysts in different parts. The disease affects one in 4000 people globally. According to the US National Library of Medicine, patient with type one neufibromatosis are born with one mutated copy of the NF1 gene in each cell. It said, "In about half of cases, the altered gene is inherited from an affected parent. The remaining cases result from new mutations in the NF1 gene and occur in people with no history of the disorder in their family." Karina, from Sao Paulo, was just two when ‘coffee milk’ patches started to appear on her skin. She said due to the lack of formation of lumps, the doctors could barely make out what ailed her. “I was diagnosed with neurofibromatosis when I was only two years old, at first it was only ‘coffee milk’ patches so the doctor couldn’t do anything because there were no lumps or tumours,” she said. The cysts started to show up almost nine years later. One year later, when she was 12, Karina underwent a surgical procedure to remove a cyst, weighing around nine kilograms, from her uterus. According to her, the cavity gave her a semblance of a pregnant woman. Being the oldest child among three, Karina has always received love from her mother, Fatima M. Abou Ali, 58, a single woman, who raised
    MEGA348608_007.jpg
  • EXCLUSIVE: By Sanjay Pandey and Supito Maity in Sao Paulo A 28-year-old Brazilian woman crippled by sheer weight and disproportionate size of tumours in her lower limbs is pleading for help from the netizens. Karina Rodini, who was fired from her job and is forced stay unmarried due to her medical condition, says the disease took a heavy toll on her personal and professional life. Karina has spent most of her adult life hiding it in public. But after last year’s botched up surgery in a state-run hospital, her ‘legs have become double the size and no clothes fit her’, making her a pariah in the locality. Karina suffers from type one neurofibromatosis, a genetic condition marked by changes in skin colour and the growth of non-cancerous cysts in different parts. The disease affects one in 4000 people globally. According to the US National Library of Medicine, patient with type one neufibromatosis are born with one mutated copy of the NF1 gene in each cell. It said, "In about half of cases, the altered gene is inherited from an affected parent. The remaining cases result from new mutations in the NF1 gene and occur in people with no history of the disorder in their family." Karina, from Sao Paulo, was just two when ‘coffee milk’ patches started to appear on her skin. She said due to the lack of formation of lumps, the doctors could barely make out what ailed her. “I was diagnosed with neurofibromatosis when I was only two years old, at first it was only ‘coffee milk’ patches so the doctor couldn’t do anything because there were no lumps or tumours,” she said. The cysts started to show up almost nine years later. One year later, when she was 12, Karina underwent a surgical procedure to remove a cyst, weighing around nine kilograms, from her uterus. According to her, the cavity gave her a semblance of a pregnant woman. Being the oldest child among three, Karina has always received love from her mother, Fatima M. Abou Ali, 58, a single woman, who raised
    MEGA348608_001.jpg
  • EXCLUSIVE: Boy with webbed fingers, toes treated like a pariah in the neighborhood and at school, poor parents pin hope on crowdfunding to get their child treated By Sanjay Pandey in India Twelve-year-old Mannu Kumar is treated like a pariah in his neighborhood and at school because of his appearance. Mannu, standard III student, cannot run around like a regular boy of his age. He can't use hands for eating or any other purpose, nor can he wear shoes or slippers. Mannu suffers from Syndactyly, a rare genetic condition, because of which his hands and feet are fused-like. The disease causes abnormal fusion of hands and feet. The rare condition only affects one in 10 lakh people. Mannu, who hails from the Koderma of the east Indian state of Jharkhand, is the eldest child of Anand Kumar, a small-time grocery shop owner, and Rani Devi, a housewife. Mannu also has one sister and the medical expenses of his condition are quite a burden on the family. His parents have spent a fortune on his treatment in the last two years. They have sold family property and jewelry to arrange funds for the boy's medication and diagnosis. Since his parents are uneducated they couldn't pick on the early signs of the disease and his diagnosis was made only this year in July. Now it is in an advanced stage and doctors have told them that it would take at least Rs 10 lakh for reconstructing Mannu’s hands and feet. Doctors informed the parents that the estimated cost of treatment, including neuro and plastic surgery procedures, would come to approximately Rs 10 lakh. Moreover, the family would have to shell out Rs 5 lakh for the treatment process to begin. Since the family has already exhausted all their resources in the last two years, on the boy's medication, they have started a fundraiser to raise money for his further treatment. His mother Devi said: ‘It is the curse of the God that my son was born like this and I am worried about his future. ‘I’m afraid he might struggle to lead a no
    MEGA177869_003.jpg
  • EXCLUSIVE: Boy with webbed fingers, toes treated like a pariah in the neighborhood and at school, poor parents pin hope on crowdfunding to get their child treated By Sanjay Pandey in India Twelve-year-old Mannu Kumar is treated like a pariah in his neighborhood and at school because of his appearance. Mannu, standard III student, cannot run around like a regular boy of his age. He can't use hands for eating or any other purpose, nor can he wear shoes or slippers. Mannu suffers from Syndactyly, a rare genetic condition, because of which his hands and feet are fused-like. The disease causes abnormal fusion of hands and feet. The rare condition only affects one in 10 lakh people. Mannu, who hails from the Koderma of the east Indian state of Jharkhand, is the eldest child of Anand Kumar, a small-time grocery shop owner, and Rani Devi, a housewife. Mannu also has one sister and the medical expenses of his condition are quite a burden on the family. His parents have spent a fortune on his treatment in the last two years. They have sold family property and jewelry to arrange funds for the boy's medication and diagnosis. Since his parents are uneducated they couldn't pick on the early signs of the disease and his diagnosis was made only this year in July. Now it is in an advanced stage and doctors have told them that it would take at least Rs 10 lakh for reconstructing Mannu’s hands and feet. Doctors informed the parents that the estimated cost of treatment, including neuro and plastic surgery procedures, would come to approximately Rs 10 lakh. Moreover, the family would have to shell out Rs 5 lakh for the treatment process to begin. Since the family has already exhausted all their resources in the last two years, on the boy's medication, they have started a fundraiser to raise money for his further treatment. His mother Devi said: ‘It is the curse of the God that my son was born like this and I am worried about his future. ‘I’m afraid he might struggle to lead a no
    MEGA177869_004.jpg
  • EXCLUSIVE: Boy with webbed fingers, toes treated like a pariah in the neighborhood and at school, poor parents pin hope on crowdfunding to get their child treated By Sanjay Pandey in India Twelve-year-old Mannu Kumar is treated like a pariah in his neighborhood and at school because of his appearance. Mannu, standard III student, cannot run around like a regular boy of his age. He can't use hands for eating or any other purpose, nor can he wear shoes or slippers. Mannu suffers from Syndactyly, a rare genetic condition, because of which his hands and feet are fused-like. The disease causes abnormal fusion of hands and feet. The rare condition only affects one in 10 lakh people. Mannu, who hails from the Koderma of the east Indian state of Jharkhand, is the eldest child of Anand Kumar, a small-time grocery shop owner, and Rani Devi, a housewife. Mannu also has one sister and the medical expenses of his condition are quite a burden on the family. His parents have spent a fortune on his treatment in the last two years. They have sold family property and jewelry to arrange funds for the boy's medication and diagnosis. Since his parents are uneducated they couldn't pick on the early signs of the disease and his diagnosis was made only this year in July. Now it is in an advanced stage and doctors have told them that it would take at least Rs 10 lakh for reconstructing Mannu’s hands and feet. Doctors informed the parents that the estimated cost of treatment, including neuro and plastic surgery procedures, would come to approximately Rs 10 lakh. Moreover, the family would have to shell out Rs 5 lakh for the treatment process to begin. Since the family has already exhausted all their resources in the last two years, on the boy's medication, they have started a fundraiser to raise money for his further treatment. His mother Devi said: ‘It is the curse of the God that my son was born like this and I am worried about his future. ‘I’m afraid he might struggle to lead a no
    MEGA177869_002.jpg
  • EXCLUSIVE: Boy with webbed fingers, toes treated like a pariah in the neighborhood and at school, poor parents pin hope on crowdfunding to get their child treated By Sanjay Pandey in India Twelve-year-old Mannu Kumar is treated like a pariah in his neighborhood and at school because of his appearance. Mannu, standard III student, cannot run around like a regular boy of his age. He can't use hands for eating or any other purpose, nor can he wear shoes or slippers. Mannu suffers from Syndactyly, a rare genetic condition, because of which his hands and feet are fused-like. The disease causes abnormal fusion of hands and feet. The rare condition only affects one in 10 lakh people. Mannu, who hails from the Koderma of the east Indian state of Jharkhand, is the eldest child of Anand Kumar, a small-time grocery shop owner, and Rani Devi, a housewife. Mannu also has one sister and the medical expenses of his condition are quite a burden on the family. His parents have spent a fortune on his treatment in the last two years. They have sold family property and jewelry to arrange funds for the boy's medication and diagnosis. Since his parents are uneducated they couldn't pick on the early signs of the disease and his diagnosis was made only this year in July. Now it is in an advanced stage and doctors have told them that it would take at least Rs 10 lakh for reconstructing Mannu’s hands and feet. Doctors informed the parents that the estimated cost of treatment, including neuro and plastic surgery procedures, would come to approximately Rs 10 lakh. Moreover, the family would have to shell out Rs 5 lakh for the treatment process to begin. Since the family has already exhausted all their resources in the last two years, on the boy's medication, they have started a fundraiser to raise money for his further treatment. His mother Devi said: ‘It is the curse of the God that my son was born like this and I am worried about his future. ‘I’m afraid he might struggle to lead a no
    MEGA177869_008.jpg
  • EXCLUSIVE: Boy with webbed fingers, toes treated like a pariah in the neighborhood and at school, poor parents pin hope on crowdfunding to get their child treated By Sanjay Pandey in India Twelve-year-old Mannu Kumar is treated like a pariah in his neighborhood and at school because of his appearance. Mannu, standard III student, cannot run around like a regular boy of his age. He can't use hands for eating or any other purpose, nor can he wear shoes or slippers. Mannu suffers from Syndactyly, a rare genetic condition, because of which his hands and feet are fused-like. The disease causes abnormal fusion of hands and feet. The rare condition only affects one in 10 lakh people. Mannu, who hails from the Koderma of the east Indian state of Jharkhand, is the eldest child of Anand Kumar, a small-time grocery shop owner, and Rani Devi, a housewife. Mannu also has one sister and the medical expenses of his condition are quite a burden on the family. His parents have spent a fortune on his treatment in the last two years. They have sold family property and jewelry to arrange funds for the boy's medication and diagnosis. Since his parents are uneducated they couldn't pick on the early signs of the disease and his diagnosis was made only this year in July. Now it is in an advanced stage and doctors have told them that it would take at least Rs 10 lakh for reconstructing Mannu’s hands and feet. Doctors informed the parents that the estimated cost of treatment, including neuro and plastic surgery procedures, would come to approximately Rs 10 lakh. Moreover, the family would have to shell out Rs 5 lakh for the treatment process to begin. Since the family has already exhausted all their resources in the last two years, on the boy's medication, they have started a fundraiser to raise money for his further treatment. His mother Devi said: ‘It is the curse of the God that my son was born like this and I am worried about his future. ‘I’m afraid he might struggle to lead a no
    MEGA177869_006.jpg
  • EXCLUSIVE: Boy with webbed fingers, toes treated like a pariah in the neighborhood and at school, poor parents pin hope on crowdfunding to get their child treated By Sanjay Pandey in India Twelve-year-old Mannu Kumar is treated like a pariah in his neighborhood and at school because of his appearance. Mannu, standard III student, cannot run around like a regular boy of his age. He can't use hands for eating or any other purpose, nor can he wear shoes or slippers. Mannu suffers from Syndactyly, a rare genetic condition, because of which his hands and feet are fused-like. The disease causes abnormal fusion of hands and feet. The rare condition only affects one in 10 lakh people. Mannu, who hails from the Koderma of the east Indian state of Jharkhand, is the eldest child of Anand Kumar, a small-time grocery shop owner, and Rani Devi, a housewife. Mannu also has one sister and the medical expenses of his condition are quite a burden on the family. His parents have spent a fortune on his treatment in the last two years. They have sold family property and jewelry to arrange funds for the boy's medication and diagnosis. Since his parents are uneducated they couldn't pick on the early signs of the disease and his diagnosis was made only this year in July. Now it is in an advanced stage and doctors have told them that it would take at least Rs 10 lakh for reconstructing Mannu’s hands and feet. Doctors informed the parents that the estimated cost of treatment, including neuro and plastic surgery procedures, would come to approximately Rs 10 lakh. Moreover, the family would have to shell out Rs 5 lakh for the treatment process to begin. Since the family has already exhausted all their resources in the last two years, on the boy's medication, they have started a fundraiser to raise money for his further treatment. His mother Devi said: ‘It is the curse of the God that my son was born like this and I am worried about his future. ‘I’m afraid he might struggle to lead a no
    MEGA177869_007.jpg
  • EXCLUSIVE: Boy with webbed fingers, toes treated like a pariah in the neighborhood and at school, poor parents pin hope on crowdfunding to get their child treated By Sanjay Pandey in India Twelve-year-old Mannu Kumar is treated like a pariah in his neighborhood and at school because of his appearance. Mannu, standard III student, cannot run around like a regular boy of his age. He can't use hands for eating or any other purpose, nor can he wear shoes or slippers. Mannu suffers from Syndactyly, a rare genetic condition, because of which his hands and feet are fused-like. The disease causes abnormal fusion of hands and feet. The rare condition only affects one in 10 lakh people. Mannu, who hails from the Koderma of the east Indian state of Jharkhand, is the eldest child of Anand Kumar, a small-time grocery shop owner, and Rani Devi, a housewife. Mannu also has one sister and the medical expenses of his condition are quite a burden on the family. His parents have spent a fortune on his treatment in the last two years. They have sold family property and jewelry to arrange funds for the boy's medication and diagnosis. Since his parents are uneducated they couldn't pick on the early signs of the disease and his diagnosis was made only this year in July. Now it is in an advanced stage and doctors have told them that it would take at least Rs 10 lakh for reconstructing Mannu’s hands and feet. Doctors informed the parents that the estimated cost of treatment, including neuro and plastic surgery procedures, would come to approximately Rs 10 lakh. Moreover, the family would have to shell out Rs 5 lakh for the treatment process to begin. Since the family has already exhausted all their resources in the last two years, on the boy's medication, they have started a fundraiser to raise money for his further treatment. His mother Devi said: ‘It is the curse of the God that my son was born like this and I am worried about his future. ‘I’m afraid he might struggle to lead a no
    MEGA177869_005.jpg
  • EXCLUSIVE: Boy with webbed fingers, toes treated like a pariah in the neighborhood and at school, poor parents pin hope on crowdfunding to get their child treated By Sanjay Pandey in India Twelve-year-old Mannu Kumar is treated like a pariah in his neighborhood and at school because of his appearance. Mannu, standard III student, cannot run around like a regular boy of his age. He can't use hands for eating or any other purpose, nor can he wear shoes or slippers. Mannu suffers from Syndactyly, a rare genetic condition, because of which his hands and feet are fused-like. The disease causes abnormal fusion of hands and feet. The rare condition only affects one in 10 lakh people. Mannu, who hails from the Koderma of the east Indian state of Jharkhand, is the eldest child of Anand Kumar, a small-time grocery shop owner, and Rani Devi, a housewife. Mannu also has one sister and the medical expenses of his condition are quite a burden on the family. His parents have spent a fortune on his treatment in the last two years. They have sold family property and jewelry to arrange funds for the boy's medication and diagnosis. Since his parents are uneducated they couldn't pick on the early signs of the disease and his diagnosis was made only this year in July. Now it is in an advanced stage and doctors have told them that it would take at least Rs 10 lakh for reconstructing Mannu’s hands and feet. Doctors informed the parents that the estimated cost of treatment, including neuro and plastic surgery procedures, would come to approximately Rs 10 lakh. Moreover, the family would have to shell out Rs 5 lakh for the treatment process to begin. Since the family has already exhausted all their resources in the last two years, on the boy's medication, they have started a fundraiser to raise money for his further treatment. His mother Devi said: ‘It is the curse of the God that my son was born like this and I am worried about his future. ‘I’m afraid he might struggle to lead a no
    MEGA177869_009.jpg
  • EXCLUSIVE: Boy with webbed fingers, toes treated like a pariah in the neighborhood and at school, poor parents pin hope on crowdfunding to get their child treated By Sanjay Pandey in India Twelve-year-old Mannu Kumar is treated like a pariah in his neighborhood and at school because of his appearance. Mannu, standard III student, cannot run around like a regular boy of his age. He can't use hands for eating or any other purpose, nor can he wear shoes or slippers. Mannu suffers from Syndactyly, a rare genetic condition, because of which his hands and feet are fused-like. The disease causes abnormal fusion of hands and feet. The rare condition only affects one in 10 lakh people. Mannu, who hails from the Koderma of the east Indian state of Jharkhand, is the eldest child of Anand Kumar, a small-time grocery shop owner, and Rani Devi, a housewife. Mannu also has one sister and the medical expenses of his condition are quite a burden on the family. His parents have spent a fortune on his treatment in the last two years. They have sold family property and jewelry to arrange funds for the boy's medication and diagnosis. Since his parents are uneducated they couldn't pick on the early signs of the disease and his diagnosis was made only this year in July. Now it is in an advanced stage and doctors have told them that it would take at least Rs 10 lakh for reconstructing Mannu’s hands and feet. Doctors informed the parents that the estimated cost of treatment, including neuro and plastic surgery procedures, would come to approximately Rs 10 lakh. Moreover, the family would have to shell out Rs 5 lakh for the treatment process to begin. Since the family has already exhausted all their resources in the last two years, on the boy's medication, they have started a fundraiser to raise money for his further treatment. His mother Devi said: ‘It is the curse of the God that my son was born like this and I am worried about his future. ‘I’m afraid he might struggle to lead a no
    MEGA177869_011.jpg
  • EXCLUSIVE: Boy with webbed fingers, toes treated like a pariah in the neighborhood and at school, poor parents pin hope on crowdfunding to get their child treated By Sanjay Pandey in India Twelve-year-old Mannu Kumar is treated like a pariah in his neighborhood and at school because of his appearance. Mannu, standard III student, cannot run around like a regular boy of his age. He can't use hands for eating or any other purpose, nor can he wear shoes or slippers. Mannu suffers from Syndactyly, a rare genetic condition, because of which his hands and feet are fused-like. The disease causes abnormal fusion of hands and feet. The rare condition only affects one in 10 lakh people. Mannu, who hails from the Koderma of the east Indian state of Jharkhand, is the eldest child of Anand Kumar, a small-time grocery shop owner, and Rani Devi, a housewife. Mannu also has one sister and the medical expenses of his condition are quite a burden on the family. His parents have spent a fortune on his treatment in the last two years. They have sold family property and jewelry to arrange funds for the boy's medication and diagnosis. Since his parents are uneducated they couldn't pick on the early signs of the disease and his diagnosis was made only this year in July. Now it is in an advanced stage and doctors have told them that it would take at least Rs 10 lakh for reconstructing Mannu’s hands and feet. Doctors informed the parents that the estimated cost of treatment, including neuro and plastic surgery procedures, would come to approximately Rs 10 lakh. Moreover, the family would have to shell out Rs 5 lakh for the treatment process to begin. Since the family has already exhausted all their resources in the last two years, on the boy's medication, they have started a fundraiser to raise money for his further treatment. His mother Devi said: ‘It is the curse of the God that my son was born like this and I am worried about his future. ‘I’m afraid he might struggle to lead a no
    MEGA177869_010.jpg
  • EXCLUSIVE: Boy with webbed fingers, toes treated like a pariah in the neighborhood and at school, poor parents pin hope on crowdfunding to get their child treated By Sanjay Pandey in India Twelve-year-old Mannu Kumar is treated like a pariah in his neighborhood and at school because of his appearance. Mannu, standard III student, cannot run around like a regular boy of his age. He can't use hands for eating or any other purpose, nor can he wear shoes or slippers. Mannu suffers from Syndactyly, a rare genetic condition, because of which his hands and feet are fused-like. The disease causes abnormal fusion of hands and feet. The rare condition only affects one in 10 lakh people. Mannu, who hails from the Koderma of the east Indian state of Jharkhand, is the eldest child of Anand Kumar, a small-time grocery shop owner, and Rani Devi, a housewife. Mannu also has one sister and the medical expenses of his condition are quite a burden on the family. His parents have spent a fortune on his treatment in the last two years. They have sold family property and jewelry to arrange funds for the boy's medication and diagnosis. Since his parents are uneducated they couldn't pick on the early signs of the disease and his diagnosis was made only this year in July. Now it is in an advanced stage and doctors have told them that it would take at least Rs 10 lakh for reconstructing Mannu’s hands and feet. Doctors informed the parents that the estimated cost of treatment, including neuro and plastic surgery procedures, would come to approximately Rs 10 lakh. Moreover, the family would have to shell out Rs 5 lakh for the treatment process to begin. Since the family has already exhausted all their resources in the last two years, on the boy's medication, they have started a fundraiser to raise money for his further treatment. His mother Devi said: ‘It is the curse of the God that my son was born like this and I am worried about his future. ‘I’m afraid he might struggle to lead a no
    MEGA177869_001.jpg
  • A 75-year-old man suffering from a rare disease has grown a Hellboy-like horn on his head. Shyamal Lal Yadav, hailing from Sagar district of Madhya Pradesh in central India, suffered an injury on his head five years ago. Yadav claims that a horn-like structure started developing in the middle of his head after that. Yadav saw several doctors, but ‘all of them looked clueless’. He finally got the horn sliced with the help of a barber. “I thought to myself finally I had got good riddance from the devil’s horn. But my happiness was short-lived,” said Yadav. As feared, the horn started to grow back on his head and he was completely clueless about his next course of action Fortunately, the growth did not cause any physical discomfort or snowball into a medical issue. But, it had certainly made him a laughing stock. He was embarrassed to roam around in public with the unnatural growth on his head. “I kept doing the rounds of hospitals, but nothing happened. Then I asked my barber to cut the horn with the shaving blade. He did manage to cut it off, but the horn grew back in some time at the same spot,” said the ‘real-life Hellboy’. According to Yadav, he travelled to Bhopal (around 170km from Sagar) and Nagpur (around 388km from his home) to consult senior experts, however, had to come back as he could not afford the cost of the operation. The medical fraternity was in a tizzy as they hadn’t witnessed anything like that. His quest finally ended at a private clinic run by Dr. Vishal Gajbhiye in his home town Sagar. Dr. Gajbhiye said,” “The four-inch horn was solid and had sizable thickness.” The physician carried out a CT scan to ensure that the horn wasn’t deep enough to require the intervention of a neurosurgeon. The physician went ahead with the head surgery to remove the horn. After the horn was removed, the surgeons used the skin of Yadav’s forehead to fill up the gap through plastic surgery. Dr. Gajbhiye calls it a rare case and claimed t
    MEGA503504_002.jpg
  • A 75-year-old man suffering from a rare disease has grown a Hellboy-like horn on his head. Shyamal Lal Yadav, hailing from Sagar district of Madhya Pradesh in central India, suffered an injury on his head five years ago. Yadav claims that a horn-like structure started developing in the middle of his head after that. Yadav saw several doctors, but ‘all of them looked clueless’. He finally got the horn sliced with the help of a barber. “I thought to myself finally I had got good riddance from the devil’s horn. But my happiness was short-lived,” said Yadav. As feared, the horn started to grow back on his head and he was completely clueless about his next course of action Fortunately, the growth did not cause any physical discomfort or snowball into a medical issue. But, it had certainly made him a laughing stock. He was embarrassed to roam around in public with the unnatural growth on his head. “I kept doing the rounds of hospitals, but nothing happened. Then I asked my barber to cut the horn with the shaving blade. He did manage to cut it off, but the horn grew back in some time at the same spot,” said the ‘real-life Hellboy’. According to Yadav, he travelled to Bhopal (around 170km from Sagar) and Nagpur (around 388km from his home) to consult senior experts, however, had to come back as he could not afford the cost of the operation. The medical fraternity was in a tizzy as they hadn’t witnessed anything like that. His quest finally ended at a private clinic run by Dr. Vishal Gajbhiye in his home town Sagar. Dr. Gajbhiye said,” “The four-inch horn was solid and had sizable thickness.” The physician carried out a CT scan to ensure that the horn wasn’t deep enough to require the intervention of a neurosurgeon. The physician went ahead with the head surgery to remove the horn. After the horn was removed, the surgeons used the skin of Yadav’s forehead to fill up the gap through plastic surgery. Dr. Gajbhiye calls it a rare case and claimed t
    MEGA503504_001.jpg
  • EXCLUSIVE: A 21-year-old woman delivered a baby with two heads and three hands, sending doctors of the state-run facility into a tizzy in central India. Babita Ahirwar, a resident of Basauda village in Vidisha district of Madhya Pradesh, delivered the baby around 7:30 am on November 23 through C-section. Babita was married to Jaswant Ahirwar around one and a half years ago. The couple which was eagerly waiting to welcome their first baby was devastated after seeing the infant born with a deformity. "It was a mixed feeling when the nurses handed over the baby to me. Initially, I thought it was a twin, but when the nurses removed the towel, I was shocked to see our firstborn with two heads and three hands. All we wanted was a normal and healthy baby, but the almighty wanted to punish us this way. I don't know why," said new mom Babita told Newslions. Dr Surendra Sonkar of Vidisha Sadar hospital said: "On Saturday morning around 7:30 am, we facilitated the delivery of a baby through C-section. The baby had two heads and three hands. The third hand had two palms attached to it. "There is only one heart visible in the newborn. This is a very rare condition and this is the first time. I have come across such a case in my career," he said. "We had initially kept the baby in the ICU, but we thought it was better to refer them to a better-equipped facility in Bhopal," he added. At present, the baby is undergoing treatment at Bhopal's Hamidi Medical College and Hospital. 23 Nov 2019 Pictured: Baby born with two heads and three hands in central India. Photo credit: Newslions Media / MEGA TheMegaAgency.com +1 888 505 6342
    MEGA555409_006.jpg
  • EXCLUSIVE: A 21-year-old woman delivered a baby with two heads and three hands, sending doctors of the state-run facility into a tizzy in central India. Babita Ahirwar, a resident of Basauda village in Vidisha district of Madhya Pradesh, delivered the baby around 7:30 am on November 23 through C-section. Babita was married to Jaswant Ahirwar around one and a half years ago. The couple which was eagerly waiting to welcome their first baby was devastated after seeing the infant born with a deformity. "It was a mixed feeling when the nurses handed over the baby to me. Initially, I thought it was a twin, but when the nurses removed the towel, I was shocked to see our firstborn with two heads and three hands. All we wanted was a normal and healthy baby, but the almighty wanted to punish us this way. I don't know why," said new mom Babita told Newslions. Dr Surendra Sonkar of Vidisha Sadar hospital said: "On Saturday morning around 7:30 am, we facilitated the delivery of a baby through C-section. The baby had two heads and three hands. The third hand had two palms attached to it. "There is only one heart visible in the newborn. This is a very rare condition and this is the first time. I have come across such a case in my career," he said. "We had initially kept the baby in the ICU, but we thought it was better to refer them to a better-equipped facility in Bhopal," he added. At present, the baby is undergoing treatment at Bhopal's Hamidi Medical College and Hospital. 23 Nov 2019 Pictured: Baby born with two heads and three hands in central India. Photo credit: Newslions Media / MEGA TheMegaAgency.com +1 888 505 6342
    MEGA555409_005.jpg
  • EXCLUSIVE: A 21-year-old woman delivered a baby with two heads and three hands, sending doctors of the state-run facility into a tizzy in central India. Babita Ahirwar, a resident of Basauda village in Vidisha district of Madhya Pradesh, delivered the baby around 7:30 am on November 23 through C-section. Babita was married to Jaswant Ahirwar around one and a half years ago. The couple which was eagerly waiting to welcome their first baby was devastated after seeing the infant born with a deformity. "It was a mixed feeling when the nurses handed over the baby to me. Initially, I thought it was a twin, but when the nurses removed the towel, I was shocked to see our firstborn with two heads and three hands. All we wanted was a normal and healthy baby, but the almighty wanted to punish us this way. I don't know why," said new mom Babita told Newslions. Dr Surendra Sonkar of Vidisha Sadar hospital said: "On Saturday morning around 7:30 am, we facilitated the delivery of a baby through C-section. The baby had two heads and three hands. The third hand had two palms attached to it. "There is only one heart visible in the newborn. This is a very rare condition and this is the first time. I have come across such a case in my career," he said. "We had initially kept the baby in the ICU, but we thought it was better to refer them to a better-equipped facility in Bhopal," he added. At present, the baby is undergoing treatment at Bhopal's Hamidi Medical College and Hospital. 23 Nov 2019 Pictured: Baby born with two heads and three hands in central India. Photo credit: Newslions Media / MEGA TheMegaAgency.com +1 888 505 6342
    MEGA555409_003.jpg
  • EXCLUSIVE: A 21-year-old woman delivered a baby with two heads and three hands, sending doctors of the state-run facility into a tizzy in central India. Babita Ahirwar, a resident of Basauda village in Vidisha district of Madhya Pradesh, delivered the baby around 7:30 am on November 23 through C-section. Babita was married to Jaswant Ahirwar around one and a half years ago. The couple which was eagerly waiting to welcome their first baby was devastated after seeing the infant born with a deformity. "It was a mixed feeling when the nurses handed over the baby to me. Initially, I thought it was a twin, but when the nurses removed the towel, I was shocked to see our firstborn with two heads and three hands. All we wanted was a normal and healthy baby, but the almighty wanted to punish us this way. I don't know why," said new mom Babita told Newslions. Dr Surendra Sonkar of Vidisha Sadar hospital said: "On Saturday morning around 7:30 am, we facilitated the delivery of a baby through C-section. The baby had two heads and three hands. The third hand had two palms attached to it. "There is only one heart visible in the newborn. This is a very rare condition and this is the first time. I have come across such a case in my career," he said. "We had initially kept the baby in the ICU, but we thought it was better to refer them to a better-equipped facility in Bhopal," he added. At present, the baby is undergoing treatment at Bhopal's Hamidi Medical College and Hospital. 23 Nov 2019 Pictured: Baby born with two heads and three hands in central India. Photo credit: Newslions Media / MEGA TheMegaAgency.com +1 888 505 6342
    MEGA555409_013.jpg
  • EXCLUSIVE: A 21-year-old woman delivered a baby with two heads and three hands, sending doctors of the state-run facility into a tizzy in central India. Babita Ahirwar, a resident of Basauda village in Vidisha district of Madhya Pradesh, delivered the baby around 7:30 am on November 23 through C-section. Babita was married to Jaswant Ahirwar around one and a half years ago. The couple which was eagerly waiting to welcome their first baby was devastated after seeing the infant born with a deformity. "It was a mixed feeling when the nurses handed over the baby to me. Initially, I thought it was a twin, but when the nurses removed the towel, I was shocked to see our firstborn with two heads and three hands. All we wanted was a normal and healthy baby, but the almighty wanted to punish us this way. I don't know why," said new mom Babita told Newslions. Dr Surendra Sonkar of Vidisha Sadar hospital said: "On Saturday morning around 7:30 am, we facilitated the delivery of a baby through C-section. The baby had two heads and three hands. The third hand had two palms attached to it. "There is only one heart visible in the newborn. This is a very rare condition and this is the first time. I have come across such a case in my career," he said. "We had initially kept the baby in the ICU, but we thought it was better to refer them to a better-equipped facility in Bhopal," he added. At present, the baby is undergoing treatment at Bhopal's Hamidi Medical College and Hospital. 23 Nov 2019 Pictured: Baby born with two heads and three hands in central India. Photo credit: Newslions Media / MEGA TheMegaAgency.com +1 888 505 6342
    MEGA555409_015.jpg
  • EXCLUSIVE: A 21-year-old woman delivered a baby with two heads and three hands, sending doctors of the state-run facility into a tizzy in central India. Babita Ahirwar, a resident of Basauda village in Vidisha district of Madhya Pradesh, delivered the baby around 7:30 am on November 23 through C-section. Babita was married to Jaswant Ahirwar around one and a half years ago. The couple which was eagerly waiting to welcome their first baby was devastated after seeing the infant born with a deformity. "It was a mixed feeling when the nurses handed over the baby to me. Initially, I thought it was a twin, but when the nurses removed the towel, I was shocked to see our firstborn with two heads and three hands. All we wanted was a normal and healthy baby, but the almighty wanted to punish us this way. I don't know why," said new mom Babita told Newslions. Dr Surendra Sonkar of Vidisha Sadar hospital said: "On Saturday morning around 7:30 am, we facilitated the delivery of a baby through C-section. The baby had two heads and three hands. The third hand had two palms attached to it. "There is only one heart visible in the newborn. This is a very rare condition and this is the first time. I have come across such a case in my career," he said. "We had initially kept the baby in the ICU, but we thought it was better to refer them to a better-equipped facility in Bhopal," he added. At present, the baby is undergoing treatment at Bhopal's Hamidi Medical College and Hospital. 23 Nov 2019 Pictured: Baby born with two heads and three hands in central India. Photo credit: Newslions Media / MEGA TheMegaAgency.com +1 888 505 6342
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  • By Sudipto Maity in India A man was arrested by police in India's central Madhya Pradesh state after reports emerged of him inserting a rubber grip of a moped handle into his wife's privates. The heinous crime took place two year's ago, but hit the headlines after the victim reached hospital in Indore city, unable to bear the excruciating pain. Fortunately for her, doctors at the Maharaja Yeshwantrao Hospital were able to extract the handle out of her body after a grueling four-hour-long operation, but, her condition still remains critical. The grip reached the 30-year-old victim's urine bladder, uterus and small intestine, causing an infection that had spread into the area as the rubber remained stuck. Doctors said if not operated, the infection would have spread to other body parts as well. The said operation was led by Dr S Bhattacharya. Others, included Dr. R K Mathur, Dr. S Moses, Dr. S S Sharma, Dr. S Verma, Dr. S Joshi, Dr. A Solanki, Dr S Memon, Dr. K S Tiwari, Dr. D Shukla, Dr. P Dayal, Dr. K Arora and Dr. P Jain. The man had committed the crime after the couple got into an argument over his alleged extra marital affair. Reports said the accused was so angry with the wife's behavior, he decided to get her drunk and insert the rubber grip. Strangely, the woman kept the incident hidden till the pain became unbearable for her and had to take help of doctors. Earlier, she had even complained to the police against her husband's unruly behaviour, which she alleged fell into deaf ears. The victim had also contemplated checking up with the doctors, but refrained as she fell short of cash. However, when the infection spread and made it difficult for her to walk, she decided to get herself treated. The accused has been identified as Prakash Bhil. The couple fell in love and tied the knot in 2005. Together, they have six children, five daughters and a son. Prakash works in a band. The woman said she grew suspicious after reports of her husband dating another woman, Ra
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  • By Sudipto Maity in India A man was arrested by police in India's central Madhya Pradesh state after reports emerged of him inserting a rubber grip of a moped handle into his wife's privates. The heinous crime took place two year's ago, but hit the headlines after the victim reached hospital in Indore city, unable to bear the excruciating pain. Fortunately for her, doctors at the Maharaja Yeshwantrao Hospital were able to extract the handle out of her body after a grueling four-hour-long operation, but, her condition still remains critical. The grip reached the 30-year-old victim's urine bladder, uterus and small intestine, causing an infection that had spread into the area as the rubber remained stuck. Doctors said if not operated, the infection would have spread to other body parts as well. The said operation was led by Dr S Bhattacharya. Others, included Dr. R K Mathur, Dr. S Moses, Dr. S S Sharma, Dr. S Verma, Dr. S Joshi, Dr. A Solanki, Dr S Memon, Dr. K S Tiwari, Dr. D Shukla, Dr. P Dayal, Dr. K Arora and Dr. P Jain. The man had committed the crime after the couple got into an argument over his alleged extra marital affair. Reports said the accused was so angry with the wife's behavior, he decided to get her drunk and insert the rubber grip. Strangely, the woman kept the incident hidden till the pain became unbearable for her and had to take help of doctors. Earlier, she had even complained to the police against her husband's unruly behaviour, which she alleged fell into deaf ears. The victim had also contemplated checking up with the doctors, but refrained as she fell short of cash. However, when the infection spread and made it difficult for her to walk, she decided to get herself treated. The accused has been identified as Prakash Bhil. The couple fell in love and tied the knot in 2005. Together, they have six children, five daughters and a son. Prakash works in a band. The woman said she grew suspicious after reports of her husband dating another woman, Ra
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  • EXCLUSIVE: 2 1/2 year old Leo Vauclare has testing done in Morristown, NJ. His parents Deborah and Antoine Vauclare(pictured) help him through the tests which are part of a study Leo is participating in since he has been diagnosed with a rare neurological disease. The neurodegenerative condition, called Infantile Neuroaxonal Dystrophy (INAD), has no known treatment or cure. Only about 150 children worldwide are currently diagnosed with the disease. Like other neurodegenerative diseases, it leads to a dangerous iron buildup in patients’ bodies, leading to poor motor function, involuntary eye movements, seizures, hearing loss and difficulty swallowing and breathing. Heartbreakingly, the life expectancy for such children is often just 5 to 10 years. **NO NEW YORK DAILY NEWS, NO NEW YORK TIMES, NO NEWSDAY**. 11 Nov 2018 Pictured: Deborah and Antoine Vauclare with their son Leo. Photo credit: Brian Zak/NY Post/MEGA TheMegaAgency.com +1 888 505 6342
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  • EXCLUSIVE: 2 1/2 year old Leo Vauclare has testing done in Morristown, NJ. His parents Deborah and Antoine Vauclare(pictured) help him through the tests which are part of a study Leo is participating in since he has been diagnosed with a rare neurological disease. The neurodegenerative condition, called Infantile Neuroaxonal Dystrophy (INAD), has no known treatment or cure. Only about 150 children worldwide are currently diagnosed with the disease. Like other neurodegenerative diseases, it leads to a dangerous iron buildup in patients’ bodies, leading to poor motor function, involuntary eye movements, seizures, hearing loss and difficulty swallowing and breathing. Heartbreakingly, the life expectancy for such children is often just 5 to 10 years. **NO NEW YORK DAILY NEWS, NO NEW YORK TIMES, NO NEWSDAY**. 11 Nov 2018 Pictured: Deborah and Antoine Vauclare with their son Leo. Photo credit: Brian Zak/NY Post/MEGA TheMegaAgency.com +1 888 505 6342
    MEGA314188_005.jpg
  • EXCLUSIVE: 2 1/2 year old Leo Vauclare has testing done in Morristown, NJ. His parents Deborah and Antoine Vauclare(pictured) help him through the tests which are part of a study Leo is participating in since he has been diagnosed with a rare neurological disease. The neurodegenerative condition, called Infantile Neuroaxonal Dystrophy (INAD), has no known treatment or cure. Only about 150 children worldwide are currently diagnosed with the disease. Like other neurodegenerative diseases, it leads to a dangerous iron buildup in patients’ bodies, leading to poor motor function, involuntary eye movements, seizures, hearing loss and difficulty swallowing and breathing. Heartbreakingly, the life expectancy for such children is often just 5 to 10 years. **NO NEW YORK DAILY NEWS, NO NEW YORK TIMES, NO NEWSDAY**. 11 Nov 2018 Pictured: Deborah and Antoine Vauclare with their son Leo. Photo credit: Brian Zak/NY Post/MEGA TheMegaAgency.com +1 888 505 6342
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  • Beyonce buys an old stone church in New Orleans, adding to her ever growing real-estate portfolio. The Church is located in the expensive Garden District area of New Orleans. Part of the building still has a painted wall sign saying "Christian High School" and a stone plaque which says "First Christian Church 1845 - 1907" although its thought it was built in the early 1900s. It has been out of commission as a place of worship for some time due to its church members passing away. It was listed on the market on March 13,2018 for $849,000 and went under contract March 22 2018. The sale was finalized on May 5th for higher than the asking price at $850,000. The over 100 year old property details include: It has 2 car storage spaces. Lot size 54x125. Two stories. Approx. 7500 square feet. 2 beds 1 1/2 bath. Stone structure, 45x45 congregation area with 18ft ceilings, hardwood floors, living area with 15 ft ceilings, all In average condition with a lot of deferred maintenance, including mold and mildew issues. 20 May 2018 Pictured: GVs of Beyonce's First Christian Church building in New Orleans. Photo credit: MEGA TheMegaAgency.com +1 888 505 6342
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  • Beyonce buys an old stone church in New Orleans, adding to her ever growing real-estate portfolio. The Church is located in the expensive Garden District area of New Orleans. Part of the building still has a painted wall sign saying "Christian High School" and a stone plaque which says "First Christian Church 1845 - 1907" although its thought it was built in the early 1900s. It has been out of commission as a place of worship for some time due to its church members passing away. It was listed on the market on March 13,2018 for $849,000 and went under contract March 22 2018. The sale was finalized on May 5th for higher than the asking price at $850,000. The over 100 year old property details include: It has 2 car storage spaces. Lot size 54x125. Two stories. Approx. 7500 square feet. 2 beds 1 1/2 bath. Stone structure, 45x45 congregation area with 18ft ceilings, hardwood floors, living area with 15 ft ceilings, all In average condition with a lot of deferred maintenance, including mold and mildew issues. 20 May 2018 Pictured: GVs of Beyonce's First Christian Church building in New Orleans. Photo credit: MEGA TheMegaAgency.com +1 888 505 6342
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  • April 27, 2018 - Krakow, Poland - A rose flower seen in tribute for the life of Alfie Evans during a rally organized by a conservative nationalist association in front of the consulate of Great Britain in Krakow. Alfie Evans is a 2 years old young boy, with a serious undiagnosed brain condition. The Italian government has granted Alfie Evans an Italian citizenship to bring him to Italy but the British courts have refused to allow the child, who still continues to fight after being taken off life support earlier this week, to be transferred to Italy. (Credit Image: © Omar Marques/SOPA Images via ZUMA Wire)
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  • EXCLUSIVE: Crew member for Motley Crue movie 'The Dirt' is rushed to hospital after being electrocuted while working on the rooftop of the set in New Orleans. The man had be be lowered in a crane by ambulance workers. visible signs of electricity burns could be seen on his foot and chest. His current condition is unknown. The members of Motley Crue are all co-producers for the movie. ( Vince Neil, Tommy Lee, Mick Mark, Nikki Sixx). 10 Mar 2018 Pictured: EMS attends to 'The Dirt' Motley Crue movie crew member. Photo credit: MEGA TheMegaAgency.com +1 888 505 6342
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  • EXCLUSIVE: Crew member for Motley Crue movie 'The Dirt' is rushed to hospital after being electrocuted while working on the rooftop of the set in New Orleans. The man had be be lowered in a crane by ambulance workers. visible signs of electricity burns could be seen on his foot and chest. His current condition is unknown. The members of Motley Crue are all co-producers for the movie. ( Vince Neil, Tommy Lee, Mick Mark, Nikki Sixx). 10 Mar 2018 Pictured: EMS attends to 'The Dirt' Motley Crue movie crew member. Photo credit: MEGA TheMegaAgency.com +1 888 505 6342
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  • EXCLUSIVE: Crew member for Motley Crue movie 'The Dirt' is rushed to hospital after being electrocuted while working on the rooftop of the set in New Orleans. The man had be be lowered in a crane by ambulance workers. visible signs of electricity burns could be seen on his foot and chest. His current condition is unknown. The members of Motley Crue are all co-producers for the movie. ( Vince Neil, Tommy Lee, Mick Mark, Nikki Sixx). 10 Mar 2018 Pictured: EMS attends to 'The Dirt' Motley Crue movie crew member. Photo credit: MEGA TheMegaAgency.com +1 888 505 6342
    MEGA180006_015.jpg
  • EXCLUSIVE: Crew member for Motley Crue movie 'The Dirt' is rushed to hospital after being electrocuted while working on the rooftop of the set in New Orleans. The man had be be lowered in a crane by ambulance workers. visible signs of electricity burns could be seen on his foot and chest. His current condition is unknown. The members of Motley Crue are all co-producers for the movie. ( Vince Neil, Tommy Lee, Mick Mark, Nikki Sixx). 10 Mar 2018 Pictured: EMS attends to 'The Dirt' Motley Crue movie crew member. Photo credit: MEGA TheMegaAgency.com +1 888 505 6342
    MEGA180006_017.jpg
  • EXCLUSIVE: Crew member for Motley Crue movie 'The Dirt' is rushed to hospital after being electrocuted while working on the rooftop of the set in New Orleans. The man had be be lowered in a crane by ambulance workers. visible signs of electricity burns could be seen on his foot and chest. His current condition is unknown. The members of Motley Crue are all co-producers for the movie. ( Vince Neil, Tommy Lee, Mick Mark, Nikki Sixx). 10 Mar 2018 Pictured: EMS attends to 'The Dirt' Motley Crue movie crew member. Photo credit: MEGA TheMegaAgency.com +1 888 505 6342
    MEGA180006_018.jpg
  • EXCLUSIVE: Crew member for Motley Crue movie 'The Dirt' is rushed to hospital after being electrocuted while working on the rooftop of the set in New Orleans. The man had be be lowered in a crane by ambulance workers. visible signs of electricity burns could be seen on his foot and chest. His current condition is unknown. The members of Motley Crue are all co-producers for the movie. ( Vince Neil, Tommy Lee, Mick Mark, Nikki Sixx). 10 Mar 2018 Pictured: EMS attends to 'The Dirt' Motley Crue movie crew member. Photo credit: MEGA TheMegaAgency.com +1 888 505 6342
    MEGA180006_026.jpg
  • EXCLUSIVE: Crew member for Motley Crue movie 'The Dirt' is rushed to hospital after being electrocuted while working on the rooftop of the set in New Orleans. The man had be be lowered in a crane by ambulance workers. visible signs of electricity burns could be seen on his foot and chest. His current condition is unknown. The members of Motley Crue are all co-producers for the movie. ( Vince Neil, Tommy Lee, Mick Mark, Nikki Sixx). 10 Mar 2018 Pictured: EMS attends to 'The Dirt' Motley Crue movie crew member. Photo credit: MEGA TheMegaAgency.com +1 888 505 6342
    MEGA180006_024.jpg
  • EXCLUSIVE: Crew member for Motley Crue movie 'The Dirt' is rushed to hospital after being electrocuted while working on the rooftop of the set in New Orleans. The man had be be lowered in a crane by ambulance workers. visible signs of electricity burns could be seen on his foot and chest. His current condition is unknown. The members of Motley Crue are all co-producers for the movie. ( Vince Neil, Tommy Lee, Mick Mark, Nikki Sixx). 10 Mar 2018 Pictured: EMS attends to 'The Dirt' Motley Crue movie crew member. Photo credit: MEGA TheMegaAgency.com +1 888 505 6342
    MEGA180006_022.jpg
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