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  • EXCLUSIVE: Boy with webbed fingers, toes treated like a pariah in the neighborhood and at school, poor parents pin hope on crowdfunding to get their child treated By Sanjay Pandey in India Twelve-year-old Mannu Kumar is treated like a pariah in his neighborhood and at school because of his appearance. Mannu, standard III student, cannot run around like a regular boy of his age. He can't use hands for eating or any other purpose, nor can he wear shoes or slippers. Mannu suffers from Syndactyly, a rare genetic condition, because of which his hands and feet are fused-like. The disease causes abnormal fusion of hands and feet. The rare condition only affects one in 10 lakh people. Mannu, who hails from the Koderma of the east Indian state of Jharkhand, is the eldest child of Anand Kumar, a small-time grocery shop owner, and Rani Devi, a housewife. Mannu also has one sister and the medical expenses of his condition are quite a burden on the family. His parents have spent a fortune on his treatment in the last two years. They have sold family property and jewelry to arrange funds for the boy's medication and diagnosis. Since his parents are uneducated they couldn't pick on the early signs of the disease and his diagnosis was made only this year in July. Now it is in an advanced stage and doctors have told them that it would take at least Rs 10 lakh for reconstructing Mannu’s hands and feet. Doctors informed the parents that the estimated cost of treatment, including neuro and plastic surgery procedures, would come to approximately Rs 10 lakh. Moreover, the family would have to shell out Rs 5 lakh for the treatment process to begin. Since the family has already exhausted all their resources in the last two years, on the boy's medication, they have started a fundraiser to raise money for his further treatment. His mother Devi said: ‘It is the curse of the God that my son was born like this and I am worried about his future. ‘I’m afraid he might struggle to lead a no
    MEGA177869_008.jpg
  • EXCLUSIVE: Boy with webbed fingers, toes treated like a pariah in the neighborhood and at school, poor parents pin hope on crowdfunding to get their child treated By Sanjay Pandey in India Twelve-year-old Mannu Kumar is treated like a pariah in his neighborhood and at school because of his appearance. Mannu, standard III student, cannot run around like a regular boy of his age. He can't use hands for eating or any other purpose, nor can he wear shoes or slippers. Mannu suffers from Syndactyly, a rare genetic condition, because of which his hands and feet are fused-like. The disease causes abnormal fusion of hands and feet. The rare condition only affects one in 10 lakh people. Mannu, who hails from the Koderma of the east Indian state of Jharkhand, is the eldest child of Anand Kumar, a small-time grocery shop owner, and Rani Devi, a housewife. Mannu also has one sister and the medical expenses of his condition are quite a burden on the family. His parents have spent a fortune on his treatment in the last two years. They have sold family property and jewelry to arrange funds for the boy's medication and diagnosis. Since his parents are uneducated they couldn't pick on the early signs of the disease and his diagnosis was made only this year in July. Now it is in an advanced stage and doctors have told them that it would take at least Rs 10 lakh for reconstructing Mannu’s hands and feet. Doctors informed the parents that the estimated cost of treatment, including neuro and plastic surgery procedures, would come to approximately Rs 10 lakh. Moreover, the family would have to shell out Rs 5 lakh for the treatment process to begin. Since the family has already exhausted all their resources in the last two years, on the boy's medication, they have started a fundraiser to raise money for his further treatment. His mother Devi said: ‘It is the curse of the God that my son was born like this and I am worried about his future. ‘I’m afraid he might struggle to lead a no
    MEGA177869_002.jpg
  • EXCLUSIVE: Boy with webbed fingers, toes treated like a pariah in the neighborhood and at school, poor parents pin hope on crowdfunding to get their child treated By Sanjay Pandey in India Twelve-year-old Mannu Kumar is treated like a pariah in his neighborhood and at school because of his appearance. Mannu, standard III student, cannot run around like a regular boy of his age. He can't use hands for eating or any other purpose, nor can he wear shoes or slippers. Mannu suffers from Syndactyly, a rare genetic condition, because of which his hands and feet are fused-like. The disease causes abnormal fusion of hands and feet. The rare condition only affects one in 10 lakh people. Mannu, who hails from the Koderma of the east Indian state of Jharkhand, is the eldest child of Anand Kumar, a small-time grocery shop owner, and Rani Devi, a housewife. Mannu also has one sister and the medical expenses of his condition are quite a burden on the family. His parents have spent a fortune on his treatment in the last two years. They have sold family property and jewelry to arrange funds for the boy's medication and diagnosis. Since his parents are uneducated they couldn't pick on the early signs of the disease and his diagnosis was made only this year in July. Now it is in an advanced stage and doctors have told them that it would take at least Rs 10 lakh for reconstructing Mannu’s hands and feet. Doctors informed the parents that the estimated cost of treatment, including neuro and plastic surgery procedures, would come to approximately Rs 10 lakh. Moreover, the family would have to shell out Rs 5 lakh for the treatment process to begin. Since the family has already exhausted all their resources in the last two years, on the boy's medication, they have started a fundraiser to raise money for his further treatment. His mother Devi said: ‘It is the curse of the God that my son was born like this and I am worried about his future. ‘I’m afraid he might struggle to lead a no
    MEGA177869_007.jpg
  • EXCLUSIVE: Boy with webbed fingers, toes treated like a pariah in the neighborhood and at school, poor parents pin hope on crowdfunding to get their child treated By Sanjay Pandey in India Twelve-year-old Mannu Kumar is treated like a pariah in his neighborhood and at school because of his appearance. Mannu, standard III student, cannot run around like a regular boy of his age. He can't use hands for eating or any other purpose, nor can he wear shoes or slippers. Mannu suffers from Syndactyly, a rare genetic condition, because of which his hands and feet are fused-like. The disease causes abnormal fusion of hands and feet. The rare condition only affects one in 10 lakh people. Mannu, who hails from the Koderma of the east Indian state of Jharkhand, is the eldest child of Anand Kumar, a small-time grocery shop owner, and Rani Devi, a housewife. Mannu also has one sister and the medical expenses of his condition are quite a burden on the family. His parents have spent a fortune on his treatment in the last two years. They have sold family property and jewelry to arrange funds for the boy's medication and diagnosis. Since his parents are uneducated they couldn't pick on the early signs of the disease and his diagnosis was made only this year in July. Now it is in an advanced stage and doctors have told them that it would take at least Rs 10 lakh for reconstructing Mannu’s hands and feet. Doctors informed the parents that the estimated cost of treatment, including neuro and plastic surgery procedures, would come to approximately Rs 10 lakh. Moreover, the family would have to shell out Rs 5 lakh for the treatment process to begin. Since the family has already exhausted all their resources in the last two years, on the boy's medication, they have started a fundraiser to raise money for his further treatment. His mother Devi said: ‘It is the curse of the God that my son was born like this and I am worried about his future. ‘I’m afraid he might struggle to lead a no
    MEGA177869_001.jpg
  • EXCLUSIVE: Boy with webbed fingers, toes treated like a pariah in the neighborhood and at school, poor parents pin hope on crowdfunding to get their child treated By Sanjay Pandey in India Twelve-year-old Mannu Kumar is treated like a pariah in his neighborhood and at school because of his appearance. Mannu, standard III student, cannot run around like a regular boy of his age. He can't use hands for eating or any other purpose, nor can he wear shoes or slippers. Mannu suffers from Syndactyly, a rare genetic condition, because of which his hands and feet are fused-like. The disease causes abnormal fusion of hands and feet. The rare condition only affects one in 10 lakh people. Mannu, who hails from the Koderma of the east Indian state of Jharkhand, is the eldest child of Anand Kumar, a small-time grocery shop owner, and Rani Devi, a housewife. Mannu also has one sister and the medical expenses of his condition are quite a burden on the family. His parents have spent a fortune on his treatment in the last two years. They have sold family property and jewelry to arrange funds for the boy's medication and diagnosis. Since his parents are uneducated they couldn't pick on the early signs of the disease and his diagnosis was made only this year in July. Now it is in an advanced stage and doctors have told them that it would take at least Rs 10 lakh for reconstructing Mannu’s hands and feet. Doctors informed the parents that the estimated cost of treatment, including neuro and plastic surgery procedures, would come to approximately Rs 10 lakh. Moreover, the family would have to shell out Rs 5 lakh for the treatment process to begin. Since the family has already exhausted all their resources in the last two years, on the boy's medication, they have started a fundraiser to raise money for his further treatment. His mother Devi said: ‘It is the curse of the God that my son was born like this and I am worried about his future. ‘I’m afraid he might struggle to lead a no
    MEGA177869_006.jpg
  • EXCLUSIVE: Boy with webbed fingers, toes treated like a pariah in the neighborhood and at school, poor parents pin hope on crowdfunding to get their child treated By Sanjay Pandey in India Twelve-year-old Mannu Kumar is treated like a pariah in his neighborhood and at school because of his appearance. Mannu, standard III student, cannot run around like a regular boy of his age. He can't use hands for eating or any other purpose, nor can he wear shoes or slippers. Mannu suffers from Syndactyly, a rare genetic condition, because of which his hands and feet are fused-like. The disease causes abnormal fusion of hands and feet. The rare condition only affects one in 10 lakh people. Mannu, who hails from the Koderma of the east Indian state of Jharkhand, is the eldest child of Anand Kumar, a small-time grocery shop owner, and Rani Devi, a housewife. Mannu also has one sister and the medical expenses of his condition are quite a burden on the family. His parents have spent a fortune on his treatment in the last two years. They have sold family property and jewelry to arrange funds for the boy's medication and diagnosis. Since his parents are uneducated they couldn't pick on the early signs of the disease and his diagnosis was made only this year in July. Now it is in an advanced stage and doctors have told them that it would take at least Rs 10 lakh for reconstructing Mannu’s hands and feet. Doctors informed the parents that the estimated cost of treatment, including neuro and plastic surgery procedures, would come to approximately Rs 10 lakh. Moreover, the family would have to shell out Rs 5 lakh for the treatment process to begin. Since the family has already exhausted all their resources in the last two years, on the boy's medication, they have started a fundraiser to raise money for his further treatment. His mother Devi said: ‘It is the curse of the God that my son was born like this and I am worried about his future. ‘I’m afraid he might struggle to lead a no
    MEGA177869_005.jpg
  • EXCLUSIVE: Boy with webbed fingers, toes treated like a pariah in the neighborhood and at school, poor parents pin hope on crowdfunding to get their child treated By Sanjay Pandey in India Twelve-year-old Mannu Kumar is treated like a pariah in his neighborhood and at school because of his appearance. Mannu, standard III student, cannot run around like a regular boy of his age. He can't use hands for eating or any other purpose, nor can he wear shoes or slippers. Mannu suffers from Syndactyly, a rare genetic condition, because of which his hands and feet are fused-like. The disease causes abnormal fusion of hands and feet. The rare condition only affects one in 10 lakh people. Mannu, who hails from the Koderma of the east Indian state of Jharkhand, is the eldest child of Anand Kumar, a small-time grocery shop owner, and Rani Devi, a housewife. Mannu also has one sister and the medical expenses of his condition are quite a burden on the family. His parents have spent a fortune on his treatment in the last two years. They have sold family property and jewelry to arrange funds for the boy's medication and diagnosis. Since his parents are uneducated they couldn't pick on the early signs of the disease and his diagnosis was made only this year in July. Now it is in an advanced stage and doctors have told them that it would take at least Rs 10 lakh for reconstructing Mannu’s hands and feet. Doctors informed the parents that the estimated cost of treatment, including neuro and plastic surgery procedures, would come to approximately Rs 10 lakh. Moreover, the family would have to shell out Rs 5 lakh for the treatment process to begin. Since the family has already exhausted all their resources in the last two years, on the boy's medication, they have started a fundraiser to raise money for his further treatment. His mother Devi said: ‘It is the curse of the God that my son was born like this and I am worried about his future. ‘I’m afraid he might struggle to lead a no
    MEGA177869_009.jpg
  • EXCLUSIVE: Boy with webbed fingers, toes treated like a pariah in the neighborhood and at school, poor parents pin hope on crowdfunding to get their child treated By Sanjay Pandey in India Twelve-year-old Mannu Kumar is treated like a pariah in his neighborhood and at school because of his appearance. Mannu, standard III student, cannot run around like a regular boy of his age. He can't use hands for eating or any other purpose, nor can he wear shoes or slippers. Mannu suffers from Syndactyly, a rare genetic condition, because of which his hands and feet are fused-like. The disease causes abnormal fusion of hands and feet. The rare condition only affects one in 10 lakh people. Mannu, who hails from the Koderma of the east Indian state of Jharkhand, is the eldest child of Anand Kumar, a small-time grocery shop owner, and Rani Devi, a housewife. Mannu also has one sister and the medical expenses of his condition are quite a burden on the family. His parents have spent a fortune on his treatment in the last two years. They have sold family property and jewelry to arrange funds for the boy's medication and diagnosis. Since his parents are uneducated they couldn't pick on the early signs of the disease and his diagnosis was made only this year in July. Now it is in an advanced stage and doctors have told them that it would take at least Rs 10 lakh for reconstructing Mannu’s hands and feet. Doctors informed the parents that the estimated cost of treatment, including neuro and plastic surgery procedures, would come to approximately Rs 10 lakh. Moreover, the family would have to shell out Rs 5 lakh for the treatment process to begin. Since the family has already exhausted all their resources in the last two years, on the boy's medication, they have started a fundraiser to raise money for his further treatment. His mother Devi said: ‘It is the curse of the God that my son was born like this and I am worried about his future. ‘I’m afraid he might struggle to lead a no
    MEGA177869_011.jpg
  • EXCLUSIVE: Boy with webbed fingers, toes treated like a pariah in the neighborhood and at school, poor parents pin hope on crowdfunding to get their child treated By Sanjay Pandey in India Twelve-year-old Mannu Kumar is treated like a pariah in his neighborhood and at school because of his appearance. Mannu, standard III student, cannot run around like a regular boy of his age. He can't use hands for eating or any other purpose, nor can he wear shoes or slippers. Mannu suffers from Syndactyly, a rare genetic condition, because of which his hands and feet are fused-like. The disease causes abnormal fusion of hands and feet. The rare condition only affects one in 10 lakh people. Mannu, who hails from the Koderma of the east Indian state of Jharkhand, is the eldest child of Anand Kumar, a small-time grocery shop owner, and Rani Devi, a housewife. Mannu also has one sister and the medical expenses of his condition are quite a burden on the family. His parents have spent a fortune on his treatment in the last two years. They have sold family property and jewelry to arrange funds for the boy's medication and diagnosis. Since his parents are uneducated they couldn't pick on the early signs of the disease and his diagnosis was made only this year in July. Now it is in an advanced stage and doctors have told them that it would take at least Rs 10 lakh for reconstructing Mannu’s hands and feet. Doctors informed the parents that the estimated cost of treatment, including neuro and plastic surgery procedures, would come to approximately Rs 10 lakh. Moreover, the family would have to shell out Rs 5 lakh for the treatment process to begin. Since the family has already exhausted all their resources in the last two years, on the boy's medication, they have started a fundraiser to raise money for his further treatment. His mother Devi said: ‘It is the curse of the God that my son was born like this and I am worried about his future. ‘I’m afraid he might struggle to lead a no
    MEGA177869_003.jpg
  • EXCLUSIVE: Boy with webbed fingers, toes treated like a pariah in the neighborhood and at school, poor parents pin hope on crowdfunding to get their child treated By Sanjay Pandey in India Twelve-year-old Mannu Kumar is treated like a pariah in his neighborhood and at school because of his appearance. Mannu, standard III student, cannot run around like a regular boy of his age. He can't use hands for eating or any other purpose, nor can he wear shoes or slippers. Mannu suffers from Syndactyly, a rare genetic condition, because of which his hands and feet are fused-like. The disease causes abnormal fusion of hands and feet. The rare condition only affects one in 10 lakh people. Mannu, who hails from the Koderma of the east Indian state of Jharkhand, is the eldest child of Anand Kumar, a small-time grocery shop owner, and Rani Devi, a housewife. Mannu also has one sister and the medical expenses of his condition are quite a burden on the family. His parents have spent a fortune on his treatment in the last two years. They have sold family property and jewelry to arrange funds for the boy's medication and diagnosis. Since his parents are uneducated they couldn't pick on the early signs of the disease and his diagnosis was made only this year in July. Now it is in an advanced stage and doctors have told them that it would take at least Rs 10 lakh for reconstructing Mannu’s hands and feet. Doctors informed the parents that the estimated cost of treatment, including neuro and plastic surgery procedures, would come to approximately Rs 10 lakh. Moreover, the family would have to shell out Rs 5 lakh for the treatment process to begin. Since the family has already exhausted all their resources in the last two years, on the boy's medication, they have started a fundraiser to raise money for his further treatment. His mother Devi said: ‘It is the curse of the God that my son was born like this and I am worried about his future. ‘I’m afraid he might struggle to lead a no
    MEGA177869_010.jpg
  • EXCLUSIVE: Boy with webbed fingers, toes treated like a pariah in the neighborhood and at school, poor parents pin hope on crowdfunding to get their child treated By Sanjay Pandey in India Twelve-year-old Mannu Kumar is treated like a pariah in his neighborhood and at school because of his appearance. Mannu, standard III student, cannot run around like a regular boy of his age. He can't use hands for eating or any other purpose, nor can he wear shoes or slippers. Mannu suffers from Syndactyly, a rare genetic condition, because of which his hands and feet are fused-like. The disease causes abnormal fusion of hands and feet. The rare condition only affects one in 10 lakh people. Mannu, who hails from the Koderma of the east Indian state of Jharkhand, is the eldest child of Anand Kumar, a small-time grocery shop owner, and Rani Devi, a housewife. Mannu also has one sister and the medical expenses of his condition are quite a burden on the family. His parents have spent a fortune on his treatment in the last two years. They have sold family property and jewelry to arrange funds for the boy's medication and diagnosis. Since his parents are uneducated they couldn't pick on the early signs of the disease and his diagnosis was made only this year in July. Now it is in an advanced stage and doctors have told them that it would take at least Rs 10 lakh for reconstructing Mannu’s hands and feet. Doctors informed the parents that the estimated cost of treatment, including neuro and plastic surgery procedures, would come to approximately Rs 10 lakh. Moreover, the family would have to shell out Rs 5 lakh for the treatment process to begin. Since the family has already exhausted all their resources in the last two years, on the boy's medication, they have started a fundraiser to raise money for his further treatment. His mother Devi said: ‘It is the curse of the God that my son was born like this and I am worried about his future. ‘I’m afraid he might struggle to lead a no
    MEGA177869_004.jpg
  • EXCLUSIVE: A 10-year-old girl suffering from a rare skin disorder is gradually turning into a stone. Scutes shaped as barks -- caused due to mutation of genes -- have spread all over her body. Rajeshwari, hailing from a tribal area in Dantewada district of north Indian state of Chhattisgarh suffers from a case of ichthyosis that causes reddening, scaling and severe blistering of the skin. The incurable disease affects the process of skin regeneration in the human body, making it hard and flaky. Visuals show a heart-wrenching sight of Rajeshwari sitting under a thatched hut with blisters almost covering her whole body. Though the disease doesn't pose any risk to her life, it has made a life 'a living hell'. The disease hinders her daily life, making even simple activities such as walking and sitting very painful. According to reports, the rare genetic condition affects very few people and till now only two dozen cases have been reported in the world. The rarity of the case makes research difficult and the medicine to control the incurable disease has severe side effects. For people residing in the Naxal infested area, availing simple health care is already a mean feat and Rajeshwari's condition requires her to travel to a big city which is difficult for the time being. when doctors were shown the patient's case file, few of them came forward to express their opinions and diagnosis. Speaking about her condition, Dr.Satyaki Ganguly, Associate Professor at All India Institute of Medical Sciences(AIIMS), Raipur, said “ The medical term for this genetic disorder is Ichthyosis Psoriasis and due to very few cases in India, there has not been any major breakthrough in terms of research. Currently, science has no cure for this ailment.” Another dermatologist has another take on Rajeshwari’s case, Dr.Yash Upender from Dantewada Hospital believes that the girl suffers from Epidermolytic Ichthyosis which is not a life threatening disease but is still uncurable. Medication
    MEGA586418_006.jpg
  • EXCLUSIVE: A 10-year-old girl suffering from a rare skin disorder is gradually turning into a stone. Scutes shaped as barks -- caused due to mutation of genes -- have spread all over her body. Rajeshwari, hailing from a tribal area in Dantewada district of north Indian state of Chhattisgarh suffers from a case of ichthyosis that causes reddening, scaling and severe blistering of the skin. The incurable disease affects the process of skin regeneration in the human body, making it hard and flaky. Visuals show a heart-wrenching sight of Rajeshwari sitting under a thatched hut with blisters almost covering her whole body. Though the disease doesn't pose any risk to her life, it has made a life 'a living hell'. The disease hinders her daily life, making even simple activities such as walking and sitting very painful. According to reports, the rare genetic condition affects very few people and till now only two dozen cases have been reported in the world. The rarity of the case makes research difficult and the medicine to control the incurable disease has severe side effects. For people residing in the Naxal infested area, availing simple health care is already a mean feat and Rajeshwari's condition requires her to travel to a big city which is difficult for the time being. when doctors were shown the patient's case file, few of them came forward to express their opinions and diagnosis. Speaking about her condition, Dr.Satyaki Ganguly, Associate Professor at All India Institute of Medical Sciences(AIIMS), Raipur, said “ The medical term for this genetic disorder is Ichthyosis Psoriasis and due to very few cases in India, there has not been any major breakthrough in terms of research. Currently, science has no cure for this ailment.” Another dermatologist has another take on Rajeshwari’s case, Dr.Yash Upender from Dantewada Hospital believes that the girl suffers from Epidermolytic Ichthyosis which is not a life threatening disease but is still uncurable. Medication
    MEGA586418_008.jpg
  • EXCLUSIVE: A 10-year-old girl suffering from a rare skin disorder is gradually turning into a stone. Scutes shaped as barks -- caused due to mutation of genes -- have spread all over her body. Rajeshwari, hailing from a tribal area in Dantewada district of north Indian state of Chhattisgarh suffers from a case of ichthyosis that causes reddening, scaling and severe blistering of the skin. The incurable disease affects the process of skin regeneration in the human body, making it hard and flaky. Visuals show a heart-wrenching sight of Rajeshwari sitting under a thatched hut with blisters almost covering her whole body. Though the disease doesn't pose any risk to her life, it has made a life 'a living hell'. The disease hinders her daily life, making even simple activities such as walking and sitting very painful. According to reports, the rare genetic condition affects very few people and till now only two dozen cases have been reported in the world. The rarity of the case makes research difficult and the medicine to control the incurable disease has severe side effects. For people residing in the Naxal infested area, availing simple health care is already a mean feat and Rajeshwari's condition requires her to travel to a big city which is difficult for the time being. when doctors were shown the patient's case file, few of them came forward to express their opinions and diagnosis. Speaking about her condition, Dr.Satyaki Ganguly, Associate Professor at All India Institute of Medical Sciences(AIIMS), Raipur, said “ The medical term for this genetic disorder is Ichthyosis Psoriasis and due to very few cases in India, there has not been any major breakthrough in terms of research. Currently, science has no cure for this ailment.” Another dermatologist has another take on Rajeshwari’s case, Dr.Yash Upender from Dantewada Hospital believes that the girl suffers from Epidermolytic Ichthyosis which is not a life threatening disease but is still uncurable. Medication
    MEGA586418_007.jpg
  • EXCLUSIVE: A 10-year-old girl suffering from a rare skin disorder is gradually turning into a stone. Scutes shaped as barks -- caused due to mutation of genes -- have spread all over her body. Rajeshwari, hailing from a tribal area in Dantewada district of north Indian state of Chhattisgarh suffers from a case of ichthyosis that causes reddening, scaling and severe blistering of the skin. The incurable disease affects the process of skin regeneration in the human body, making it hard and flaky. Visuals show a heart-wrenching sight of Rajeshwari sitting under a thatched hut with blisters almost covering her whole body. Though the disease doesn't pose any risk to her life, it has made a life 'a living hell'. The disease hinders her daily life, making even simple activities such as walking and sitting very painful. According to reports, the rare genetic condition affects very few people and till now only two dozen cases have been reported in the world. The rarity of the case makes research difficult and the medicine to control the incurable disease has severe side effects. For people residing in the Naxal infested area, availing simple health care is already a mean feat and Rajeshwari's condition requires her to travel to a big city which is difficult for the time being. when doctors were shown the patient's case file, few of them came forward to express their opinions and diagnosis. Speaking about her condition, Dr.Satyaki Ganguly, Associate Professor at All India Institute of Medical Sciences(AIIMS), Raipur, said “ The medical term for this genetic disorder is Ichthyosis Psoriasis and due to very few cases in India, there has not been any major breakthrough in terms of research. Currently, science has no cure for this ailment.” Another dermatologist has another take on Rajeshwari’s case, Dr.Yash Upender from Dantewada Hospital believes that the girl suffers from Epidermolytic Ichthyosis which is not a life threatening disease but is still uncurable. Medication
    MEGA586418_001.jpg
  • EXCLUSIVE: A 10-year-old girl suffering from a rare skin disorder is gradually turning into a stone. Scutes shaped as barks -- caused due to mutation of genes -- have spread all over her body. Rajeshwari, hailing from a tribal area in Dantewada district of north Indian state of Chhattisgarh suffers from a case of ichthyosis that causes reddening, scaling and severe blistering of the skin. The incurable disease affects the process of skin regeneration in the human body, making it hard and flaky. Visuals show a heart-wrenching sight of Rajeshwari sitting under a thatched hut with blisters almost covering her whole body. Though the disease doesn't pose any risk to her life, it has made a life 'a living hell'. The disease hinders her daily life, making even simple activities such as walking and sitting very painful. According to reports, the rare genetic condition affects very few people and till now only two dozen cases have been reported in the world. The rarity of the case makes research difficult and the medicine to control the incurable disease has severe side effects. For people residing in the Naxal infested area, availing simple health care is already a mean feat and Rajeshwari's condition requires her to travel to a big city which is difficult for the time being. when doctors were shown the patient's case file, few of them came forward to express their opinions and diagnosis. Speaking about her condition, Dr.Satyaki Ganguly, Associate Professor at All India Institute of Medical Sciences(AIIMS), Raipur, said “ The medical term for this genetic disorder is Ichthyosis Psoriasis and due to very few cases in India, there has not been any major breakthrough in terms of research. Currently, science has no cure for this ailment.” Another dermatologist has another take on Rajeshwari’s case, Dr.Yash Upender from Dantewada Hospital believes that the girl suffers from Epidermolytic Ichthyosis which is not a life threatening disease but is still uncurable. Medication
    MEGA586418_005.jpg
  • EXCLUSIVE: A 10-year-old girl suffering from a rare skin disorder is gradually turning into a stone. Scutes shaped as barks -- caused due to mutation of genes -- have spread all over her body. Rajeshwari, hailing from a tribal area in Dantewada district of north Indian state of Chhattisgarh suffers from a case of ichthyosis that causes reddening, scaling and severe blistering of the skin. The incurable disease affects the process of skin regeneration in the human body, making it hard and flaky. Visuals show a heart-wrenching sight of Rajeshwari sitting under a thatched hut with blisters almost covering her whole body. Though the disease doesn't pose any risk to her life, it has made a life 'a living hell'. The disease hinders her daily life, making even simple activities such as walking and sitting very painful. According to reports, the rare genetic condition affects very few people and till now only two dozen cases have been reported in the world. The rarity of the case makes research difficult and the medicine to control the incurable disease has severe side effects. For people residing in the Naxal infested area, availing simple health care is already a mean feat and Rajeshwari's condition requires her to travel to a big city which is difficult for the time being. when doctors were shown the patient's case file, few of them came forward to express their opinions and diagnosis. Speaking about her condition, Dr.Satyaki Ganguly, Associate Professor at All India Institute of Medical Sciences(AIIMS), Raipur, said “ The medical term for this genetic disorder is Ichthyosis Psoriasis and due to very few cases in India, there has not been any major breakthrough in terms of research. Currently, science has no cure for this ailment.” Another dermatologist has another take on Rajeshwari’s case, Dr.Yash Upender from Dantewada Hospital believes that the girl suffers from Epidermolytic Ichthyosis which is not a life threatening disease but is still uncurable. Medication
    MEGA586418_002.jpg
  • EXCLUSIVE: A 10-year-old girl suffering from a rare skin disorder is gradually turning into a stone. Scutes shaped as barks -- caused due to mutation of genes -- have spread all over her body. Rajeshwari, hailing from a tribal area in Dantewada district of north Indian state of Chhattisgarh suffers from a case of ichthyosis that causes reddening, scaling and severe blistering of the skin. The incurable disease affects the process of skin regeneration in the human body, making it hard and flaky. Visuals show a heart-wrenching sight of Rajeshwari sitting under a thatched hut with blisters almost covering her whole body. Though the disease doesn't pose any risk to her life, it has made a life 'a living hell'. The disease hinders her daily life, making even simple activities such as walking and sitting very painful. According to reports, the rare genetic condition affects very few people and till now only two dozen cases have been reported in the world. The rarity of the case makes research difficult and the medicine to control the incurable disease has severe side effects. For people residing in the Naxal infested area, availing simple health care is already a mean feat and Rajeshwari's condition requires her to travel to a big city which is difficult for the time being. when doctors were shown the patient's case file, few of them came forward to express their opinions and diagnosis. Speaking about her condition, Dr.Satyaki Ganguly, Associate Professor at All India Institute of Medical Sciences(AIIMS), Raipur, said “ The medical term for this genetic disorder is Ichthyosis Psoriasis and due to very few cases in India, there has not been any major breakthrough in terms of research. Currently, science has no cure for this ailment.” Another dermatologist has another take on Rajeshwari’s case, Dr.Yash Upender from Dantewada Hospital believes that the girl suffers from Epidermolytic Ichthyosis which is not a life threatening disease but is still uncurable. Medication
    MEGA586418_003.jpg
  • EXCLUSIVE: A 10-year-old girl suffering from a rare skin disorder is gradually turning into a stone. Scutes shaped as barks -- caused due to mutation of genes -- have spread all over her body. Rajeshwari, hailing from a tribal area in Dantewada district of north Indian state of Chhattisgarh suffers from a case of ichthyosis that causes reddening, scaling and severe blistering of the skin. The incurable disease affects the process of skin regeneration in the human body, making it hard and flaky. Visuals show a heart-wrenching sight of Rajeshwari sitting under a thatched hut with blisters almost covering her whole body. Though the disease doesn't pose any risk to her life, it has made a life 'a living hell'. The disease hinders her daily life, making even simple activities such as walking and sitting very painful. According to reports, the rare genetic condition affects very few people and till now only two dozen cases have been reported in the world. The rarity of the case makes research difficult and the medicine to control the incurable disease has severe side effects. For people residing in the Naxal infested area, availing simple health care is already a mean feat and Rajeshwari's condition requires her to travel to a big city which is difficult for the time being. when doctors were shown the patient's case file, few of them came forward to express their opinions and diagnosis. Speaking about her condition, Dr.Satyaki Ganguly, Associate Professor at All India Institute of Medical Sciences(AIIMS), Raipur, said “ The medical term for this genetic disorder is Ichthyosis Psoriasis and due to very few cases in India, there has not been any major breakthrough in terms of research. Currently, science has no cure for this ailment.” Another dermatologist has another take on Rajeshwari’s case, Dr.Yash Upender from Dantewada Hospital believes that the girl suffers from Epidermolytic Ichthyosis which is not a life threatening disease but is still uncurable. Medication
    MEGA586418_004.jpg