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  • EXCLUSIVE: Battling a rare health condition that has left half of her face disfigured, a 24-year-old Indian woman says she tries to live positively despite jeers by people. Sasikala K, from Chennai, the capital of India’s southern Tamil Nadu state, suffers from plexiform neurofibromatosis, which has taken a toll on her face, affecting the right side. However, she admits her confidence has taken a hit of late. Sasikala, who prefers to live boldly and does not cover her face, likes dressing up and wearing make-up, much like girls her age, though she finds it difficult to execute them owing to her complications. She was only six-months-old when her parents noticed a part of her face swelling. However, they waited for another one and a half years to get medical help. “I have always been very bold, however, with age, the condition progressed and no one has come for help,” she says, adding, “I am slowly losing my confidence.” According to medical experts, her condition affects the face and craniofacial region of the body. It can also affect the neck and other parts of the body, depending upon the host. The family had not considered the deformity to be a big issue until Sasikala turned six and the face started to swell at an unusual rate. Now, almost 18 years later, she finds it difficult to execute daily chores like eating and brushing. The 24-year old is an employee at an embroidery unit run by a trust. Sasikala took it up as a means to support her family after completing her diploma in nursing and unable to land a job in the hospitality sector. Kumar, 54, Sasikala’s father, says his daughter has been under the knife four times, but it has only gotten worse. “She was six when doctors operated upon her for the first time,” Kumar says. “The result was satisfying and she looked normal,” he added. However, the joy was short-lived, as the tumours grew back again. Kumar says upon approaching the doctors again, he was told that it could be controlled but wou
    MEGA506733_005.jpg
  • EXCLUSIVE: Battling a rare health condition that has left half of her face disfigured, a 24-year-old Indian woman says she tries to live positively despite jeers by people. Sasikala K, from Chennai, the capital of India’s southern Tamil Nadu state, suffers from plexiform neurofibromatosis, which has taken a toll on her face, affecting the right side. However, she admits her confidence has taken a hit of late. Sasikala, who prefers to live boldly and does not cover her face, likes dressing up and wearing make-up, much like girls her age, though she finds it difficult to execute them owing to her complications. She was only six-months-old when her parents noticed a part of her face swelling. However, they waited for another one and a half years to get medical help. “I have always been very bold, however, with age, the condition progressed and no one has come for help,” she says, adding, “I am slowly losing my confidence.” According to medical experts, her condition affects the face and craniofacial region of the body. It can also affect the neck and other parts of the body, depending upon the host. The family had not considered the deformity to be a big issue until Sasikala turned six and the face started to swell at an unusual rate. Now, almost 18 years later, she finds it difficult to execute daily chores like eating and brushing. The 24-year old is an employee at an embroidery unit run by a trust. Sasikala took it up as a means to support her family after completing her diploma in nursing and unable to land a job in the hospitality sector. Kumar, 54, Sasikala’s father, says his daughter has been under the knife four times, but it has only gotten worse. “She was six when doctors operated upon her for the first time,” Kumar says. “The result was satisfying and she looked normal,” he added. However, the joy was short-lived, as the tumours grew back again. Kumar says upon approaching the doctors again, he was told that it could be controlled but wou
    MEGA506733_012.jpg
  • EXCLUSIVE: Battling a rare health condition that has left half of her face disfigured, a 24-year-old Indian woman says she tries to live positively despite jeers by people. Sasikala K, from Chennai, the capital of India’s southern Tamil Nadu state, suffers from plexiform neurofibromatosis, which has taken a toll on her face, affecting the right side. However, she admits her confidence has taken a hit of late. Sasikala, who prefers to live boldly and does not cover her face, likes dressing up and wearing make-up, much like girls her age, though she finds it difficult to execute them owing to her complications. She was only six-months-old when her parents noticed a part of her face swelling. However, they waited for another one and a half years to get medical help. “I have always been very bold, however, with age, the condition progressed and no one has come for help,” she says, adding, “I am slowly losing my confidence.” According to medical experts, her condition affects the face and craniofacial region of the body. It can also affect the neck and other parts of the body, depending upon the host. The family had not considered the deformity to be a big issue until Sasikala turned six and the face started to swell at an unusual rate. Now, almost 18 years later, she finds it difficult to execute daily chores like eating and brushing. The 24-year old is an employee at an embroidery unit run by a trust. Sasikala took it up as a means to support her family after completing her diploma in nursing and unable to land a job in the hospitality sector. Kumar, 54, Sasikala’s father, says his daughter has been under the knife four times, but it has only gotten worse. “She was six when doctors operated upon her for the first time,” Kumar says. “The result was satisfying and she looked normal,” he added. However, the joy was short-lived, as the tumours grew back again. Kumar says upon approaching the doctors again, he was told that it could be controlled but wou
    MEGA506733_020.jpg
  • EXCLUSIVE: Battling a rare health condition that has left half of her face disfigured, a 24-year-old Indian woman says she tries to live positively despite jeers by people. Sasikala K, from Chennai, the capital of India’s southern Tamil Nadu state, suffers from plexiform neurofibromatosis, which has taken a toll on her face, affecting the right side. However, she admits her confidence has taken a hit of late. Sasikala, who prefers to live boldly and does not cover her face, likes dressing up and wearing make-up, much like girls her age, though she finds it difficult to execute them owing to her complications. She was only six-months-old when her parents noticed a part of her face swelling. However, they waited for another one and a half years to get medical help. “I have always been very bold, however, with age, the condition progressed and no one has come for help,” she says, adding, “I am slowly losing my confidence.” According to medical experts, her condition affects the face and craniofacial region of the body. It can also affect the neck and other parts of the body, depending upon the host. The family had not considered the deformity to be a big issue until Sasikala turned six and the face started to swell at an unusual rate. Now, almost 18 years later, she finds it difficult to execute daily chores like eating and brushing. The 24-year old is an employee at an embroidery unit run by a trust. Sasikala took it up as a means to support her family after completing her diploma in nursing and unable to land a job in the hospitality sector. Kumar, 54, Sasikala’s father, says his daughter has been under the knife four times, but it has only gotten worse. “She was six when doctors operated upon her for the first time,” Kumar says. “The result was satisfying and she looked normal,” he added. However, the joy was short-lived, as the tumours grew back again. Kumar says upon approaching the doctors again, he was told that it could be controlled but wou
    MEGA506733_011.jpg
  • EXCLUSIVE: Battling a rare health condition that has left half of her face disfigured, a 24-year-old Indian woman says she tries to live positively despite jeers by people. Sasikala K, from Chennai, the capital of India’s southern Tamil Nadu state, suffers from plexiform neurofibromatosis, which has taken a toll on her face, affecting the right side. However, she admits her confidence has taken a hit of late. Sasikala, who prefers to live boldly and does not cover her face, likes dressing up and wearing make-up, much like girls her age, though she finds it difficult to execute them owing to her complications. She was only six-months-old when her parents noticed a part of her face swelling. However, they waited for another one and a half years to get medical help. “I have always been very bold, however, with age, the condition progressed and no one has come for help,” she says, adding, “I am slowly losing my confidence.” According to medical experts, her condition affects the face and craniofacial region of the body. It can also affect the neck and other parts of the body, depending upon the host. The family had not considered the deformity to be a big issue until Sasikala turned six and the face started to swell at an unusual rate. Now, almost 18 years later, she finds it difficult to execute daily chores like eating and brushing. The 24-year old is an employee at an embroidery unit run by a trust. Sasikala took it up as a means to support her family after completing her diploma in nursing and unable to land a job in the hospitality sector. Kumar, 54, Sasikala’s father, says his daughter has been under the knife four times, but it has only gotten worse. “She was six when doctors operated upon her for the first time,” Kumar says. “The result was satisfying and she looked normal,” he added. However, the joy was short-lived, as the tumours grew back again. Kumar says upon approaching the doctors again, he was told that it could be controlled but wou
    MEGA506733_025.jpg
  • EXCLUSIVE: Battling a rare health condition that has left half of her face disfigured, a 24-year-old Indian woman says she tries to live positively despite jeers by people. Sasikala K, from Chennai, the capital of India’s southern Tamil Nadu state, suffers from plexiform neurofibromatosis, which has taken a toll on her face, affecting the right side. However, she admits her confidence has taken a hit of late. Sasikala, who prefers to live boldly and does not cover her face, likes dressing up and wearing make-up, much like girls her age, though she finds it difficult to execute them owing to her complications. She was only six-months-old when her parents noticed a part of her face swelling. However, they waited for another one and a half years to get medical help. “I have always been very bold, however, with age, the condition progressed and no one has come for help,” she says, adding, “I am slowly losing my confidence.” According to medical experts, her condition affects the face and craniofacial region of the body. It can also affect the neck and other parts of the body, depending upon the host. The family had not considered the deformity to be a big issue until Sasikala turned six and the face started to swell at an unusual rate. Now, almost 18 years later, she finds it difficult to execute daily chores like eating and brushing. The 24-year old is an employee at an embroidery unit run by a trust. Sasikala took it up as a means to support her family after completing her diploma in nursing and unable to land a job in the hospitality sector. Kumar, 54, Sasikala’s father, says his daughter has been under the knife four times, but it has only gotten worse. “She was six when doctors operated upon her for the first time,” Kumar says. “The result was satisfying and she looked normal,” he added. However, the joy was short-lived, as the tumours grew back again. Kumar says upon approaching the doctors again, he was told that it could be controlled but wou
    MEGA506733_032.jpg
  • EXCLUSIVE: Battling a rare health condition that has left half of her face disfigured, a 24-year-old Indian woman says she tries to live positively despite jeers by people. Sasikala K, from Chennai, the capital of India’s southern Tamil Nadu state, suffers from plexiform neurofibromatosis, which has taken a toll on her face, affecting the right side. However, she admits her confidence has taken a hit of late. Sasikala, who prefers to live boldly and does not cover her face, likes dressing up and wearing make-up, much like girls her age, though she finds it difficult to execute them owing to her complications. She was only six-months-old when her parents noticed a part of her face swelling. However, they waited for another one and a half years to get medical help. “I have always been very bold, however, with age, the condition progressed and no one has come for help,” she says, adding, “I am slowly losing my confidence.” According to medical experts, her condition affects the face and craniofacial region of the body. It can also affect the neck and other parts of the body, depending upon the host. The family had not considered the deformity to be a big issue until Sasikala turned six and the face started to swell at an unusual rate. Now, almost 18 years later, she finds it difficult to execute daily chores like eating and brushing. The 24-year old is an employee at an embroidery unit run by a trust. Sasikala took it up as a means to support her family after completing her diploma in nursing and unable to land a job in the hospitality sector. Kumar, 54, Sasikala’s father, says his daughter has been under the knife four times, but it has only gotten worse. “She was six when doctors operated upon her for the first time,” Kumar says. “The result was satisfying and she looked normal,” he added. However, the joy was short-lived, as the tumours grew back again. Kumar says upon approaching the doctors again, he was told that it could be controlled but wou
    MEGA506733_035.jpg
  • EXCLUSIVE: Battling a rare health condition that has left half of her face disfigured, a 24-year-old Indian woman says she tries to live positively despite jeers by people. Sasikala K, from Chennai, the capital of India’s southern Tamil Nadu state, suffers from plexiform neurofibromatosis, which has taken a toll on her face, affecting the right side. However, she admits her confidence has taken a hit of late. Sasikala, who prefers to live boldly and does not cover her face, likes dressing up and wearing make-up, much like girls her age, though she finds it difficult to execute them owing to her complications. She was only six-months-old when her parents noticed a part of her face swelling. However, they waited for another one and a half years to get medical help. “I have always been very bold, however, with age, the condition progressed and no one has come for help,” she says, adding, “I am slowly losing my confidence.” According to medical experts, her condition affects the face and craniofacial region of the body. It can also affect the neck and other parts of the body, depending upon the host. The family had not considered the deformity to be a big issue until Sasikala turned six and the face started to swell at an unusual rate. Now, almost 18 years later, she finds it difficult to execute daily chores like eating and brushing. The 24-year old is an employee at an embroidery unit run by a trust. Sasikala took it up as a means to support her family after completing her diploma in nursing and unable to land a job in the hospitality sector. Kumar, 54, Sasikala’s father, says his daughter has been under the knife four times, but it has only gotten worse. “She was six when doctors operated upon her for the first time,” Kumar says. “The result was satisfying and she looked normal,” he added. However, the joy was short-lived, as the tumours grew back again. Kumar says upon approaching the doctors again, he was told that it could be controlled but wou
    MEGA506733_002.jpg
  • EXCLUSIVE: Battling a rare health condition that has left half of her face disfigured, a 24-year-old Indian woman says she tries to live positively despite jeers by people. Sasikala K, from Chennai, the capital of India’s southern Tamil Nadu state, suffers from plexiform neurofibromatosis, which has taken a toll on her face, affecting the right side. However, she admits her confidence has taken a hit of late. Sasikala, who prefers to live boldly and does not cover her face, likes dressing up and wearing make-up, much like girls her age, though she finds it difficult to execute them owing to her complications. She was only six-months-old when her parents noticed a part of her face swelling. However, they waited for another one and a half years to get medical help. “I have always been very bold, however, with age, the condition progressed and no one has come for help,” she says, adding, “I am slowly losing my confidence.” According to medical experts, her condition affects the face and craniofacial region of the body. It can also affect the neck and other parts of the body, depending upon the host. The family had not considered the deformity to be a big issue until Sasikala turned six and the face started to swell at an unusual rate. Now, almost 18 years later, she finds it difficult to execute daily chores like eating and brushing. The 24-year old is an employee at an embroidery unit run by a trust. Sasikala took it up as a means to support her family after completing her diploma in nursing and unable to land a job in the hospitality sector. Kumar, 54, Sasikala’s father, says his daughter has been under the knife four times, but it has only gotten worse. “She was six when doctors operated upon her for the first time,” Kumar says. “The result was satisfying and she looked normal,” he added. However, the joy was short-lived, as the tumours grew back again. Kumar says upon approaching the doctors again, he was told that it could be controlled but wou
    MEGA506733_007.jpg
  • EXCLUSIVE: Battling a rare health condition that has left half of her face disfigured, a 24-year-old Indian woman says she tries to live positively despite jeers by people. Sasikala K, from Chennai, the capital of India’s southern Tamil Nadu state, suffers from plexiform neurofibromatosis, which has taken a toll on her face, affecting the right side. However, she admits her confidence has taken a hit of late. Sasikala, who prefers to live boldly and does not cover her face, likes dressing up and wearing make-up, much like girls her age, though she finds it difficult to execute them owing to her complications. She was only six-months-old when her parents noticed a part of her face swelling. However, they waited for another one and a half years to get medical help. “I have always been very bold, however, with age, the condition progressed and no one has come for help,” she says, adding, “I am slowly losing my confidence.” According to medical experts, her condition affects the face and craniofacial region of the body. It can also affect the neck and other parts of the body, depending upon the host. The family had not considered the deformity to be a big issue until Sasikala turned six and the face started to swell at an unusual rate. Now, almost 18 years later, she finds it difficult to execute daily chores like eating and brushing. The 24-year old is an employee at an embroidery unit run by a trust. Sasikala took it up as a means to support her family after completing her diploma in nursing and unable to land a job in the hospitality sector. Kumar, 54, Sasikala’s father, says his daughter has been under the knife four times, but it has only gotten worse. “She was six when doctors operated upon her for the first time,” Kumar says. “The result was satisfying and she looked normal,” he added. However, the joy was short-lived, as the tumours grew back again. Kumar says upon approaching the doctors again, he was told that it could be controlled but wou
    MEGA506733_009.jpg
  • EXCLUSIVE: Battling a rare health condition that has left half of her face disfigured, a 24-year-old Indian woman says she tries to live positively despite jeers by people. Sasikala K, from Chennai, the capital of India’s southern Tamil Nadu state, suffers from plexiform neurofibromatosis, which has taken a toll on her face, affecting the right side. However, she admits her confidence has taken a hit of late. Sasikala, who prefers to live boldly and does not cover her face, likes dressing up and wearing make-up, much like girls her age, though she finds it difficult to execute them owing to her complications. She was only six-months-old when her parents noticed a part of her face swelling. However, they waited for another one and a half years to get medical help. “I have always been very bold, however, with age, the condition progressed and no one has come for help,” she says, adding, “I am slowly losing my confidence.” According to medical experts, her condition affects the face and craniofacial region of the body. It can also affect the neck and other parts of the body, depending upon the host. The family had not considered the deformity to be a big issue until Sasikala turned six and the face started to swell at an unusual rate. Now, almost 18 years later, she finds it difficult to execute daily chores like eating and brushing. The 24-year old is an employee at an embroidery unit run by a trust. Sasikala took it up as a means to support her family after completing her diploma in nursing and unable to land a job in the hospitality sector. Kumar, 54, Sasikala’s father, says his daughter has been under the knife four times, but it has only gotten worse. “She was six when doctors operated upon her for the first time,” Kumar says. “The result was satisfying and she looked normal,” he added. However, the joy was short-lived, as the tumours grew back again. Kumar says upon approaching the doctors again, he was told that it could be controlled but wou
    MEGA506733_014.jpg
  • EXCLUSIVE: Battling a rare health condition that has left half of her face disfigured, a 24-year-old Indian woman says she tries to live positively despite jeers by people. Sasikala K, from Chennai, the capital of India’s southern Tamil Nadu state, suffers from plexiform neurofibromatosis, which has taken a toll on her face, affecting the right side. However, she admits her confidence has taken a hit of late. Sasikala, who prefers to live boldly and does not cover her face, likes dressing up and wearing make-up, much like girls her age, though she finds it difficult to execute them owing to her complications. She was only six-months-old when her parents noticed a part of her face swelling. However, they waited for another one and a half years to get medical help. “I have always been very bold, however, with age, the condition progressed and no one has come for help,” she says, adding, “I am slowly losing my confidence.” According to medical experts, her condition affects the face and craniofacial region of the body. It can also affect the neck and other parts of the body, depending upon the host. The family had not considered the deformity to be a big issue until Sasikala turned six and the face started to swell at an unusual rate. Now, almost 18 years later, she finds it difficult to execute daily chores like eating and brushing. The 24-year old is an employee at an embroidery unit run by a trust. Sasikala took it up as a means to support her family after completing her diploma in nursing and unable to land a job in the hospitality sector. Kumar, 54, Sasikala’s father, says his daughter has been under the knife four times, but it has only gotten worse. “She was six when doctors operated upon her for the first time,” Kumar says. “The result was satisfying and she looked normal,” he added. However, the joy was short-lived, as the tumours grew back again. Kumar says upon approaching the doctors again, he was told that it could be controlled but wou
    MEGA506733_017.jpg
  • EXCLUSIVE: Battling a rare health condition that has left half of her face disfigured, a 24-year-old Indian woman says she tries to live positively despite jeers by people. Sasikala K, from Chennai, the capital of India’s southern Tamil Nadu state, suffers from plexiform neurofibromatosis, which has taken a toll on her face, affecting the right side. However, she admits her confidence has taken a hit of late. Sasikala, who prefers to live boldly and does not cover her face, likes dressing up and wearing make-up, much like girls her age, though she finds it difficult to execute them owing to her complications. She was only six-months-old when her parents noticed a part of her face swelling. However, they waited for another one and a half years to get medical help. “I have always been very bold, however, with age, the condition progressed and no one has come for help,” she says, adding, “I am slowly losing my confidence.” According to medical experts, her condition affects the face and craniofacial region of the body. It can also affect the neck and other parts of the body, depending upon the host. The family had not considered the deformity to be a big issue until Sasikala turned six and the face started to swell at an unusual rate. Now, almost 18 years later, she finds it difficult to execute daily chores like eating and brushing. The 24-year old is an employee at an embroidery unit run by a trust. Sasikala took it up as a means to support her family after completing her diploma in nursing and unable to land a job in the hospitality sector. Kumar, 54, Sasikala’s father, says his daughter has been under the knife four times, but it has only gotten worse. “She was six when doctors operated upon her for the first time,” Kumar says. “The result was satisfying and she looked normal,” he added. However, the joy was short-lived, as the tumours grew back again. Kumar says upon approaching the doctors again, he was told that it could be controlled but wou
    MEGA506733_019.jpg
  • EXCLUSIVE: Battling a rare health condition that has left half of her face disfigured, a 24-year-old Indian woman says she tries to live positively despite jeers by people. Sasikala K, from Chennai, the capital of India’s southern Tamil Nadu state, suffers from plexiform neurofibromatosis, which has taken a toll on her face, affecting the right side. However, she admits her confidence has taken a hit of late. Sasikala, who prefers to live boldly and does not cover her face, likes dressing up and wearing make-up, much like girls her age, though she finds it difficult to execute them owing to her complications. She was only six-months-old when her parents noticed a part of her face swelling. However, they waited for another one and a half years to get medical help. “I have always been very bold, however, with age, the condition progressed and no one has come for help,” she says, adding, “I am slowly losing my confidence.” According to medical experts, her condition affects the face and craniofacial region of the body. It can also affect the neck and other parts of the body, depending upon the host. The family had not considered the deformity to be a big issue until Sasikala turned six and the face started to swell at an unusual rate. Now, almost 18 years later, she finds it difficult to execute daily chores like eating and brushing. The 24-year old is an employee at an embroidery unit run by a trust. Sasikala took it up as a means to support her family after completing her diploma in nursing and unable to land a job in the hospitality sector. Kumar, 54, Sasikala’s father, says his daughter has been under the knife four times, but it has only gotten worse. “She was six when doctors operated upon her for the first time,” Kumar says. “The result was satisfying and she looked normal,” he added. However, the joy was short-lived, as the tumours grew back again. Kumar says upon approaching the doctors again, he was told that it could be controlled but wou
    MEGA506733_021.jpg
  • EXCLUSIVE: Battling a rare health condition that has left half of her face disfigured, a 24-year-old Indian woman says she tries to live positively despite jeers by people. Sasikala K, from Chennai, the capital of India’s southern Tamil Nadu state, suffers from plexiform neurofibromatosis, which has taken a toll on her face, affecting the right side. However, she admits her confidence has taken a hit of late. Sasikala, who prefers to live boldly and does not cover her face, likes dressing up and wearing make-up, much like girls her age, though she finds it difficult to execute them owing to her complications. She was only six-months-old when her parents noticed a part of her face swelling. However, they waited for another one and a half years to get medical help. “I have always been very bold, however, with age, the condition progressed and no one has come for help,” she says, adding, “I am slowly losing my confidence.” According to medical experts, her condition affects the face and craniofacial region of the body. It can also affect the neck and other parts of the body, depending upon the host. The family had not considered the deformity to be a big issue until Sasikala turned six and the face started to swell at an unusual rate. Now, almost 18 years later, she finds it difficult to execute daily chores like eating and brushing. The 24-year old is an employee at an embroidery unit run by a trust. Sasikala took it up as a means to support her family after completing her diploma in nursing and unable to land a job in the hospitality sector. Kumar, 54, Sasikala’s father, says his daughter has been under the knife four times, but it has only gotten worse. “She was six when doctors operated upon her for the first time,” Kumar says. “The result was satisfying and she looked normal,” he added. However, the joy was short-lived, as the tumours grew back again. Kumar says upon approaching the doctors again, he was told that it could be controlled but wou
    MEGA506733_022.jpg
  • EXCLUSIVE: Battling a rare health condition that has left half of her face disfigured, a 24-year-old Indian woman says she tries to live positively despite jeers by people. Sasikala K, from Chennai, the capital of India’s southern Tamil Nadu state, suffers from plexiform neurofibromatosis, which has taken a toll on her face, affecting the right side. However, she admits her confidence has taken a hit of late. Sasikala, who prefers to live boldly and does not cover her face, likes dressing up and wearing make-up, much like girls her age, though she finds it difficult to execute them owing to her complications. She was only six-months-old when her parents noticed a part of her face swelling. However, they waited for another one and a half years to get medical help. “I have always been very bold, however, with age, the condition progressed and no one has come for help,” she says, adding, “I am slowly losing my confidence.” According to medical experts, her condition affects the face and craniofacial region of the body. It can also affect the neck and other parts of the body, depending upon the host. The family had not considered the deformity to be a big issue until Sasikala turned six and the face started to swell at an unusual rate. Now, almost 18 years later, she finds it difficult to execute daily chores like eating and brushing. The 24-year old is an employee at an embroidery unit run by a trust. Sasikala took it up as a means to support her family after completing her diploma in nursing and unable to land a job in the hospitality sector. Kumar, 54, Sasikala’s father, says his daughter has been under the knife four times, but it has only gotten worse. “She was six when doctors operated upon her for the first time,” Kumar says. “The result was satisfying and she looked normal,” he added. However, the joy was short-lived, as the tumours grew back again. Kumar says upon approaching the doctors again, he was told that it could be controlled but wou
    MEGA506733_024.jpg
  • EXCLUSIVE: Battling a rare health condition that has left half of her face disfigured, a 24-year-old Indian woman says she tries to live positively despite jeers by people. Sasikala K, from Chennai, the capital of India’s southern Tamil Nadu state, suffers from plexiform neurofibromatosis, which has taken a toll on her face, affecting the right side. However, she admits her confidence has taken a hit of late. Sasikala, who prefers to live boldly and does not cover her face, likes dressing up and wearing make-up, much like girls her age, though she finds it difficult to execute them owing to her complications. She was only six-months-old when her parents noticed a part of her face swelling. However, they waited for another one and a half years to get medical help. “I have always been very bold, however, with age, the condition progressed and no one has come for help,” she says, adding, “I am slowly losing my confidence.” According to medical experts, her condition affects the face and craniofacial region of the body. It can also affect the neck and other parts of the body, depending upon the host. The family had not considered the deformity to be a big issue until Sasikala turned six and the face started to swell at an unusual rate. Now, almost 18 years later, she finds it difficult to execute daily chores like eating and brushing. The 24-year old is an employee at an embroidery unit run by a trust. Sasikala took it up as a means to support her family after completing her diploma in nursing and unable to land a job in the hospitality sector. Kumar, 54, Sasikala’s father, says his daughter has been under the knife four times, but it has only gotten worse. “She was six when doctors operated upon her for the first time,” Kumar says. “The result was satisfying and she looked normal,” he added. However, the joy was short-lived, as the tumours grew back again. Kumar says upon approaching the doctors again, he was told that it could be controlled but wou
    MEGA506733_026.jpg
  • EXCLUSIVE: Battling a rare health condition that has left half of her face disfigured, a 24-year-old Indian woman says she tries to live positively despite jeers by people. Sasikala K, from Chennai, the capital of India’s southern Tamil Nadu state, suffers from plexiform neurofibromatosis, which has taken a toll on her face, affecting the right side. However, she admits her confidence has taken a hit of late. Sasikala, who prefers to live boldly and does not cover her face, likes dressing up and wearing make-up, much like girls her age, though she finds it difficult to execute them owing to her complications. She was only six-months-old when her parents noticed a part of her face swelling. However, they waited for another one and a half years to get medical help. “I have always been very bold, however, with age, the condition progressed and no one has come for help,” she says, adding, “I am slowly losing my confidence.” According to medical experts, her condition affects the face and craniofacial region of the body. It can also affect the neck and other parts of the body, depending upon the host. The family had not considered the deformity to be a big issue until Sasikala turned six and the face started to swell at an unusual rate. Now, almost 18 years later, she finds it difficult to execute daily chores like eating and brushing. The 24-year old is an employee at an embroidery unit run by a trust. Sasikala took it up as a means to support her family after completing her diploma in nursing and unable to land a job in the hospitality sector. Kumar, 54, Sasikala’s father, says his daughter has been under the knife four times, but it has only gotten worse. “She was six when doctors operated upon her for the first time,” Kumar says. “The result was satisfying and she looked normal,” he added. However, the joy was short-lived, as the tumours grew back again. Kumar says upon approaching the doctors again, he was told that it could be controlled but wou
    MEGA506733_028.jpg
  • EXCLUSIVE: Battling a rare health condition that has left half of her face disfigured, a 24-year-old Indian woman says she tries to live positively despite jeers by people. Sasikala K, from Chennai, the capital of India’s southern Tamil Nadu state, suffers from plexiform neurofibromatosis, which has taken a toll on her face, affecting the right side. However, she admits her confidence has taken a hit of late. Sasikala, who prefers to live boldly and does not cover her face, likes dressing up and wearing make-up, much like girls her age, though she finds it difficult to execute them owing to her complications. She was only six-months-old when her parents noticed a part of her face swelling. However, they waited for another one and a half years to get medical help. “I have always been very bold, however, with age, the condition progressed and no one has come for help,” she says, adding, “I am slowly losing my confidence.” According to medical experts, her condition affects the face and craniofacial region of the body. It can also affect the neck and other parts of the body, depending upon the host. The family had not considered the deformity to be a big issue until Sasikala turned six and the face started to swell at an unusual rate. Now, almost 18 years later, she finds it difficult to execute daily chores like eating and brushing. The 24-year old is an employee at an embroidery unit run by a trust. Sasikala took it up as a means to support her family after completing her diploma in nursing and unable to land a job in the hospitality sector. Kumar, 54, Sasikala’s father, says his daughter has been under the knife four times, but it has only gotten worse. “She was six when doctors operated upon her for the first time,” Kumar says. “The result was satisfying and she looked normal,” he added. However, the joy was short-lived, as the tumours grew back again. Kumar says upon approaching the doctors again, he was told that it could be controlled but wou
    MEGA506733_031.jpg
  • EXCLUSIVE: Battling a rare health condition that has left half of her face disfigured, a 24-year-old Indian woman says she tries to live positively despite jeers by people. Sasikala K, from Chennai, the capital of India’s southern Tamil Nadu state, suffers from plexiform neurofibromatosis, which has taken a toll on her face, affecting the right side. However, she admits her confidence has taken a hit of late. Sasikala, who prefers to live boldly and does not cover her face, likes dressing up and wearing make-up, much like girls her age, though she finds it difficult to execute them owing to her complications. She was only six-months-old when her parents noticed a part of her face swelling. However, they waited for another one and a half years to get medical help. “I have always been very bold, however, with age, the condition progressed and no one has come for help,” she says, adding, “I am slowly losing my confidence.” According to medical experts, her condition affects the face and craniofacial region of the body. It can also affect the neck and other parts of the body, depending upon the host. The family had not considered the deformity to be a big issue until Sasikala turned six and the face started to swell at an unusual rate. Now, almost 18 years later, she finds it difficult to execute daily chores like eating and brushing. The 24-year old is an employee at an embroidery unit run by a trust. Sasikala took it up as a means to support her family after completing her diploma in nursing and unable to land a job in the hospitality sector. Kumar, 54, Sasikala’s father, says his daughter has been under the knife four times, but it has only gotten worse. “She was six when doctors operated upon her for the first time,” Kumar says. “The result was satisfying and she looked normal,” he added. However, the joy was short-lived, as the tumours grew back again. Kumar says upon approaching the doctors again, he was told that it could be controlled but wou
    MEGA506733_039.jpg
  • EXCLUSIVE: Battling a rare health condition that has left half of her face disfigured, a 24-year-old Indian woman says she tries to live positively despite jeers by people. Sasikala K, from Chennai, the capital of India’s southern Tamil Nadu state, suffers from plexiform neurofibromatosis, which has taken a toll on her face, affecting the right side. However, she admits her confidence has taken a hit of late. Sasikala, who prefers to live boldly and does not cover her face, likes dressing up and wearing make-up, much like girls her age, though she finds it difficult to execute them owing to her complications. She was only six-months-old when her parents noticed a part of her face swelling. However, they waited for another one and a half years to get medical help. “I have always been very bold, however, with age, the condition progressed and no one has come for help,” she says, adding, “I am slowly losing my confidence.” According to medical experts, her condition affects the face and craniofacial region of the body. It can also affect the neck and other parts of the body, depending upon the host. The family had not considered the deformity to be a big issue until Sasikala turned six and the face started to swell at an unusual rate. Now, almost 18 years later, she finds it difficult to execute daily chores like eating and brushing. The 24-year old is an employee at an embroidery unit run by a trust. Sasikala took it up as a means to support her family after completing her diploma in nursing and unable to land a job in the hospitality sector. Kumar, 54, Sasikala’s father, says his daughter has been under the knife four times, but it has only gotten worse. “She was six when doctors operated upon her for the first time,” Kumar says. “The result was satisfying and she looked normal,” he added. However, the joy was short-lived, as the tumours grew back again. Kumar says upon approaching the doctors again, he was told that it could be controlled but wou
    MEGA506733_041.jpg
  • EXCLUSIVE: Battling a rare health condition that has left half of her face disfigured, a 24-year-old Indian woman says she tries to live positively despite jeers by people. Sasikala K, from Chennai, the capital of India’s southern Tamil Nadu state, suffers from plexiform neurofibromatosis, which has taken a toll on her face, affecting the right side. However, she admits her confidence has taken a hit of late. Sasikala, who prefers to live boldly and does not cover her face, likes dressing up and wearing make-up, much like girls her age, though she finds it difficult to execute them owing to her complications. She was only six-months-old when her parents noticed a part of her face swelling. However, they waited for another one and a half years to get medical help. “I have always been very bold, however, with age, the condition progressed and no one has come for help,” she says, adding, “I am slowly losing my confidence.” According to medical experts, her condition affects the face and craniofacial region of the body. It can also affect the neck and other parts of the body, depending upon the host. The family had not considered the deformity to be a big issue until Sasikala turned six and the face started to swell at an unusual rate. Now, almost 18 years later, she finds it difficult to execute daily chores like eating and brushing. The 24-year old is an employee at an embroidery unit run by a trust. Sasikala took it up as a means to support her family after completing her diploma in nursing and unable to land a job in the hospitality sector. Kumar, 54, Sasikala’s father, says his daughter has been under the knife four times, but it has only gotten worse. “She was six when doctors operated upon her for the first time,” Kumar says. “The result was satisfying and she looked normal,” he added. However, the joy was short-lived, as the tumours grew back again. Kumar says upon approaching the doctors again, he was told that it could be controlled but wou
    MEGA506733_001.jpg
  • EXCLUSIVE: Battling a rare health condition that has left half of her face disfigured, a 24-year-old Indian woman says she tries to live positively despite jeers by people. Sasikala K, from Chennai, the capital of India’s southern Tamil Nadu state, suffers from plexiform neurofibromatosis, which has taken a toll on her face, affecting the right side. However, she admits her confidence has taken a hit of late. Sasikala, who prefers to live boldly and does not cover her face, likes dressing up and wearing make-up, much like girls her age, though she finds it difficult to execute them owing to her complications. She was only six-months-old when her parents noticed a part of her face swelling. However, they waited for another one and a half years to get medical help. “I have always been very bold, however, with age, the condition progressed and no one has come for help,” she says, adding, “I am slowly losing my confidence.” According to medical experts, her condition affects the face and craniofacial region of the body. It can also affect the neck and other parts of the body, depending upon the host. The family had not considered the deformity to be a big issue until Sasikala turned six and the face started to swell at an unusual rate. Now, almost 18 years later, she finds it difficult to execute daily chores like eating and brushing. The 24-year old is an employee at an embroidery unit run by a trust. Sasikala took it up as a means to support her family after completing her diploma in nursing and unable to land a job in the hospitality sector. Kumar, 54, Sasikala’s father, says his daughter has been under the knife four times, but it has only gotten worse. “She was six when doctors operated upon her for the first time,” Kumar says. “The result was satisfying and she looked normal,” he added. However, the joy was short-lived, as the tumours grew back again. Kumar says upon approaching the doctors again, he was told that it could be controlled but wou
    MEGA506733_004.jpg
  • EXCLUSIVE: Battling a rare health condition that has left half of her face disfigured, a 24-year-old Indian woman says she tries to live positively despite jeers by people. Sasikala K, from Chennai, the capital of India’s southern Tamil Nadu state, suffers from plexiform neurofibromatosis, which has taken a toll on her face, affecting the right side. However, she admits her confidence has taken a hit of late. Sasikala, who prefers to live boldly and does not cover her face, likes dressing up and wearing make-up, much like girls her age, though she finds it difficult to execute them owing to her complications. She was only six-months-old when her parents noticed a part of her face swelling. However, they waited for another one and a half years to get medical help. “I have always been very bold, however, with age, the condition progressed and no one has come for help,” she says, adding, “I am slowly losing my confidence.” According to medical experts, her condition affects the face and craniofacial region of the body. It can also affect the neck and other parts of the body, depending upon the host. The family had not considered the deformity to be a big issue until Sasikala turned six and the face started to swell at an unusual rate. Now, almost 18 years later, she finds it difficult to execute daily chores like eating and brushing. The 24-year old is an employee at an embroidery unit run by a trust. Sasikala took it up as a means to support her family after completing her diploma in nursing and unable to land a job in the hospitality sector. Kumar, 54, Sasikala’s father, says his daughter has been under the knife four times, but it has only gotten worse. “She was six when doctors operated upon her for the first time,” Kumar says. “The result was satisfying and she looked normal,” he added. However, the joy was short-lived, as the tumours grew back again. Kumar says upon approaching the doctors again, he was told that it could be controlled but wou
    MEGA506733_003.jpg
  • EXCLUSIVE: Battling a rare health condition that has left half of her face disfigured, a 24-year-old Indian woman says she tries to live positively despite jeers by people. Sasikala K, from Chennai, the capital of India’s southern Tamil Nadu state, suffers from plexiform neurofibromatosis, which has taken a toll on her face, affecting the right side. However, she admits her confidence has taken a hit of late. Sasikala, who prefers to live boldly and does not cover her face, likes dressing up and wearing make-up, much like girls her age, though she finds it difficult to execute them owing to her complications. She was only six-months-old when her parents noticed a part of her face swelling. However, they waited for another one and a half years to get medical help. “I have always been very bold, however, with age, the condition progressed and no one has come for help,” she says, adding, “I am slowly losing my confidence.” According to medical experts, her condition affects the face and craniofacial region of the body. It can also affect the neck and other parts of the body, depending upon the host. The family had not considered the deformity to be a big issue until Sasikala turned six and the face started to swell at an unusual rate. Now, almost 18 years later, she finds it difficult to execute daily chores like eating and brushing. The 24-year old is an employee at an embroidery unit run by a trust. Sasikala took it up as a means to support her family after completing her diploma in nursing and unable to land a job in the hospitality sector. Kumar, 54, Sasikala’s father, says his daughter has been under the knife four times, but it has only gotten worse. “She was six when doctors operated upon her for the first time,” Kumar says. “The result was satisfying and she looked normal,” he added. However, the joy was short-lived, as the tumours grew back again. Kumar says upon approaching the doctors again, he was told that it could be controlled but wou
    MEGA506733_010.jpg
  • EXCLUSIVE: Battling a rare health condition that has left half of her face disfigured, a 24-year-old Indian woman says she tries to live positively despite jeers by people. Sasikala K, from Chennai, the capital of India’s southern Tamil Nadu state, suffers from plexiform neurofibromatosis, which has taken a toll on her face, affecting the right side. However, she admits her confidence has taken a hit of late. Sasikala, who prefers to live boldly and does not cover her face, likes dressing up and wearing make-up, much like girls her age, though she finds it difficult to execute them owing to her complications. She was only six-months-old when her parents noticed a part of her face swelling. However, they waited for another one and a half years to get medical help. “I have always been very bold, however, with age, the condition progressed and no one has come for help,” she says, adding, “I am slowly losing my confidence.” According to medical experts, her condition affects the face and craniofacial region of the body. It can also affect the neck and other parts of the body, depending upon the host. The family had not considered the deformity to be a big issue until Sasikala turned six and the face started to swell at an unusual rate. Now, almost 18 years later, she finds it difficult to execute daily chores like eating and brushing. The 24-year old is an employee at an embroidery unit run by a trust. Sasikala took it up as a means to support her family after completing her diploma in nursing and unable to land a job in the hospitality sector. Kumar, 54, Sasikala’s father, says his daughter has been under the knife four times, but it has only gotten worse. “She was six when doctors operated upon her for the first time,” Kumar says. “The result was satisfying and she looked normal,” he added. However, the joy was short-lived, as the tumours grew back again. Kumar says upon approaching the doctors again, he was told that it could be controlled but wou
    MEGA506733_013.jpg
  • EXCLUSIVE: Battling a rare health condition that has left half of her face disfigured, a 24-year-old Indian woman says she tries to live positively despite jeers by people. Sasikala K, from Chennai, the capital of India’s southern Tamil Nadu state, suffers from plexiform neurofibromatosis, which has taken a toll on her face, affecting the right side. However, she admits her confidence has taken a hit of late. Sasikala, who prefers to live boldly and does not cover her face, likes dressing up and wearing make-up, much like girls her age, though she finds it difficult to execute them owing to her complications. She was only six-months-old when her parents noticed a part of her face swelling. However, they waited for another one and a half years to get medical help. “I have always been very bold, however, with age, the condition progressed and no one has come for help,” she says, adding, “I am slowly losing my confidence.” According to medical experts, her condition affects the face and craniofacial region of the body. It can also affect the neck and other parts of the body, depending upon the host. The family had not considered the deformity to be a big issue until Sasikala turned six and the face started to swell at an unusual rate. Now, almost 18 years later, she finds it difficult to execute daily chores like eating and brushing. The 24-year old is an employee at an embroidery unit run by a trust. Sasikala took it up as a means to support her family after completing her diploma in nursing and unable to land a job in the hospitality sector. Kumar, 54, Sasikala’s father, says his daughter has been under the knife four times, but it has only gotten worse. “She was six when doctors operated upon her for the first time,” Kumar says. “The result was satisfying and she looked normal,” he added. However, the joy was short-lived, as the tumours grew back again. Kumar says upon approaching the doctors again, he was told that it could be controlled but wou
    MEGA506733_015.jpg
  • EXCLUSIVE: Battling a rare health condition that has left half of her face disfigured, a 24-year-old Indian woman says she tries to live positively despite jeers by people. Sasikala K, from Chennai, the capital of India’s southern Tamil Nadu state, suffers from plexiform neurofibromatosis, which has taken a toll on her face, affecting the right side. However, she admits her confidence has taken a hit of late. Sasikala, who prefers to live boldly and does not cover her face, likes dressing up and wearing make-up, much like girls her age, though she finds it difficult to execute them owing to her complications. She was only six-months-old when her parents noticed a part of her face swelling. However, they waited for another one and a half years to get medical help. “I have always been very bold, however, with age, the condition progressed and no one has come for help,” she says, adding, “I am slowly losing my confidence.” According to medical experts, her condition affects the face and craniofacial region of the body. It can also affect the neck and other parts of the body, depending upon the host. The family had not considered the deformity to be a big issue until Sasikala turned six and the face started to swell at an unusual rate. Now, almost 18 years later, she finds it difficult to execute daily chores like eating and brushing. The 24-year old is an employee at an embroidery unit run by a trust. Sasikala took it up as a means to support her family after completing her diploma in nursing and unable to land a job in the hospitality sector. Kumar, 54, Sasikala’s father, says his daughter has been under the knife four times, but it has only gotten worse. “She was six when doctors operated upon her for the first time,” Kumar says. “The result was satisfying and she looked normal,” he added. However, the joy was short-lived, as the tumours grew back again. Kumar says upon approaching the doctors again, he was told that it could be controlled but wou
    MEGA506733_018.jpg
  • EXCLUSIVE: Battling a rare health condition that has left half of her face disfigured, a 24-year-old Indian woman says she tries to live positively despite jeers by people. Sasikala K, from Chennai, the capital of India’s southern Tamil Nadu state, suffers from plexiform neurofibromatosis, which has taken a toll on her face, affecting the right side. However, she admits her confidence has taken a hit of late. Sasikala, who prefers to live boldly and does not cover her face, likes dressing up and wearing make-up, much like girls her age, though she finds it difficult to execute them owing to her complications. She was only six-months-old when her parents noticed a part of her face swelling. However, they waited for another one and a half years to get medical help. “I have always been very bold, however, with age, the condition progressed and no one has come for help,” she says, adding, “I am slowly losing my confidence.” According to medical experts, her condition affects the face and craniofacial region of the body. It can also affect the neck and other parts of the body, depending upon the host. The family had not considered the deformity to be a big issue until Sasikala turned six and the face started to swell at an unusual rate. Now, almost 18 years later, she finds it difficult to execute daily chores like eating and brushing. The 24-year old is an employee at an embroidery unit run by a trust. Sasikala took it up as a means to support her family after completing her diploma in nursing and unable to land a job in the hospitality sector. Kumar, 54, Sasikala’s father, says his daughter has been under the knife four times, but it has only gotten worse. “She was six when doctors operated upon her for the first time,” Kumar says. “The result was satisfying and she looked normal,” he added. However, the joy was short-lived, as the tumours grew back again. Kumar says upon approaching the doctors again, he was told that it could be controlled but wou
    MEGA506733_023.jpg
  • EXCLUSIVE: Battling a rare health condition that has left half of her face disfigured, a 24-year-old Indian woman says she tries to live positively despite jeers by people. Sasikala K, from Chennai, the capital of India’s southern Tamil Nadu state, suffers from plexiform neurofibromatosis, which has taken a toll on her face, affecting the right side. However, she admits her confidence has taken a hit of late. Sasikala, who prefers to live boldly and does not cover her face, likes dressing up and wearing make-up, much like girls her age, though she finds it difficult to execute them owing to her complications. She was only six-months-old when her parents noticed a part of her face swelling. However, they waited for another one and a half years to get medical help. “I have always been very bold, however, with age, the condition progressed and no one has come for help,” she says, adding, “I am slowly losing my confidence.” According to medical experts, her condition affects the face and craniofacial region of the body. It can also affect the neck and other parts of the body, depending upon the host. The family had not considered the deformity to be a big issue until Sasikala turned six and the face started to swell at an unusual rate. Now, almost 18 years later, she finds it difficult to execute daily chores like eating and brushing. The 24-year old is an employee at an embroidery unit run by a trust. Sasikala took it up as a means to support her family after completing her diploma in nursing and unable to land a job in the hospitality sector. Kumar, 54, Sasikala’s father, says his daughter has been under the knife four times, but it has only gotten worse. “She was six when doctors operated upon her for the first time,” Kumar says. “The result was satisfying and she looked normal,” he added. However, the joy was short-lived, as the tumours grew back again. Kumar says upon approaching the doctors again, he was told that it could be controlled but wou
    MEGA506733_030.jpg
  • EXCLUSIVE: Battling a rare health condition that has left half of her face disfigured, a 24-year-old Indian woman says she tries to live positively despite jeers by people. Sasikala K, from Chennai, the capital of India’s southern Tamil Nadu state, suffers from plexiform neurofibromatosis, which has taken a toll on her face, affecting the right side. However, she admits her confidence has taken a hit of late. Sasikala, who prefers to live boldly and does not cover her face, likes dressing up and wearing make-up, much like girls her age, though she finds it difficult to execute them owing to her complications. She was only six-months-old when her parents noticed a part of her face swelling. However, they waited for another one and a half years to get medical help. “I have always been very bold, however, with age, the condition progressed and no one has come for help,” she says, adding, “I am slowly losing my confidence.” According to medical experts, her condition affects the face and craniofacial region of the body. It can also affect the neck and other parts of the body, depending upon the host. The family had not considered the deformity to be a big issue until Sasikala turned six and the face started to swell at an unusual rate. Now, almost 18 years later, she finds it difficult to execute daily chores like eating and brushing. The 24-year old is an employee at an embroidery unit run by a trust. Sasikala took it up as a means to support her family after completing her diploma in nursing and unable to land a job in the hospitality sector. Kumar, 54, Sasikala’s father, says his daughter has been under the knife four times, but it has only gotten worse. “She was six when doctors operated upon her for the first time,” Kumar says. “The result was satisfying and she looked normal,” he added. However, the joy was short-lived, as the tumours grew back again. Kumar says upon approaching the doctors again, he was told that it could be controlled but wou
    MEGA506733_033.jpg
  • EXCLUSIVE: Battling a rare health condition that has left half of her face disfigured, a 24-year-old Indian woman says she tries to live positively despite jeers by people. Sasikala K, from Chennai, the capital of India’s southern Tamil Nadu state, suffers from plexiform neurofibromatosis, which has taken a toll on her face, affecting the right side. However, she admits her confidence has taken a hit of late. Sasikala, who prefers to live boldly and does not cover her face, likes dressing up and wearing make-up, much like girls her age, though she finds it difficult to execute them owing to her complications. She was only six-months-old when her parents noticed a part of her face swelling. However, they waited for another one and a half years to get medical help. “I have always been very bold, however, with age, the condition progressed and no one has come for help,” she says, adding, “I am slowly losing my confidence.” According to medical experts, her condition affects the face and craniofacial region of the body. It can also affect the neck and other parts of the body, depending upon the host. The family had not considered the deformity to be a big issue until Sasikala turned six and the face started to swell at an unusual rate. Now, almost 18 years later, she finds it difficult to execute daily chores like eating and brushing. The 24-year old is an employee at an embroidery unit run by a trust. Sasikala took it up as a means to support her family after completing her diploma in nursing and unable to land a job in the hospitality sector. Kumar, 54, Sasikala’s father, says his daughter has been under the knife four times, but it has only gotten worse. “She was six when doctors operated upon her for the first time,” Kumar says. “The result was satisfying and she looked normal,” he added. However, the joy was short-lived, as the tumours grew back again. Kumar says upon approaching the doctors again, he was told that it could be controlled but wou
    MEGA506733_036.jpg
  • EXCLUSIVE: Battling a rare health condition that has left half of her face disfigured, a 24-year-old Indian woman says she tries to live positively despite jeers by people. Sasikala K, from Chennai, the capital of India’s southern Tamil Nadu state, suffers from plexiform neurofibromatosis, which has taken a toll on her face, affecting the right side. However, she admits her confidence has taken a hit of late. Sasikala, who prefers to live boldly and does not cover her face, likes dressing up and wearing make-up, much like girls her age, though she finds it difficult to execute them owing to her complications. She was only six-months-old when her parents noticed a part of her face swelling. However, they waited for another one and a half years to get medical help. “I have always been very bold, however, with age, the condition progressed and no one has come for help,” she says, adding, “I am slowly losing my confidence.” According to medical experts, her condition affects the face and craniofacial region of the body. It can also affect the neck and other parts of the body, depending upon the host. The family had not considered the deformity to be a big issue until Sasikala turned six and the face started to swell at an unusual rate. Now, almost 18 years later, she finds it difficult to execute daily chores like eating and brushing. The 24-year old is an employee at an embroidery unit run by a trust. Sasikala took it up as a means to support her family after completing her diploma in nursing and unable to land a job in the hospitality sector. Kumar, 54, Sasikala’s father, says his daughter has been under the knife four times, but it has only gotten worse. “She was six when doctors operated upon her for the first time,” Kumar says. “The result was satisfying and she looked normal,” he added. However, the joy was short-lived, as the tumours grew back again. Kumar says upon approaching the doctors again, he was told that it could be controlled but wou
    MEGA506733_037.jpg
  • EXCLUSIVE: Battling a rare health condition that has left half of her face disfigured, a 24-year-old Indian woman says she tries to live positively despite jeers by people. Sasikala K, from Chennai, the capital of India’s southern Tamil Nadu state, suffers from plexiform neurofibromatosis, which has taken a toll on her face, affecting the right side. However, she admits her confidence has taken a hit of late. Sasikala, who prefers to live boldly and does not cover her face, likes dressing up and wearing make-up, much like girls her age, though she finds it difficult to execute them owing to her complications. She was only six-months-old when her parents noticed a part of her face swelling. However, they waited for another one and a half years to get medical help. “I have always been very bold, however, with age, the condition progressed and no one has come for help,” she says, adding, “I am slowly losing my confidence.” According to medical experts, her condition affects the face and craniofacial region of the body. It can also affect the neck and other parts of the body, depending upon the host. The family had not considered the deformity to be a big issue until Sasikala turned six and the face started to swell at an unusual rate. Now, almost 18 years later, she finds it difficult to execute daily chores like eating and brushing. The 24-year old is an employee at an embroidery unit run by a trust. Sasikala took it up as a means to support her family after completing her diploma in nursing and unable to land a job in the hospitality sector. Kumar, 54, Sasikala’s father, says his daughter has been under the knife four times, but it has only gotten worse. “She was six when doctors operated upon her for the first time,” Kumar says. “The result was satisfying and she looked normal,” he added. However, the joy was short-lived, as the tumours grew back again. Kumar says upon approaching the doctors again, he was told that it could be controlled but wou
    MEGA506733_040.jpg
  • EXCLUSIVE: Battling a rare health condition that has left half of her face disfigured, a 24-year-old Indian woman says she tries to live positively despite jeers by people. Sasikala K, from Chennai, the capital of India’s southern Tamil Nadu state, suffers from plexiform neurofibromatosis, which has taken a toll on her face, affecting the right side. However, she admits her confidence has taken a hit of late. Sasikala, who prefers to live boldly and does not cover her face, likes dressing up and wearing make-up, much like girls her age, though she finds it difficult to execute them owing to her complications. She was only six-months-old when her parents noticed a part of her face swelling. However, they waited for another one and a half years to get medical help. “I have always been very bold, however, with age, the condition progressed and no one has come for help,” she says, adding, “I am slowly losing my confidence.” According to medical experts, her condition affects the face and craniofacial region of the body. It can also affect the neck and other parts of the body, depending upon the host. The family had not considered the deformity to be a big issue until Sasikala turned six and the face started to swell at an unusual rate. Now, almost 18 years later, she finds it difficult to execute daily chores like eating and brushing. The 24-year old is an employee at an embroidery unit run by a trust. Sasikala took it up as a means to support her family after completing her diploma in nursing and unable to land a job in the hospitality sector. Kumar, 54, Sasikala’s father, says his daughter has been under the knife four times, but it has only gotten worse. “She was six when doctors operated upon her for the first time,” Kumar says. “The result was satisfying and she looked normal,” he added. However, the joy was short-lived, as the tumours grew back again. Kumar says upon approaching the doctors again, he was told that it could be controlled but wou
    MEGA506733_006.jpg
  • EXCLUSIVE: Battling a rare health condition that has left half of her face disfigured, a 24-year-old Indian woman says she tries to live positively despite jeers by people. Sasikala K, from Chennai, the capital of India’s southern Tamil Nadu state, suffers from plexiform neurofibromatosis, which has taken a toll on her face, affecting the right side. However, she admits her confidence has taken a hit of late. Sasikala, who prefers to live boldly and does not cover her face, likes dressing up and wearing make-up, much like girls her age, though she finds it difficult to execute them owing to her complications. She was only six-months-old when her parents noticed a part of her face swelling. However, they waited for another one and a half years to get medical help. “I have always been very bold, however, with age, the condition progressed and no one has come for help,” she says, adding, “I am slowly losing my confidence.” According to medical experts, her condition affects the face and craniofacial region of the body. It can also affect the neck and other parts of the body, depending upon the host. The family had not considered the deformity to be a big issue until Sasikala turned six and the face started to swell at an unusual rate. Now, almost 18 years later, she finds it difficult to execute daily chores like eating and brushing. The 24-year old is an employee at an embroidery unit run by a trust. Sasikala took it up as a means to support her family after completing her diploma in nursing and unable to land a job in the hospitality sector. Kumar, 54, Sasikala’s father, says his daughter has been under the knife four times, but it has only gotten worse. “She was six when doctors operated upon her for the first time,” Kumar says. “The result was satisfying and she looked normal,” he added. However, the joy was short-lived, as the tumours grew back again. Kumar says upon approaching the doctors again, he was told that it could be controlled but wou
    MEGA506733_008.jpg
  • EXCLUSIVE: Battling a rare health condition that has left half of her face disfigured, a 24-year-old Indian woman says she tries to live positively despite jeers by people. Sasikala K, from Chennai, the capital of India’s southern Tamil Nadu state, suffers from plexiform neurofibromatosis, which has taken a toll on her face, affecting the right side. However, she admits her confidence has taken a hit of late. Sasikala, who prefers to live boldly and does not cover her face, likes dressing up and wearing make-up, much like girls her age, though she finds it difficult to execute them owing to her complications. She was only six-months-old when her parents noticed a part of her face swelling. However, they waited for another one and a half years to get medical help. “I have always been very bold, however, with age, the condition progressed and no one has come for help,” she says, adding, “I am slowly losing my confidence.” According to medical experts, her condition affects the face and craniofacial region of the body. It can also affect the neck and other parts of the body, depending upon the host. The family had not considered the deformity to be a big issue until Sasikala turned six and the face started to swell at an unusual rate. Now, almost 18 years later, she finds it difficult to execute daily chores like eating and brushing. The 24-year old is an employee at an embroidery unit run by a trust. Sasikala took it up as a means to support her family after completing her diploma in nursing and unable to land a job in the hospitality sector. Kumar, 54, Sasikala’s father, says his daughter has been under the knife four times, but it has only gotten worse. “She was six when doctors operated upon her for the first time,” Kumar says. “The result was satisfying and she looked normal,” he added. However, the joy was short-lived, as the tumours grew back again. Kumar says upon approaching the doctors again, he was told that it could be controlled but wou
    MEGA506733_016.jpg
  • EXCLUSIVE: Battling a rare health condition that has left half of her face disfigured, a 24-year-old Indian woman says she tries to live positively despite jeers by people. Sasikala K, from Chennai, the capital of India’s southern Tamil Nadu state, suffers from plexiform neurofibromatosis, which has taken a toll on her face, affecting the right side. However, she admits her confidence has taken a hit of late. Sasikala, who prefers to live boldly and does not cover her face, likes dressing up and wearing make-up, much like girls her age, though she finds it difficult to execute them owing to her complications. She was only six-months-old when her parents noticed a part of her face swelling. However, they waited for another one and a half years to get medical help. “I have always been very bold, however, with age, the condition progressed and no one has come for help,” she says, adding, “I am slowly losing my confidence.” According to medical experts, her condition affects the face and craniofacial region of the body. It can also affect the neck and other parts of the body, depending upon the host. The family had not considered the deformity to be a big issue until Sasikala turned six and the face started to swell at an unusual rate. Now, almost 18 years later, she finds it difficult to execute daily chores like eating and brushing. The 24-year old is an employee at an embroidery unit run by a trust. Sasikala took it up as a means to support her family after completing her diploma in nursing and unable to land a job in the hospitality sector. Kumar, 54, Sasikala’s father, says his daughter has been under the knife four times, but it has only gotten worse. “She was six when doctors operated upon her for the first time,” Kumar says. “The result was satisfying and she looked normal,” he added. However, the joy was short-lived, as the tumours grew back again. Kumar says upon approaching the doctors again, he was told that it could be controlled but wou
    MEGA506733_027.jpg
  • EXCLUSIVE: Battling a rare health condition that has left half of her face disfigured, a 24-year-old Indian woman says she tries to live positively despite jeers by people. Sasikala K, from Chennai, the capital of India’s southern Tamil Nadu state, suffers from plexiform neurofibromatosis, which has taken a toll on her face, affecting the right side. However, she admits her confidence has taken a hit of late. Sasikala, who prefers to live boldly and does not cover her face, likes dressing up and wearing make-up, much like girls her age, though she finds it difficult to execute them owing to her complications. She was only six-months-old when her parents noticed a part of her face swelling. However, they waited for another one and a half years to get medical help. “I have always been very bold, however, with age, the condition progressed and no one has come for help,” she says, adding, “I am slowly losing my confidence.” According to medical experts, her condition affects the face and craniofacial region of the body. It can also affect the neck and other parts of the body, depending upon the host. The family had not considered the deformity to be a big issue until Sasikala turned six and the face started to swell at an unusual rate. Now, almost 18 years later, she finds it difficult to execute daily chores like eating and brushing. The 24-year old is an employee at an embroidery unit run by a trust. Sasikala took it up as a means to support her family after completing her diploma in nursing and unable to land a job in the hospitality sector. Kumar, 54, Sasikala’s father, says his daughter has been under the knife four times, but it has only gotten worse. “She was six when doctors operated upon her for the first time,” Kumar says. “The result was satisfying and she looked normal,” he added. However, the joy was short-lived, as the tumours grew back again. Kumar says upon approaching the doctors again, he was told that it could be controlled but wou
    MEGA506733_029.jpg
  • EXCLUSIVE: Battling a rare health condition that has left half of her face disfigured, a 24-year-old Indian woman says she tries to live positively despite jeers by people. Sasikala K, from Chennai, the capital of India’s southern Tamil Nadu state, suffers from plexiform neurofibromatosis, which has taken a toll on her face, affecting the right side. However, she admits her confidence has taken a hit of late. Sasikala, who prefers to live boldly and does not cover her face, likes dressing up and wearing make-up, much like girls her age, though she finds it difficult to execute them owing to her complications. She was only six-months-old when her parents noticed a part of her face swelling. However, they waited for another one and a half years to get medical help. “I have always been very bold, however, with age, the condition progressed and no one has come for help,” she says, adding, “I am slowly losing my confidence.” According to medical experts, her condition affects the face and craniofacial region of the body. It can also affect the neck and other parts of the body, depending upon the host. The family had not considered the deformity to be a big issue until Sasikala turned six and the face started to swell at an unusual rate. Now, almost 18 years later, she finds it difficult to execute daily chores like eating and brushing. The 24-year old is an employee at an embroidery unit run by a trust. Sasikala took it up as a means to support her family after completing her diploma in nursing and unable to land a job in the hospitality sector. Kumar, 54, Sasikala’s father, says his daughter has been under the knife four times, but it has only gotten worse. “She was six when doctors operated upon her for the first time,” Kumar says. “The result was satisfying and she looked normal,” he added. However, the joy was short-lived, as the tumours grew back again. Kumar says upon approaching the doctors again, he was told that it could be controlled but wou
    MEGA506733_034.jpg
  • EXCLUSIVE: Battling a rare health condition that has left half of her face disfigured, a 24-year-old Indian woman says she tries to live positively despite jeers by people. Sasikala K, from Chennai, the capital of India’s southern Tamil Nadu state, suffers from plexiform neurofibromatosis, which has taken a toll on her face, affecting the right side. However, she admits her confidence has taken a hit of late. Sasikala, who prefers to live boldly and does not cover her face, likes dressing up and wearing make-up, much like girls her age, though she finds it difficult to execute them owing to her complications. She was only six-months-old when her parents noticed a part of her face swelling. However, they waited for another one and a half years to get medical help. “I have always been very bold, however, with age, the condition progressed and no one has come for help,” she says, adding, “I am slowly losing my confidence.” According to medical experts, her condition affects the face and craniofacial region of the body. It can also affect the neck and other parts of the body, depending upon the host. The family had not considered the deformity to be a big issue until Sasikala turned six and the face started to swell at an unusual rate. Now, almost 18 years later, she finds it difficult to execute daily chores like eating and brushing. The 24-year old is an employee at an embroidery unit run by a trust. Sasikala took it up as a means to support her family after completing her diploma in nursing and unable to land a job in the hospitality sector. Kumar, 54, Sasikala’s father, says his daughter has been under the knife four times, but it has only gotten worse. “She was six when doctors operated upon her for the first time,” Kumar says. “The result was satisfying and she looked normal,” he added. However, the joy was short-lived, as the tumours grew back again. Kumar says upon approaching the doctors again, he was told that it could be controlled but wou
    MEGA506733_038.jpg
  • EXCLUSIVE: A 10-year-old girl suffering from a rare skin disorder is gradually turning into a stone. Scutes shaped as barks -- caused due to mutation of genes -- have spread all over her body. Rajeshwari, hailing from a tribal area in Dantewada district of north Indian state of Chhattisgarh suffers from a case of ichthyosis that causes reddening, scaling and severe blistering of the skin. The incurable disease affects the process of skin regeneration in the human body, making it hard and flaky. Visuals show a heart-wrenching sight of Rajeshwari sitting under a thatched hut with blisters almost covering her whole body. Though the disease doesn't pose any risk to her life, it has made a life 'a living hell'. The disease hinders her daily life, making even simple activities such as walking and sitting very painful. According to reports, the rare genetic condition affects very few people and till now only two dozen cases have been reported in the world. The rarity of the case makes research difficult and the medicine to control the incurable disease has severe side effects. For people residing in the Naxal infested area, availing simple health care is already a mean feat and Rajeshwari's condition requires her to travel to a big city which is difficult for the time being. when doctors were shown the patient's case file, few of them came forward to express their opinions and diagnosis. Speaking about her condition, Dr.Satyaki Ganguly, Associate Professor at All India Institute of Medical Sciences(AIIMS), Raipur, said “ The medical term for this genetic disorder is Ichthyosis Psoriasis and due to very few cases in India, there has not been any major breakthrough in terms of research. Currently, science has no cure for this ailment.” Another dermatologist has another take on Rajeshwari’s case, Dr.Yash Upender from Dantewada Hospital believes that the girl suffers from Epidermolytic Ichthyosis which is not a life threatening disease but is still uncurable. Medication
    MEGA586418_001.jpg
  • EXCLUSIVE: A 10-year-old girl suffering from a rare skin disorder is gradually turning into a stone. Scutes shaped as barks -- caused due to mutation of genes -- have spread all over her body. Rajeshwari, hailing from a tribal area in Dantewada district of north Indian state of Chhattisgarh suffers from a case of ichthyosis that causes reddening, scaling and severe blistering of the skin. The incurable disease affects the process of skin regeneration in the human body, making it hard and flaky. Visuals show a heart-wrenching sight of Rajeshwari sitting under a thatched hut with blisters almost covering her whole body. Though the disease doesn't pose any risk to her life, it has made a life 'a living hell'. The disease hinders her daily life, making even simple activities such as walking and sitting very painful. According to reports, the rare genetic condition affects very few people and till now only two dozen cases have been reported in the world. The rarity of the case makes research difficult and the medicine to control the incurable disease has severe side effects. For people residing in the Naxal infested area, availing simple health care is already a mean feat and Rajeshwari's condition requires her to travel to a big city which is difficult for the time being. when doctors were shown the patient's case file, few of them came forward to express their opinions and diagnosis. Speaking about her condition, Dr.Satyaki Ganguly, Associate Professor at All India Institute of Medical Sciences(AIIMS), Raipur, said “ The medical term for this genetic disorder is Ichthyosis Psoriasis and due to very few cases in India, there has not been any major breakthrough in terms of research. Currently, science has no cure for this ailment.” Another dermatologist has another take on Rajeshwari’s case, Dr.Yash Upender from Dantewada Hospital believes that the girl suffers from Epidermolytic Ichthyosis which is not a life threatening disease but is still uncurable. Medication
    MEGA586418_002.jpg
  • EXCLUSIVE: A 10-year-old girl suffering from a rare skin disorder is gradually turning into a stone. Scutes shaped as barks -- caused due to mutation of genes -- have spread all over her body. Rajeshwari, hailing from a tribal area in Dantewada district of north Indian state of Chhattisgarh suffers from a case of ichthyosis that causes reddening, scaling and severe blistering of the skin. The incurable disease affects the process of skin regeneration in the human body, making it hard and flaky. Visuals show a heart-wrenching sight of Rajeshwari sitting under a thatched hut with blisters almost covering her whole body. Though the disease doesn't pose any risk to her life, it has made a life 'a living hell'. The disease hinders her daily life, making even simple activities such as walking and sitting very painful. According to reports, the rare genetic condition affects very few people and till now only two dozen cases have been reported in the world. The rarity of the case makes research difficult and the medicine to control the incurable disease has severe side effects. For people residing in the Naxal infested area, availing simple health care is already a mean feat and Rajeshwari's condition requires her to travel to a big city which is difficult for the time being. when doctors were shown the patient's case file, few of them came forward to express their opinions and diagnosis. Speaking about her condition, Dr.Satyaki Ganguly, Associate Professor at All India Institute of Medical Sciences(AIIMS), Raipur, said “ The medical term for this genetic disorder is Ichthyosis Psoriasis and due to very few cases in India, there has not been any major breakthrough in terms of research. Currently, science has no cure for this ailment.” Another dermatologist has another take on Rajeshwari’s case, Dr.Yash Upender from Dantewada Hospital believes that the girl suffers from Epidermolytic Ichthyosis which is not a life threatening disease but is still uncurable. Medication
    MEGA586418_006.jpg
  • EXCLUSIVE: A 10-year-old girl suffering from a rare skin disorder is gradually turning into a stone. Scutes shaped as barks -- caused due to mutation of genes -- have spread all over her body. Rajeshwari, hailing from a tribal area in Dantewada district of north Indian state of Chhattisgarh suffers from a case of ichthyosis that causes reddening, scaling and severe blistering of the skin. The incurable disease affects the process of skin regeneration in the human body, making it hard and flaky. Visuals show a heart-wrenching sight of Rajeshwari sitting under a thatched hut with blisters almost covering her whole body. Though the disease doesn't pose any risk to her life, it has made a life 'a living hell'. The disease hinders her daily life, making even simple activities such as walking and sitting very painful. According to reports, the rare genetic condition affects very few people and till now only two dozen cases have been reported in the world. The rarity of the case makes research difficult and the medicine to control the incurable disease has severe side effects. For people residing in the Naxal infested area, availing simple health care is already a mean feat and Rajeshwari's condition requires her to travel to a big city which is difficult for the time being. when doctors were shown the patient's case file, few of them came forward to express their opinions and diagnosis. Speaking about her condition, Dr.Satyaki Ganguly, Associate Professor at All India Institute of Medical Sciences(AIIMS), Raipur, said “ The medical term for this genetic disorder is Ichthyosis Psoriasis and due to very few cases in India, there has not been any major breakthrough in terms of research. Currently, science has no cure for this ailment.” Another dermatologist has another take on Rajeshwari’s case, Dr.Yash Upender from Dantewada Hospital believes that the girl suffers from Epidermolytic Ichthyosis which is not a life threatening disease but is still uncurable. Medication
    MEGA586418_005.jpg
  • EXCLUSIVE: A 10-year-old girl suffering from a rare skin disorder is gradually turning into a stone. Scutes shaped as barks -- caused due to mutation of genes -- have spread all over her body. Rajeshwari, hailing from a tribal area in Dantewada district of north Indian state of Chhattisgarh suffers from a case of ichthyosis that causes reddening, scaling and severe blistering of the skin. The incurable disease affects the process of skin regeneration in the human body, making it hard and flaky. Visuals show a heart-wrenching sight of Rajeshwari sitting under a thatched hut with blisters almost covering her whole body. Though the disease doesn't pose any risk to her life, it has made a life 'a living hell'. The disease hinders her daily life, making even simple activities such as walking and sitting very painful. According to reports, the rare genetic condition affects very few people and till now only two dozen cases have been reported in the world. The rarity of the case makes research difficult and the medicine to control the incurable disease has severe side effects. For people residing in the Naxal infested area, availing simple health care is already a mean feat and Rajeshwari's condition requires her to travel to a big city which is difficult for the time being. when doctors were shown the patient's case file, few of them came forward to express their opinions and diagnosis. Speaking about her condition, Dr.Satyaki Ganguly, Associate Professor at All India Institute of Medical Sciences(AIIMS), Raipur, said “ The medical term for this genetic disorder is Ichthyosis Psoriasis and due to very few cases in India, there has not been any major breakthrough in terms of research. Currently, science has no cure for this ailment.” Another dermatologist has another take on Rajeshwari’s case, Dr.Yash Upender from Dantewada Hospital believes that the girl suffers from Epidermolytic Ichthyosis which is not a life threatening disease but is still uncurable. Medication
    MEGA586418_008.jpg
  • EXCLUSIVE: A 10-year-old girl suffering from a rare skin disorder is gradually turning into a stone. Scutes shaped as barks -- caused due to mutation of genes -- have spread all over her body. Rajeshwari, hailing from a tribal area in Dantewada district of north Indian state of Chhattisgarh suffers from a case of ichthyosis that causes reddening, scaling and severe blistering of the skin. The incurable disease affects the process of skin regeneration in the human body, making it hard and flaky. Visuals show a heart-wrenching sight of Rajeshwari sitting under a thatched hut with blisters almost covering her whole body. Though the disease doesn't pose any risk to her life, it has made a life 'a living hell'. The disease hinders her daily life, making even simple activities such as walking and sitting very painful. According to reports, the rare genetic condition affects very few people and till now only two dozen cases have been reported in the world. The rarity of the case makes research difficult and the medicine to control the incurable disease has severe side effects. For people residing in the Naxal infested area, availing simple health care is already a mean feat and Rajeshwari's condition requires her to travel to a big city which is difficult for the time being. when doctors were shown the patient's case file, few of them came forward to express their opinions and diagnosis. Speaking about her condition, Dr.Satyaki Ganguly, Associate Professor at All India Institute of Medical Sciences(AIIMS), Raipur, said “ The medical term for this genetic disorder is Ichthyosis Psoriasis and due to very few cases in India, there has not been any major breakthrough in terms of research. Currently, science has no cure for this ailment.” Another dermatologist has another take on Rajeshwari’s case, Dr.Yash Upender from Dantewada Hospital believes that the girl suffers from Epidermolytic Ichthyosis which is not a life threatening disease but is still uncurable. Medication
    MEGA586418_007.jpg
  • EXCLUSIVE: A 10-year-old girl suffering from a rare skin disorder is gradually turning into a stone. Scutes shaped as barks -- caused due to mutation of genes -- have spread all over her body. Rajeshwari, hailing from a tribal area in Dantewada district of north Indian state of Chhattisgarh suffers from a case of ichthyosis that causes reddening, scaling and severe blistering of the skin. The incurable disease affects the process of skin regeneration in the human body, making it hard and flaky. Visuals show a heart-wrenching sight of Rajeshwari sitting under a thatched hut with blisters almost covering her whole body. Though the disease doesn't pose any risk to her life, it has made a life 'a living hell'. The disease hinders her daily life, making even simple activities such as walking and sitting very painful. According to reports, the rare genetic condition affects very few people and till now only two dozen cases have been reported in the world. The rarity of the case makes research difficult and the medicine to control the incurable disease has severe side effects. For people residing in the Naxal infested area, availing simple health care is already a mean feat and Rajeshwari's condition requires her to travel to a big city which is difficult for the time being. when doctors were shown the patient's case file, few of them came forward to express their opinions and diagnosis. Speaking about her condition, Dr.Satyaki Ganguly, Associate Professor at All India Institute of Medical Sciences(AIIMS), Raipur, said “ The medical term for this genetic disorder is Ichthyosis Psoriasis and due to very few cases in India, there has not been any major breakthrough in terms of research. Currently, science has no cure for this ailment.” Another dermatologist has another take on Rajeshwari’s case, Dr.Yash Upender from Dantewada Hospital believes that the girl suffers from Epidermolytic Ichthyosis which is not a life threatening disease but is still uncurable. Medication
    MEGA586418_003.jpg
  • EXCLUSIVE: A 10-year-old girl suffering from a rare skin disorder is gradually turning into a stone. Scutes shaped as barks -- caused due to mutation of genes -- have spread all over her body. Rajeshwari, hailing from a tribal area in Dantewada district of north Indian state of Chhattisgarh suffers from a case of ichthyosis that causes reddening, scaling and severe blistering of the skin. The incurable disease affects the process of skin regeneration in the human body, making it hard and flaky. Visuals show a heart-wrenching sight of Rajeshwari sitting under a thatched hut with blisters almost covering her whole body. Though the disease doesn't pose any risk to her life, it has made a life 'a living hell'. The disease hinders her daily life, making even simple activities such as walking and sitting very painful. According to reports, the rare genetic condition affects very few people and till now only two dozen cases have been reported in the world. The rarity of the case makes research difficult and the medicine to control the incurable disease has severe side effects. For people residing in the Naxal infested area, availing simple health care is already a mean feat and Rajeshwari's condition requires her to travel to a big city which is difficult for the time being. when doctors were shown the patient's case file, few of them came forward to express their opinions and diagnosis. Speaking about her condition, Dr.Satyaki Ganguly, Associate Professor at All India Institute of Medical Sciences(AIIMS), Raipur, said “ The medical term for this genetic disorder is Ichthyosis Psoriasis and due to very few cases in India, there has not been any major breakthrough in terms of research. Currently, science has no cure for this ailment.” Another dermatologist has another take on Rajeshwari’s case, Dr.Yash Upender from Dantewada Hospital believes that the girl suffers from Epidermolytic Ichthyosis which is not a life threatening disease but is still uncurable. Medication
    MEGA586418_004.jpg