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  • EXCLUSIVE: A 10-year-old girl suffering from a rare skin disorder is gradually turning into a stone. Scutes shaped as barks -- caused due to mutation of genes -- have spread all over her body. Rajeshwari, hailing from a tribal area in Dantewada district of north Indian state of Chhattisgarh suffers from a case of ichthyosis that causes reddening, scaling and severe blistering of the skin. The incurable disease affects the process of skin regeneration in the human body, making it hard and flaky. Visuals show a heart-wrenching sight of Rajeshwari sitting under a thatched hut with blisters almost covering her whole body. Though the disease doesn't pose any risk to her life, it has made a life 'a living hell'. The disease hinders her daily life, making even simple activities such as walking and sitting very painful. According to reports, the rare genetic condition affects very few people and till now only two dozen cases have been reported in the world. The rarity of the case makes research difficult and the medicine to control the incurable disease has severe side effects. For people residing in the Naxal infested area, availing simple health care is already a mean feat and Rajeshwari's condition requires her to travel to a big city which is difficult for the time being. when doctors were shown the patient's case file, few of them came forward to express their opinions and diagnosis. Speaking about her condition, Dr.Satyaki Ganguly, Associate Professor at All India Institute of Medical Sciences(AIIMS), Raipur, said “ The medical term for this genetic disorder is Ichthyosis Psoriasis and due to very few cases in India, there has not been any major breakthrough in terms of research. Currently, science has no cure for this ailment.” Another dermatologist has another take on Rajeshwari’s case, Dr.Yash Upender from Dantewada Hospital believes that the girl suffers from Epidermolytic Ichthyosis which is not a life threatening disease but is still uncurable. Medication
    MEGA586418_005.jpg
  • EXCLUSIVE: A 10-year-old girl suffering from a rare skin disorder is gradually turning into a stone. Scutes shaped as barks -- caused due to mutation of genes -- have spread all over her body. Rajeshwari, hailing from a tribal area in Dantewada district of north Indian state of Chhattisgarh suffers from a case of ichthyosis that causes reddening, scaling and severe blistering of the skin. The incurable disease affects the process of skin regeneration in the human body, making it hard and flaky. Visuals show a heart-wrenching sight of Rajeshwari sitting under a thatched hut with blisters almost covering her whole body. Though the disease doesn't pose any risk to her life, it has made a life 'a living hell'. The disease hinders her daily life, making even simple activities such as walking and sitting very painful. According to reports, the rare genetic condition affects very few people and till now only two dozen cases have been reported in the world. The rarity of the case makes research difficult and the medicine to control the incurable disease has severe side effects. For people residing in the Naxal infested area, availing simple health care is already a mean feat and Rajeshwari's condition requires her to travel to a big city which is difficult for the time being. when doctors were shown the patient's case file, few of them came forward to express their opinions and diagnosis. Speaking about her condition, Dr.Satyaki Ganguly, Associate Professor at All India Institute of Medical Sciences(AIIMS), Raipur, said “ The medical term for this genetic disorder is Ichthyosis Psoriasis and due to very few cases in India, there has not been any major breakthrough in terms of research. Currently, science has no cure for this ailment.” Another dermatologist has another take on Rajeshwari’s case, Dr.Yash Upender from Dantewada Hospital believes that the girl suffers from Epidermolytic Ichthyosis which is not a life threatening disease but is still uncurable. Medication
    MEGA586418_008.jpg
  • EXCLUSIVE: A 10-year-old girl suffering from a rare skin disorder is gradually turning into a stone. Scutes shaped as barks -- caused due to mutation of genes -- have spread all over her body. Rajeshwari, hailing from a tribal area in Dantewada district of north Indian state of Chhattisgarh suffers from a case of ichthyosis that causes reddening, scaling and severe blistering of the skin. The incurable disease affects the process of skin regeneration in the human body, making it hard and flaky. Visuals show a heart-wrenching sight of Rajeshwari sitting under a thatched hut with blisters almost covering her whole body. Though the disease doesn't pose any risk to her life, it has made a life 'a living hell'. The disease hinders her daily life, making even simple activities such as walking and sitting very painful. According to reports, the rare genetic condition affects very few people and till now only two dozen cases have been reported in the world. The rarity of the case makes research difficult and the medicine to control the incurable disease has severe side effects. For people residing in the Naxal infested area, availing simple health care is already a mean feat and Rajeshwari's condition requires her to travel to a big city which is difficult for the time being. when doctors were shown the patient's case file, few of them came forward to express their opinions and diagnosis. Speaking about her condition, Dr.Satyaki Ganguly, Associate Professor at All India Institute of Medical Sciences(AIIMS), Raipur, said “ The medical term for this genetic disorder is Ichthyosis Psoriasis and due to very few cases in India, there has not been any major breakthrough in terms of research. Currently, science has no cure for this ailment.” Another dermatologist has another take on Rajeshwari’s case, Dr.Yash Upender from Dantewada Hospital believes that the girl suffers from Epidermolytic Ichthyosis which is not a life threatening disease but is still uncurable. Medication
    MEGA586418_006.jpg
  • EXCLUSIVE: A 10-year-old girl suffering from a rare skin disorder is gradually turning into a stone. Scutes shaped as barks -- caused due to mutation of genes -- have spread all over her body. Rajeshwari, hailing from a tribal area in Dantewada district of north Indian state of Chhattisgarh suffers from a case of ichthyosis that causes reddening, scaling and severe blistering of the skin. The incurable disease affects the process of skin regeneration in the human body, making it hard and flaky. Visuals show a heart-wrenching sight of Rajeshwari sitting under a thatched hut with blisters almost covering her whole body. Though the disease doesn't pose any risk to her life, it has made a life 'a living hell'. The disease hinders her daily life, making even simple activities such as walking and sitting very painful. According to reports, the rare genetic condition affects very few people and till now only two dozen cases have been reported in the world. The rarity of the case makes research difficult and the medicine to control the incurable disease has severe side effects. For people residing in the Naxal infested area, availing simple health care is already a mean feat and Rajeshwari's condition requires her to travel to a big city which is difficult for the time being. when doctors were shown the patient's case file, few of them came forward to express their opinions and diagnosis. Speaking about her condition, Dr.Satyaki Ganguly, Associate Professor at All India Institute of Medical Sciences(AIIMS), Raipur, said “ The medical term for this genetic disorder is Ichthyosis Psoriasis and due to very few cases in India, there has not been any major breakthrough in terms of research. Currently, science has no cure for this ailment.” Another dermatologist has another take on Rajeshwari’s case, Dr.Yash Upender from Dantewada Hospital believes that the girl suffers from Epidermolytic Ichthyosis which is not a life threatening disease but is still uncurable. Medication
    MEGA586418_002.jpg
  • EXCLUSIVE: A 10-year-old girl suffering from a rare skin disorder is gradually turning into a stone. Scutes shaped as barks -- caused due to mutation of genes -- have spread all over her body. Rajeshwari, hailing from a tribal area in Dantewada district of north Indian state of Chhattisgarh suffers from a case of ichthyosis that causes reddening, scaling and severe blistering of the skin. The incurable disease affects the process of skin regeneration in the human body, making it hard and flaky. Visuals show a heart-wrenching sight of Rajeshwari sitting under a thatched hut with blisters almost covering her whole body. Though the disease doesn't pose any risk to her life, it has made a life 'a living hell'. The disease hinders her daily life, making even simple activities such as walking and sitting very painful. According to reports, the rare genetic condition affects very few people and till now only two dozen cases have been reported in the world. The rarity of the case makes research difficult and the medicine to control the incurable disease has severe side effects. For people residing in the Naxal infested area, availing simple health care is already a mean feat and Rajeshwari's condition requires her to travel to a big city which is difficult for the time being. when doctors were shown the patient's case file, few of them came forward to express their opinions and diagnosis. Speaking about her condition, Dr.Satyaki Ganguly, Associate Professor at All India Institute of Medical Sciences(AIIMS), Raipur, said “ The medical term for this genetic disorder is Ichthyosis Psoriasis and due to very few cases in India, there has not been any major breakthrough in terms of research. Currently, science has no cure for this ailment.” Another dermatologist has another take on Rajeshwari’s case, Dr.Yash Upender from Dantewada Hospital believes that the girl suffers from Epidermolytic Ichthyosis which is not a life threatening disease but is still uncurable. Medication
    MEGA586418_007.jpg
  • EXCLUSIVE: A 10-year-old girl suffering from a rare skin disorder is gradually turning into a stone. Scutes shaped as barks -- caused due to mutation of genes -- have spread all over her body. Rajeshwari, hailing from a tribal area in Dantewada district of north Indian state of Chhattisgarh suffers from a case of ichthyosis that causes reddening, scaling and severe blistering of the skin. The incurable disease affects the process of skin regeneration in the human body, making it hard and flaky. Visuals show a heart-wrenching sight of Rajeshwari sitting under a thatched hut with blisters almost covering her whole body. Though the disease doesn't pose any risk to her life, it has made a life 'a living hell'. The disease hinders her daily life, making even simple activities such as walking and sitting very painful. According to reports, the rare genetic condition affects very few people and till now only two dozen cases have been reported in the world. The rarity of the case makes research difficult and the medicine to control the incurable disease has severe side effects. For people residing in the Naxal infested area, availing simple health care is already a mean feat and Rajeshwari's condition requires her to travel to a big city which is difficult for the time being. when doctors were shown the patient's case file, few of them came forward to express their opinions and diagnosis. Speaking about her condition, Dr.Satyaki Ganguly, Associate Professor at All India Institute of Medical Sciences(AIIMS), Raipur, said “ The medical term for this genetic disorder is Ichthyosis Psoriasis and due to very few cases in India, there has not been any major breakthrough in terms of research. Currently, science has no cure for this ailment.” Another dermatologist has another take on Rajeshwari’s case, Dr.Yash Upender from Dantewada Hospital believes that the girl suffers from Epidermolytic Ichthyosis which is not a life threatening disease but is still uncurable. Medication
    MEGA586418_001.jpg
  • EXCLUSIVE: A 10-year-old girl suffering from a rare skin disorder is gradually turning into a stone. Scutes shaped as barks -- caused due to mutation of genes -- have spread all over her body. Rajeshwari, hailing from a tribal area in Dantewada district of north Indian state of Chhattisgarh suffers from a case of ichthyosis that causes reddening, scaling and severe blistering of the skin. The incurable disease affects the process of skin regeneration in the human body, making it hard and flaky. Visuals show a heart-wrenching sight of Rajeshwari sitting under a thatched hut with blisters almost covering her whole body. Though the disease doesn't pose any risk to her life, it has made a life 'a living hell'. The disease hinders her daily life, making even simple activities such as walking and sitting very painful. According to reports, the rare genetic condition affects very few people and till now only two dozen cases have been reported in the world. The rarity of the case makes research difficult and the medicine to control the incurable disease has severe side effects. For people residing in the Naxal infested area, availing simple health care is already a mean feat and Rajeshwari's condition requires her to travel to a big city which is difficult for the time being. when doctors were shown the patient's case file, few of them came forward to express their opinions and diagnosis. Speaking about her condition, Dr.Satyaki Ganguly, Associate Professor at All India Institute of Medical Sciences(AIIMS), Raipur, said “ The medical term for this genetic disorder is Ichthyosis Psoriasis and due to very few cases in India, there has not been any major breakthrough in terms of research. Currently, science has no cure for this ailment.” Another dermatologist has another take on Rajeshwari’s case, Dr.Yash Upender from Dantewada Hospital believes that the girl suffers from Epidermolytic Ichthyosis which is not a life threatening disease but is still uncurable. Medication
    MEGA586418_003.jpg
  • EXCLUSIVE: A 10-year-old girl suffering from a rare skin disorder is gradually turning into a stone. Scutes shaped as barks -- caused due to mutation of genes -- have spread all over her body. Rajeshwari, hailing from a tribal area in Dantewada district of north Indian state of Chhattisgarh suffers from a case of ichthyosis that causes reddening, scaling and severe blistering of the skin. The incurable disease affects the process of skin regeneration in the human body, making it hard and flaky. Visuals show a heart-wrenching sight of Rajeshwari sitting under a thatched hut with blisters almost covering her whole body. Though the disease doesn't pose any risk to her life, it has made a life 'a living hell'. The disease hinders her daily life, making even simple activities such as walking and sitting very painful. According to reports, the rare genetic condition affects very few people and till now only two dozen cases have been reported in the world. The rarity of the case makes research difficult and the medicine to control the incurable disease has severe side effects. For people residing in the Naxal infested area, availing simple health care is already a mean feat and Rajeshwari's condition requires her to travel to a big city which is difficult for the time being. when doctors were shown the patient's case file, few of them came forward to express their opinions and diagnosis. Speaking about her condition, Dr.Satyaki Ganguly, Associate Professor at All India Institute of Medical Sciences(AIIMS), Raipur, said “ The medical term for this genetic disorder is Ichthyosis Psoriasis and due to very few cases in India, there has not been any major breakthrough in terms of research. Currently, science has no cure for this ailment.” Another dermatologist has another take on Rajeshwari’s case, Dr.Yash Upender from Dantewada Hospital believes that the girl suffers from Epidermolytic Ichthyosis which is not a life threatening disease but is still uncurable. Medication
    MEGA586418_004.jpg
  • Lena Dunham releases a photo on Instagram with the following caption: "Anyone who knows me (or knows *of* me) equates me with 2 things: nudity and pelvic pain. I\u2019ll take it if it lets me spread the good word. And now, I\u2019m dating \u0026 connecting my scars from 12 surgeries as part of my endo sister @georgiewileman\u2019s campaign #thisisendometriosis (March is endometriosis awareness month) to raise awareness of endometriosis and the multiple surgeries that are performed every year to try and ease the symptoms of an incurable disease that effects roughly 1 out of 10 women, yet is so often ignored or dismissed as a mental health issue (uh yeah, when you ignore our pain it sure becomes one!) Let\u2019s make some noise this coming bikini season. \nPS: Should I just go for it and make these lines permanent?\nPPS: Trying to write the dates upside down on my stomach is the only downside of living alone.". Photo Credit: Instagram *** No USA Distribution *** For Editorial Use Only *** Not to be Published in Books or Photo Books ***  Please note: Fees charged by the agency are for the agency’s services only, and do not, nor are they intended to, convey to the user any ownership of Copyright or License in the material. The agency does not claim any ownership including but not limited to Copyright or License in the attached material. By publishing this material you expressly agree to indemnify and to hold the agency and its directors, shareholders and employees harmless from any loss, claims, damages, demands, expenses (including legal fees), or any causes of action or allegation against the agency arising out of or connected in any way with publication of the material.
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